Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2019

Advice please pmrpro

Pmrpro as an expert, can you explain this? I've just had an ultrasound on both temples which is not showing active inflammation yet I've had a terrible night...

Pmrpro as an expert, can you explain this? I've just had an ultrasound on both ...

Pamela60

•5 years ago

10 Replies

Happy at 4mg

Hi, I’ve now reached my maintenance dose of 4mg for PM after 4 months taper from 15mg. I tried 3.5mg for a couple of weeks but the stiffness and fatigue...

Hi, I’ve now reached my maintenance dose of 4mg for PM after 4 months taper fro...

Tonch

•5 years ago

36 Replies

Is my extreme fatigue and dropping off to sleep when travelling a little PMR or...

Hi all, I'm wondering if my fatigue(extreme), I cant travelin a car or train without drifting off to a kinda sleep, cant watch TV.. sleep long hours at night...

Hi all, I'm wondering if my fatigue(extreme), I cant travelin a car or train w...

Jan_Noack

•5 years ago

6 Replies

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Disability Discrimination Act - UK

Is PMR covered by the DDA? I'm about to apply for a job. I was made redundant a few months ago but I haven't worked for four months due to PMR. Am I ready to...

Is PMR covered by the DDA? I'm about to apply for a job. I was made redundant a...

Spittal9

•5 years ago

9 Replies

Hi all, am I having a flare up again

Hi it’s me again, have stabilized on 5mg for a while with tiny bit of aches. Doctor told me to reduce to 4mg which I have for a week now, this morning I upped...

Hi it’s me again, have stabilized on 5mg for a while with tiny bit of aches. Doc...

Margaret1951

•5 years ago

25 Replies

Update on previous post re: Difficulty Tapering

Further to my post a few days ago, I followed PMRpro's advice and increased Pred to 15mg. I did this for 3 days and still had the shoulder/hip pain and...

Further to my post a few days ago, I followed PMRpro's advice and increased Pred...

PatB1948

•5 years ago

6 Replies

Opiate addiction advice please

Help opiate reduction symptoms how to cope x

Peggy76

•5 years ago

16 Replies

GCA NICE Recommendations UK Tocilizumab

https://www.nice.org.uk/guidance/ta518/chapter/1-Recommendations Paste and Go in your URL For Refractory GCA Patients, your country posted these...

https://www.nice.org.uk/guidance/ta518/chapter/1-Recommendations Paste and Go ...

Dream21

•5 years ago

10 Replies

Chemical Poisoning through Inhalation

March 2016 was not a good month, with waterproofers injecting toxic waterproof chemicals into a cavity wall underneath our appartment. The chemicals injected...

March 2016 was not a good month, with waterproofers injecting toxic waterproof c...

PoisonedinAus

•5 years ago

3 Replies

Femur surgery 1 month ago

So I fell and broke the left femur which is the knee that needs replacing. Big rod from hip to knee. So I am on 13 mg of pred. and just went back on Actemra....

So I fell and broke the left femur which is the knee that needs replacing. Big r...

Nap1

•5 years ago

20 Replies

Hello, I went to a Functional Medicine practitioner last week and wondered if anyone else had experience of this?

Hello friends, thank you so much for all your advice on my potential implant, your knowlege has helped me inform my choice and to inform the dentist too. A...

Hello friends, thank you so much for all your advice on my potential implant, ...

Fieldofdreams

•5 years ago

31 Replies

How concerned should I be?

I had an appointment with my doctor last week. Everything went ok except he is having me come back for bloodwork next month. Somehow my liver markers were a...

I had an appointment with my doctor last week. Everything went ok except he is h...

Lanakay

•5 years ago

5 Replies

Help! New coordinator needed.

Hello everyone. I have coordinated the Chichester support group for 2 and a half years and enjoyed it. However, I need to hand over the baton as it has grown...

Hello everyone. I have coordinated the Chichester support group for 2 and a hal...

PhoebeMum

•5 years ago

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Prednisolone juggling: post chest infection and trip to Kenya vs shame

I’d tapered down to 12 but with chest infection and antibiotics boosted to 22 for a few days then back to 12. Okay for 4-5 days then quite poorly again so went...

I’d tapered down to 12 but with chest infection and antibiotics boosted to 22 fo...

Enfin

•5 years ago

9 Replies

Upper arm pain

For a few weeks I have been getting pain in my upper arm, yesterday I leaned over from one side of the car to get the empty bags, since then I’m in constant...

For a few weeks I have been getting pain in my upper arm, yesterday I leaned ove...

1964-karina

•5 years ago

18 Replies

Adrenals Waking Up

I know this has been on here before but cannot find. I am on 7mg of pred. My Rhemy claims it takes about three months for them to start working but I forgot to...

I know this has been on here before but cannot find. I am on 7mg of pred. My Rhe...

Robinsnest72

•5 years ago

5 Replies

DSNS TAPER

DSNS is my method this time tapering, .my question is , where do the half tablets come in, . ? Everyone talks about half amounts , but on the method to follow...

DSNS is my method this time tapering, .my question is , where do the half tablet...

Chopin002

•5 years ago

13 Replies

Post-Cataract Surgery Still Hurts

On 6.5 mg pred for PMRg, 2+ weeks since surgery left eye. Still feels as if something in eye. Dr. says eye itself is fine. Any connections with PMR or...

On 6.5 mg pred for PMRg, 2+ weeks since surgery left eye. Still feels as if some...

Neck680

•5 years ago

8 Replies

Arrrrgh! Guys, I am beside myself!

I was diagnosed definate PMR by ( locum) Cons Rheumatologist . Pred worked fine until I stopped after a year. All symptoms returned after a few weeks. GO...

I was diagnosed definate PMR by ( locum) Cons Rheumatologist . Pred worked fine ...

Breconblue

•5 years ago

10 Replies

Down to 19

Started at 60mg prednisone one year ago. GCA. just got to 19 this week. Feeling good. Yippee.

Started at 60mg prednisone one year ago. GCA. just got to 19 this week. Feelin...

alvertta

•5 years ago

15 Replies

Beautiful day in my neighbourhood

All the best for a great weekend. We are enjoying sun in Ontario.

alvertta

•5 years ago

22 Replies

Fatigue

Felt good, went to lunch with friends, picked up new glasses, gassed my car. Next Day, picked up groceries....Wham! I was on the couch napping, bed at 8...

Felt good, went to lunch with friends, picked up new glasses, gassed my car. Ne...

Gary1310

•5 years ago

7 Replies

Flu Jab reaction

I'm sorry I've not logged on for weeks, I had my flu jab yesterday and feeling terrible this morning, same happened last year, my arm still sore from that......

I'm sorry I've not logged on for weeks, I had my flu jab yesterday and feeling t...

Jancorb

•5 years ago

49 Replies

Further Update

Hi Following on from my previous update, I have now had a conversation with my GP regarding my follow up Dexa Scan result and it did not go well. The advice...

Hi Following on from my previous update, I have now had a conversation with my G...

Mitziecat

•5 years ago

8 Replies

Relief Factor

I was wondering if anyone knows about the product Relief Factor? It is suppose to be really good for relieving pain. Have you tried it, does it work for you?...

I was wondering if anyone knows about the product Relief Factor? It is suppose t...

Linny3

•5 years ago

6 Replies

Wondering about GCA pain/or is it dental

My labs came out better than ever but I was on 40 mgs prednisone.. so now he has me on 30 mgs and I still had and have jaw pain. BUT here is the problem...

My labs came out better than ever but I was on 40 mgs prednisone.. so now he h...

Hidden

•5 years ago

31 Replies

Knee Surgery

I recently had knee replacement surgery. It was very successful and I did very well with my PT. The one problem I have is swelling in the thigh, lower leg,...

I recently had knee replacement surgery. It was very successful and I did very ...

29Pain00

•5 years ago

11 Replies

Wondering if some of this pain is from residual biopsy

In pictures I've seen of biopsies of other people they were in the hairline a much smaller. My vascular surgeon went up the side of my ear and did a rather...

In pictures I've seen of biopsies of other people they were in the hairline a mu...

twriller

•5 years ago

10 Replies

A Discontented Occupant in a Defiant Body

I imagine it's true of any long term illness (PMR/GCA or any chronic, autoimmune disorder) you have good days and you have bad days. With me, I usually know...

I imagine it's true of any long term illness (PMR/GCA or any chronic, autoimmune...

Hidden

•5 years ago

55 Replies

I took these supplements before I wandering if anybody in this community takes these.

I take 2250 of collagen because Predisone takes away collagen . I take 3 tablets of Omega 3's and I take magnesium 500 mgs various times during the day...

I take 2250 of collagen because Predisone takes away collagen . I take 3 tablets...

susieq051

•5 years ago

40 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2019

Advice please pmrpro

Happy at 4mg

Is my extreme fatigue and dropping off to sleep when travelling a little PMR or...

Disability Discrimination Act - UK

Hi all, am I having a flare up again

Update on previous post re: Difficulty Tapering

Opiate addiction advice please

GCA NICE Recommendations UK Tocilizumab

Chemical Poisoning through Inhalation

Femur surgery 1 month ago

Hello, I went to a Functional Medicine practitioner last week and wondered if anyone else had experience of this?

How concerned should I be?

Help! New coordinator needed.

Prednisolone juggling: post chest infection and trip to Kenya vs shame

Upper arm pain

Adrenals Waking Up

DSNS TAPER

Post-Cataract Surgery Still Hurts

Arrrrgh! Guys, I am beside myself!

Down to 19

Beautiful day in my neighbourhood

Fatigue

Flu Jab reaction

Further Update

Relief Factor

Wondering about GCA pain/or is it dental

Knee Surgery

Wondering if some of this pain is from residual biopsy

A Discontented Occupant in a Defiant Body

I took these supplements before I wandering if anybody in this community takes these.

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