Hunter134

[Hunter134]

Has anyone had trouble with thighs and calves swelling?Started on 15 mg prednisone in May and down to 10 but at night my muscles swell in legs.My reumy won t up me dose.It just worries and frustrates me.

[SnazzyD]

Hello. Do you mean that you lie horizontally at night and they still swell? Or do you mean they swell in the evening before you go to bed? Also, what makes you think the muscles are swelling as opposed to it being fluid in the rest of the leg?

[Hunter134 in reply to SnazzyD]

They seem fine in the morning aft sleeping but swell around dinner.I think its still Iinflammation cause it was a symptom i had at 15 mg when i flared.The thighs and calves burn.Its weird.

[SnazzyD in reply to Hunter134]

The pattern sounds like fluid pooling in the legs and the veins that drain the blood back up the leg to the heart aren’t coping. The normal legs in the morning getting worse in the day is classic as the fluid follows gravity. However, you say it got better with Pred increase so something else might be occurring to and as you are getting burning it is worth seeing a doc. Your veins can arteries can be checked too.

[Chrisellie in reply to Hunter134]

I also had a burning sensation ,mainly in thighs. This was when I wore anything vaguely tight, such as leggings. Also if I did any excersizing that was repetitive ,even climbing stairs. I had to change from leggings to loose pyjama bottoms in the evening. It took a long time to resolve but it did eventually. Didn’t stop the excersizing though.

[Hunter134 in reply to Chrisellie]

Thank you for replying.My legs dont like tights either and standing bothers me too.I still walk almost everyday but we know this disease is sometimes scary .The swelling usually comes if i do too much when i get a good day.Helps to know we are not alone.