CRP: Hi Guys, I’m still at 7 Pred but arms still... - PMRGCAuk

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CRP

jules1955 profile image
12 Replies

Hi Guys, I’m still at 7 Pred but arms still ache at top and struggle to do bra strap.

Base of spine and bum/thigh pain has been bad for a few weeks. Just had blood test for CRP and it’s 11 ! Over my 4 years with PMR highest was 12 and lowest 5.5

Before test My Doctor says “ Is it PMR pain or could it be arthritis/age that was masked by the Pred ? I know the pain/ache in arms is PMR. Doctor was happy for me to go up to 7 Pred weeks ago, but after result thinking should I go up more ?

She is ok with results ?

Jules x

Photo is me and Hubby in Paris ( a million years ago ! 😘)

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jules1955
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12 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

The answer to should you go up - needs to be based on symptoms, or lack of them, not just blood results (particularly a one-off), which can lag behind symptoms, or maybe due to something else completely.

Have they gone now you are on 7mg? If yes, then no need to increase again - if no, then maybe consider an increase.

Suggest you get bloods tested again in 3-4 weeks and then re-assess the situation. By then you should have a clearer view of symptoms as well.

jules1955 profile image
jules1955 in reply to DorsetLady

Hi DorsetLady, thank you for replying. I’m still in pain and been on 7 for a few weeks now, so I think I will go up and hopefully it will help x

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to jules1955

Obviously not enough - are you 100% sure it’s all down to PMR though?

Sometimes it is a bit difficult to differentiate between PMR and arthritic pain - although we think we know what’s what!

jules1955 profile image
jules1955 in reply to DorsetLady

I’m sure arm pain is, hips back is similar to before but could be arthritis?

PMRpro profile image
PMRproAmbassador

Judging by the CRP you need more pred to control the inflammation - the CRP going up like that is a sign of inclreasing inflammation but it might not be the PMR so the question then is what symptoms have you got.

As I understand your post - you need more. And she shouldn't be OK with the results if you have symptoms. You need your CRP to be around 5 or 6 if that is the best you achieved on pred.

You MIGHT need a few days at a higher dose to clear things out as its obviously been hatching for a while.

jules1955 profile image
jules1955 in reply to PMRpro

Shall I go to 10 and see how I feel - then ask for another test in 4 weeks ?

If the pain goes/ is better and the next test is lower do I then presume it’s PMR ?

PMRpro profile image
PMRproAmbassador in reply to jules1955

Not sure I'd wait 4 weeks, 2 weeks would be better, To be honest, I doubt "arthritis" is a factor, at least. I'm assuming they mean osteoarthritis, Wouldn't usually cause muscle pain or that sort of increase in CRP.

SheffieldJane profile image
SheffieldJane

That pain sounds awfully familiar to me, as PMR pain. I would be urging my doctor to let me go up a bit more to obtain relief and swerve a full blown flare. Great picture! You are from my era. Weren’t we lovely?

Evercurious profile image
Evercurious in reply to SheffieldJane

We still are!

jules1955 profile image
jules1955

Thank you for reply xx and yes ! Weren’t we ! xx

SheffieldJane profile image
SheffieldJane

I bought lace bralettes from M&S with no back fastening when I had your bra strap symptoms. I can’t bear to give them up now.

jules1955 profile image
jules1955 in reply to SheffieldJane

Ewwwww I’ll have a look xx

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