Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,298 members • 38,027 posts

All posts for October 2019

Hi everyone

Started my 60 mg Prednisone yesterday started within hours feel so much better. I’m now waiting for My temple biopsy appointment but as this is working can’t...

Started my 60 mg Prednisone yesterday started within hours feel so much better. ...

HONEYwhite

•5 years ago

4 Replies

Sore skin

My Skin is sore to the touch on my chest. I am wondering if it could be my PMR that is causing the pain when I touch my skin.

My Skin is sore to the touch on my chest. I am wondering if it could be my PMR t...

Sadie1024

•5 years ago

15 Replies

Prednisone increase for infection

Hi I have a chest infection just now and GP has prescribed 30mg pred for 5 days then back to the 1mg I was tapering at. Is this usual in the case of...

Hi I have a chest infection just now and GP has prescribed 30mg pred for 5 days ...

Caradomben

•5 years ago

8 Replies

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Angry Confused. Camerashy

Diagnosed with GCA May 2017 Just waiting for my results of synacthen test In the meantime my appointment with the Rhuemy was due Just to until back track a...

Diagnosed with GCA May 2017 Just waiting for my results of synacthen test In the...

camerashy

•5 years ago

7 Replies

At last!

I finally got my pred 1mg g/r today. Hurray! Hope the supply continues after you know what. At the opticians today was told they hope to get my new spectacle...

I finally got my pred 1mg g/r today. Hurray! Hope the supply continues after yo...

maria40

•5 years ago

6 Replies

Annapurna IV expedition - Raising awareness of PMR

Updates on our Annapurna IV expedition will be more infrequent due to the remoteness of the peak and will depend on weather conditions, etc. For regular...

Updates on our Annapurna IV expedition will be more infrequent due to the remote...

Skinnyjonny

•5 years ago

13 Replies

Should be an interesting evening

Tomorrow night I am doing a SLEEP OUT for GlassDoor the homeless charity. It is in Duke of Yorks Square in Chelsea. Praying for a dry night and hopefully I...

Tomorrow night I am doing a SLEEP OUT for GlassDoor the homeless charity. It is...

whitefishbay

•5 years ago

13 Replies

How pain free should one be on Pred?

Am at the start of my PMR journey... thanks to everyone who has advised on other questions I’ve posed recently. What I would like to know is, when one starts...

Am at the start of my PMR journey... thanks to everyone who has advised on other...

Andypan

•5 years ago

14 Replies

Pain increase

Hi. Im on 13mg pred at the moment noting I have been on various levels for well over 2 years. The last few days I have seen increased painnin my shoulders and...

Hi. Im on 13mg pred at the moment noting I have been on various levels for well ...

SRIXON

•5 years ago

5 Replies

spray on type wound dressing.

Had a fall yesterday resulting in some spectacular bruising and cut and grazed knees. Since I have been on pred my lower body has become weak and it feels like...

Had a fall yesterday resulting in some spectacular bruising and cut and grazed k...

Teekay2

•5 years ago

9 Replies

dead slow tapering method

Can anyone tell me where i can find this please- i have looked around the site but cant seem to find. I have managed myself down from 20mg to 5mg over last 3...

Can anyone tell me where i can find this please- i have looked around the site b...

r-o-y-1

•5 years ago

4 Replies

Walking normally

Today I feel that I am walking like a normal person. I am so happy to feel I can navigate without bumping into walls and hanging on to furniture. At least...

Today I feel that I am walking like a normal person. I am so happy to feel I ca...

Gary1310

•5 years ago

59 Replies

Having “half a head” - unsettling feeling with GCA and sight loss

“Half a head” - feeling loss of the sensation of half the head - with GCA and sight loss - has anyone experienced this? My mother is currently experiencing...

“Half a head” - feeling loss of the sensation of half the head - with GCA and s...

TheSmartestGiant70

•5 years ago

12 Replies

Quick update - 3 years since diagnosis.

Quick(ish) update from me as it may help others. I’ve had PMR for over 3-years. Actually GCA was suspected too at diagnosis, but never confirmed. I remember...

Quick(ish) update from me as it may help others. I’ve had PMR for over 3-years. ...

TrevConway

•5 years ago

13 Replies

Why not an accurate test? IL-6

This is what I would like to address. Why are we always being tested for CRP and SED when they are not absolute indicators of PMR or GCA? It seems the test...

This is what I would like to address. Why are we always being tested for CRP an...

lemarie1

•5 years ago

41 Replies

Medication Review

Because of the range of medicants you are prescribed I feel you need the guidance of a Pharmacist to advise on interactions and adverse reactions. I hope that...

Because of the range of medicants you are prescribed I feel you need the guidan...

michaelegan

•5 years ago

4 Replies

The plot thickens......

This afternoon, a GP colleague suggested that I may not have fibromyalgia, but that the symptoms are a result of rapid reduction of steroids. Has anyone else...

This afternoon, a GP colleague suggested that I may not have fibromyalgia, but t...

Linda3009

•5 years ago

9 Replies

New rheumatologist

So after using the seemingly useless rheumy for 5 years I have changed to a new one. What a difference. Very efficient, scarily so, not a lot of bedside manner...

So after using the seemingly useless rheumy for 5 years I have changed to a new ...

Deemar

•5 years ago

8 Replies

GOOD NEWS FOR ONCE

I have had PMR for 4 years, diagnosed Jan 2016. Throughout I have been knackered, felt my life was on hold with the need to rest and pace. Had to more or less...

I have had PMR for 4 years, diagnosed Jan 2016. Throughout I have been knackered...

Mary63

•5 years ago

21 Replies

Too good to be true!

Just as I was feeling as though people were actually thinking my quality of life was an important issue, when requesting more 5mg Pred tablets from the surgery...

Just as I was feeling as though people were actually thinking my quality of life...

Dobermanlover

•5 years ago

21 Replies

Hi, this is my first post on here, hoping I’m over PMR but I can’t get up ...

I had my first rheumatologist appointment recently after 18 months of PMR, he told me that since my bloods have come in normal that I am PMR free, I still...

I had my first rheumatologist appointment recently after 18 months of PMR, he to...

greenvegan

•5 years ago

46 Replies

PIP Info: new DWP guidance about pain

The DWP has been given new advice about how to deal with PIP claimants who suffer chronic pain but aren’t on strong painkillers. The synopsis below is from the...

The DWP has been given new advice about how to deal with PIP claimants who suffe...

Hidden

•5 years ago

46 Replies

Just need to vent

As I've mentioned before I have been having trouble getting my first rheumatologist appointment as it keeps getting cancelled, well today was the the day, I...

As I've mentioned before I have been having trouble getting my first rheumatolog...

Poppylop

•5 years ago

33 Replies

I realize there is probably no answer..just your body dealing with PMR

Feeling the same ..pretty darn good on 15 mgs Pred..feeling the same as I did Sept 1st as I do Oct 1st CRP Sept 1st 4..perfect ...CRP Oct 1st 14 Bizarre no...

Feeling the same ..pretty darn good on 15 mgs Pred..feeling the same as I did Se...

Darcy2000

•5 years ago

2 Replies

Prednisone side effects

Hi everyone I’ve just been diagnosed with GCA I’ve yet to have my biopsy but I’ve got all the symptoms. The want to put me on a high dose of prednisone to...

Hi everyone I’ve just been diagnosed with GCA I’ve yet to have my biopsy but I’...

HONEYwhite

•5 years ago

13 Replies

weight gain and high inflam #'s

After 3 1/2 years ,PMR and GCA, I have finally been off prednisone for 5 months with a little pain and some morning stiffness ,but very manageable. My question...

After 3 1/2 years ,PMR and GCA, I have finally been off prednisone for 5 months ...

dougy8419

•5 years ago

9 Replies

I haven't posted for a long time but feel desperate.

I was diagnosed with GCA (Temporal Arteritis) in February 2017 and have been on a see-saw of medications ever since. I have a wonderfully supportive GP and see...

I was diagnosed with GCA (Temporal Arteritis) in February 2017 and have been on ...

MavisEllen

•5 years ago

16 Replies

Fantastic doctor

I have an ever dwindling list of doctors i am prepared to see at our practice. This is based on their inept treatment of various ailments including pmr!...

I have an ever dwindling list of doctors i am prepared to see at our practice. ...

Yellowbluebell

•5 years ago

59 Replies

Fed up

My PMR has been manageable the last few months I have reduced my steroids to 9 mgs But today I have been diagnosed with Parkinson’s disease . Which has...

My PMR has been manageable the last few months I have reduced my steroids to 9...

Emerlad_70

•5 years ago

28 Replies

New diagnosis

Hello again. I had a meeting with my Rheumatologist yesterday. It's now six weeks since I stopped taking prednisolone. My latest esr and crp were both normal,...

Hello again. I had a meeting with my Rheumatologist yesterday. It's now six week...

Linda3009

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2019

Hi everyone

Sore skin

Prednisone increase for infection

Angry Confused. Camerashy

At last!

Annapurna IV expedition - Raising awareness of PMR

Should be an interesting evening

How pain free should one be on Pred?

Pain increase

spray on type wound dressing.

dead slow tapering method

Walking normally

Having “half a head” - unsettling feeling with GCA and sight loss

Quick update - 3 years since diagnosis.

Why not an accurate test? IL-6

Medication Review

The plot thickens......

New rheumatologist

GOOD NEWS FOR ONCE

Too good to be true!

Hi, this is my first post on here, hoping I’m over PMR but I can’t get up ...

PIP Info: new DWP guidance about pain

Just need to vent

I realize there is probably no answer..just your body dealing with PMR

Prednisone side effects

weight gain and high inflam #'s

I haven't posted for a long time but feel desperate.

Fantastic doctor

Fed up

New diagnosis

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