Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,273 members • 37,962 posts

All posts for October 2019

Professor's advice

Hi all. Hope you are as well as yo can be. A couple of weeks ago someone reposted the advice from a distinguished professor that he believed should be given to...

Hi all. Hope you are as well as yo can be. A couple of weeks ago someone reposte...

Legsy0714

•4 years ago

20 Replies

Possible PMR Diagnoses: Phoenix,Az

My journey started 4months ago, all of a sudden felt achy and had shoulder pains problems getting up from a chair. Would wake up in middle of nite with odd...

My journey started 4months ago, all of a sudden felt achy and had shoulder pains...

isaacbernice

•4 years ago

13 Replies

Advice needed please

Hi all it's over 6 years since I was diagnosed with PMR, at first I was told to take Naproxen, when that didn't help, my GP Said to increase the naproxen...

Hi all it's over 6 years since I was diagnosed with PMR, at first I was told to ...

kate1978

•4 years ago

11 Replies

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Nearly two years since diagnosis

In a few weeks time it will be two years since I was diagnosed with PMR. It’s been a tough journey for a number of reasons - not least trying to learn about a...

In a few weeks time it will be two years since I was diagnosed with PMR. It’s be...

Paula-kent

•4 years ago

3 Replies

Rheumatologist

Hi does anyone know of a good rheumatologist at the James Paget Hospital for GCA /PMR . And would I be able to swap the one of have .lol x

Hi does anyone know of a good rheumatologist at the James Paget Hospital for GCA...

cochise555

•4 years ago

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Alendronic Acid 70 mg tablets.

Does anyone have any thoughts on Alendronic Acid tablets? My rheumatologist wants me to take it, but for some reason, I just have a really strong aversion to...

Does anyone have any thoughts on Alendronic Acid tablets? My rheumatologist want...

Jampad

•4 years ago

10 Replies

brain fog

A little history, 82 yo, diagnosed 3 yrs ago, on 4mg prednisone, a dead slow taper. Getting rather anxious about having 'brain fog'. This occurs about ever...

A little history, 82 yo, diagnosed 3 yrs ago, on 4mg prednisone, a dead slow tap...

beaglercair

•4 years ago

3 Replies

Whats this?

Anyone know what to think of this? I had a very small red spot the size of a flea bite on my forearm the day I went up to 60 mg Prednisone. The next day, I...

Anyone know what to think of this? I had a very small red spot the size of a fle...

LIVEORDIEHEREIAM

•4 years ago

9 Replies

New and love this site! Thank You All!

I am male, 68, generally fit and healthy living in mid-Michigan, US. PMR diagnosed mid October of 2019. BIOPSY non-conclusive for GCA but my Rheumatologist put...

I am male, 68, generally fit and healthy living in mid-Michigan, US. PMR diagnos...

LIVEORDIEHEREIAM

•4 years ago

5 Replies

Can’t get below 1 mg!!!!

I have have been on pred for 2 years following my pmr diagnosis. I have reduced down to 1mg every other day. I am very stiff and achy but find i can walk it...

I have have been on pred for 2 years following my pmr diagnosis. I have reduced...

Osteoqueen

•4 years ago

9 Replies

Medication timings?

I am on 15 mg prednisolone, ramipril, Omeprazole, and today have started azathioprine. All these are to be taken in the morning with food, apart from the...

I am on 15 mg prednisolone, ramipril, Omeprazole, and today have started azathio...

Theziggy

•4 years ago

9 Replies

Forum

This is a great forum - keeps me going - first annual review with gp today

Daffodilia

•4 years ago

5 Replies

Confused

Can anyone advise me as to why when my stress levels increase so does my PMR symptoms , even though my blood tests come back within the normal range ?

Can anyone advise me as to why when my stress levels increase so does my PMR sym...

Bagama

•4 years ago

16 Replies

Sometimes I wonder if it's my GCA or medication

So I see my rheumatologist on Wednesday but after being on 80 mg of Prednisone for about 9 to 10 days and not noticing a lot of difference and dropping down...

So I see my rheumatologist on Wednesday but after being on 80 mg of Prednisone ...

twriller

•4 years ago

13 Replies

Recently experiencing chest pain

Brief summary of my PMR December 2018 outpatient care diagnosed me with PMR. February 2019 saw a rheumatologist put me on 30 mg prednisone. Overall been doing...

Brief summary of my PMR December 2018 outpatient care diagnosed me with PMR. Feb...

jensen0518

•4 years ago

5 Replies

Thyroid and PMR

Seems many on this blog have Thyroid conditions as well as PMR. I have both and wonder if I should see an Endocrinologist......I also have small benign tumors...

Seems many on this blog have Thyroid conditions as well as PMR. I have both and...

Gary1310

•4 years ago

22 Replies

Gratitude for All Of You

Hi, I’m newly diagnosed with PMR and GCA. Live in Texas, USA. Learning to live the joy of 60 mg prednisone as of 12 days ago. Never heard of this condition...

Hi, I’m newly diagnosed with PMR and GCA. Live in Texas, USA. Learning to live t...

cmgarner

•4 years ago

25 Replies

PMR and dry mouth?

I am very new to this forum and a diagnosis of PMR. I’m a 66 year old woman and have always been very active. Been on 20 mg prednisone for 1 week and now on 15...

I am very new to this forum and a diagnosis of PMR. I’m a 66 year old woman and ...

Whitner

•4 years ago

15 Replies

What is PMR

Interesting summary of PMR. https://yhoo.it/2qOIKF5

IdasMum

•4 years ago

7 Replies

Eye surgery

I am having surgery on my eyelids beginning in 2 weeks, they droop so much they are restricting my vision, so I qualify for this on the NHS. This will be...

I am having surgery on my eyelids beginning in 2 weeks, they droop so much they ...

Jancorb

•4 years ago

3 Replies

Blood test results compared to how I feel

When I was diagnosed with PMR in July I could hardly bend down or roll over and was in pain to walk and my blood test came back with ESR 36 and CRP 17....

When I was diagnosed with PMR in July I could hardly bend down or roll over and ...

Lovebikes

•4 years ago

9 Replies

Symptoms last an average time of what?

I am new.. How long is my PMR to last? I have had this for 1 and a half years.

I am new.. How long is my PMR to last? I have had this for 1 and a half years....

georgedog

•4 years ago

11 Replies

Cause of metallic taste?

I'm on 50mg Prednisolone daily and wonder if that's the cause of a permanent metallic taste in my mouth. Does anyone else have this problem? I find my sense of...

I'm on 50mg Prednisolone daily and wonder if that's the cause of a permanent met...

MrsChips

•4 years ago

16 Replies

Rather a vain question

Hi. I know so many of you out there are suffering far more than me so this will appear to be rather a vain question. I have done exceedingly well so far. Down...

Hi. I know so many of you out there are suffering far more than me so this will ...

Rosina1871

•4 years ago

27 Replies

Follow up appointment at GP

I started on 15mg of Pred on 11th October as my doctor said my symptoms & the presence of inflammation in my blood makes her believe I have PMR. I had never...

I started on 15mg of Pred on 11th October as my doctor said my symptoms & the pr...

Bowdenambleside

•4 years ago

20 Replies

Successful taper and hormones.

I am now on 3.25/2.5 every second day, so pleased that this low dose works for me. I have had pain in a hip and a shoulder since april and extra heartbeats...

I am now on 3.25/2.5 every second day, so pleased that this low dose works for m...

Pirnilla

•4 years ago

6 Replies

Over - not over

Not posted for a long time. Was beginning to think I was coming to the end of my PMR journey. Got my diagnosis for my symptoms at 49 and now at 54 and...

Not posted for a long time. Was beginning to think I was coming to the end of m...

sealine30

•4 years ago

36 Replies

Sadness plus

Diagnosed with gca in April 2019. Have gone from 80 mg to 15.mg. I've been sad off & on over the months. Like everyone else I miss not being able to do all the...

Diagnosed with gca in April 2019. Have gone from 80 mg to 15.mg. I've been sad o...

Spanky2019

•4 years ago

19 Replies

Diagnosed today

Hi all For the last 8 months or so I’ve been I’ve been back and to to the GP and diagnosed today with PMR. It all started with headaches and pains in my...

Hi all For the last 8 months or so I’ve been I’ve been back and to to the GP an...

Dexter67

•4 years ago

8 Replies

Eight weeks into PMR taking 15mg Pred

Have been struggling with diagnosis and taking pred. Have now got Kate Gilbert's book which is very helpful. Everything seems so complicated. Will I ever...

Have been struggling with diagnosis and taking pred. Have now got Kate Gilbert'...

Joanbill13

•4 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2019

Professor's advice

Possible PMR Diagnoses: Phoenix,Az

Advice needed please

Nearly two years since diagnosis

Rheumatologist

Alendronic Acid 70 mg tablets.

brain fog

Whats this?

New and love this site! Thank You All!

Can’t get below 1 mg!!!!

Medication timings?

Forum

Confused

Sometimes I wonder if it's my GCA or medication

Recently experiencing chest pain

Thyroid and PMR

Gratitude for All Of You

PMR and dry mouth?

What is PMR

Eye surgery

Blood test results compared to how I feel

Symptoms last an average time of what?

Cause of metallic taste?

Rather a vain question

Follow up appointment at GP

Successful taper and hormones.

Over - not over

Sadness plus

Diagnosed today

Eight weeks into PMR taking 15mg Pred

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