Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for September 2019

About my M.R.I

Want to thank you all that replied to my message. Just to let everyone know that there was nothing new on the M.R.I. they do think I have some kind of...

Want to thank you all that replied to my message. Just to let everyone know tha...

vicky561

•5 years ago

2 Replies

Injury Triggering Major Flare Up

After 3 years now since PMR diagnosis, I tripped in my kitchen; the dishwasher door fell open and I tripped over it. I fell partially backwards , got up, and...

After 3 years now since PMR diagnosis, I tripped in my kitchen; the dishwasher d...

Christophene

•5 years ago

11 Replies

Follow up appointment

Hi all, I had my follow up appointment today to see how I was getting on with the steroids, the Dr was pleased pretty much all my muscle pain had gone, but...

Hi all, I had my follow up appointment today to see how I was getting on with th...

Poppylop

•5 years ago

10 Replies

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Raising awareness and support for PMRGCAuk ... climbing Annapurna IV (24600ft / 7525m) ... UPDATE

Thank you for all your very positive and supportive comments. I'm still in remission with PMR and due to attempt to climb Annapurna IV (7525m) between 5th...

Thank you for all your very positive and supportive comments. I'm still in remis...

Skinnyjonny

•5 years ago

22 Replies

All Members

So pleased to have joined the “group” thank you Maggie

gayerob

•5 years ago

9 Replies

Prednisolone/Omeprazole

Please advise Is it necessary to take Omeprazole whilst taking Prednisolone , I’m taking 15 milligrams daily. Many thanks, Maggie

Please advise Is it necessary to take Omeprazole whilst taking Prednisolone , I...

gayerob

•5 years ago

27 Replies

Tapering

My GP says reduce down to 15 mg After only 2weeks , is this a normal length of time,? after reading some posts about dubious , but how can you argue with them...

My GP says reduce down to 15 mg After only 2weeks , is this a normal length of t...

Lancashirelass07

•5 years ago

14 Replies

Light weight training and PMR

Hello Everyone, I’m on week 2 of Dorsetlady’s tapering plan and all is going well. In the past I have attempted to resume my light weights exercise and have...

Hello Everyone, I’m on week 2 of Dorsetlady’s tapering plan and all is going wel...

LemonZest11

•5 years ago

43 Replies

Hospital

I have to go in hospital for two weeks to 'coordinate' my illnesses! And also (my doctor's words) to learn how to be an old woman!!😂😂😂

I have to go in hospital for two weeks to 'coordinate' my illnesses! And also (...

Constance13

•5 years ago

80 Replies

Confused.

Hi friends since my very first post on here I've now developed severe muscle weakness in my calves , thigh muscles and inside my forearms along with some...

Hi friends since my very first post on here I've now developed severe muscle wea...

Beezneez

•5 years ago

12 Replies

Toenail Fungus Natural Remedy

I have suffered with this problem previously for years, tried all available over the counter chemist remedies with negative results and expensive exercise, did...

I have suffered with this problem previously for years, tried all available over...

oatleypark

•5 years ago

15 Replies

Natural Cold Assistance

Natural help with Colds, Came across a non medication relief which has worked for me and all those who have also tried this simple non medicinal approach....

Natural help with Colds, Came across a non medication relief which has worked fo...

oatleypark

•5 years ago

3 Replies

2nd day events

Well yesterday I felt so good into my second day of taking 15mg Pred. Did son sorting at home of clothes and baking in afternoon with rests. Grandson over for...

Well yesterday I felt so good into my second day of taking 15mg Pred. Did son so...

Libs66

•5 years ago

4 Replies

UGH

Hi everyone been away from here for awhile have had major depressed lately lost my oldest Brother on Aug 10th and my mother last year in Dec..so it was only...

Hi everyone been away from here for awhile have had major depressed lately lost ...

vicky561

•5 years ago

20 Replies

Rheumatologist Recommendation in Bridgend South Wales

Can anyone recommend a private rheumatologist who possibly specialises in GCA in the Bridgend area of South Wales. I am willing to travel 30miles or so? See my...

Can anyone recommend a private rheumatologist who possibly specialises in GCA in...

Snowy12

•5 years ago

20 Replies

THANKS TO ALL ABOUT SKIN

Thanks to all of you for responding to bleeding under skin. It's not good, but good to know I'm not alone. This seems to be part of the new normal.

Thanks to all of you for responding to bleeding under skin. It's not good, but g...

Christophene

•5 years ago

1 Reply

Woodbridge, Suffolk - Tea and Chat

It's time for the group to get together again! Come and join us for friendly chat, shared experiences and of course a cuppa! 2.00pm Thursday 12th September...

It's time for the group to get together again! Come and join us for friendly cha...

Soosie56

•5 years ago

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Help please, I have taken an extra dose of prednisolone

Presently I am on 4mg daily. Bad mix up I have taken another dose of 4mg, i.e. a total dose of 8mg. Should I keep taking an increased dose for a few days or...

Presently I am on 4mg daily. Bad mix up I have taken another dose of 4mg, i.e. a...

HamishPMR

•5 years ago

11 Replies

Tales from the Pharmacy...

Yesterday I went to my local pharmacy to collect my methotrexate and 1 mg prednisolone tablets. The pharmacist was able to give me 12 MTX tablets, half of the...

Yesterday I went to my local pharmacy to collect my methotrexate and 1 mg predni...

Marijo1951

•5 years ago

82 Replies

Autoimmune disorders

I heard an interview on the radio today of Matt Richtel who has written a book called An Elegant Defense:The Extraordinary New Science of the Immune System....

I heard an interview on the radio today of Matt Richtel who has written a book c...

Tiredcat

•5 years ago

28 Replies

Harlow Meet Up Group

Our next monthly meeting is on Monday 9th September 1230 to 1400. We meet at the Redeemer Lutheran church in Harlow. Full details on harlow@pmrgca.org.uk. We...

Our next monthly meeting is on Monday 9th September 1230 to 1400. We meet at the...

Roy46

•5 years ago

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Taper Speed

I am down at 3,75 mg now feeling fine concerning my PMR pain. I have some fatigue, pain in my hip which the GP believe is artheritis and mood swings. How fast...

I am down at 3,75 mg now feeling fine concerning my PMR pain. I have some fatigu...

Pirnilla

•5 years ago

7 Replies

Looking Good 2nd Day

Well following a normal blood reading Doctor advised to start Pred at 15mg and she will review in a week. First day I took tablets at 6am with a live yoghurt....

Well following a normal blood reading Doctor advised to start Pred at 15mg and s...

Libs66

•5 years ago

7 Replies

Bleeding Under Skin Without Injury

I know steroids make the skin fragile. But I seem (to myself anyway) to have an excessive amount of bruising, petechiae, etc. on my arms , often near a vein,...

I know steroids make the skin fragile. But I seem (to myself anyway) to have an...

Christophene

•5 years ago

41 Replies

Tocilizumab (Actemra) withdrawn - update

Hello all who responded to my last post about the above. I have now been told I can have three more months supply but they cannot tell me if they will continue...

Hello all who responded to my last post about the above. I have now been told I ...

christine2715

•5 years ago

11 Replies

Methotrexate

Have PMR and now have GCA. ON 75MG pred. DR wants me on methotrexate (6 every 7 days and folic acid 2.5 every day). Says to take all 6 methotrexate at once;...

Have PMR and now have GCA. ON 75MG pred. DR wants me on methotrexate (6 every ...

Patience47

•5 years ago

32 Replies

Typhoid vaccination

Hi All is it safe to have the typhoid vaccination whilst on Pred?am on 5mg and going to Costa Rica in November- thanks for your help

Hi All is it safe to have the typhoid vaccination whilst on Pred?am on 5mg and g...

bakingD

•5 years ago

3 Replies

Chest X-Ray

Hi there, Quick question, it is part of the GCA treatment protocol at my rheumatologist to do a chest x-ray every year to screen for aneurysm. Is this legit? I...

Hi there, Quick question, it is part of the GCA treatment protocol at my rheumat...

fmkkm

•5 years ago

15 Replies

Shelf life of Prednisone

Thinking of keeping a supply of Prednisone in my car, purse, suitcase....just in case of an emergency. Wonder if this is problematic because of “Shelf life”...

Thinking of keeping a supply of Prednisone in my car, purse, suitcase....just in...

Gary1310

•5 years ago

48 Replies

Synthacen test

Hi everyone, Just a quick question. When can you have a synthacen test and do you ask for one or are you recommended to have one? Am down to 3.5mg using the...

Hi everyone, Just a quick question. When can you have a synthacen test and do yo...

SilverCruiser

•5 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2019

About my M.R.I

Injury Triggering Major Flare Up

Follow up appointment

Raising awareness and support for PMRGCAuk ... climbing Annapurna IV (24600ft / 7525m) ... UPDATE

All Members

Prednisolone/Omeprazole

Tapering

Light weight training and PMR

Hospital

Confused.

Toenail Fungus Natural Remedy

Natural Cold Assistance

2nd day events

UGH

Rheumatologist Recommendation in Bridgend South Wales

THANKS TO ALL ABOUT SKIN

Woodbridge, Suffolk - Tea and Chat

Help please, I have taken an extra dose of prednisolone

Tales from the Pharmacy...

Autoimmune disorders

Harlow Meet Up Group

Taper Speed

Looking Good 2nd Day

Bleeding Under Skin Without Injury

Tocilizumab (Actemra) withdrawn - update

Methotrexate

Typhoid vaccination

Chest X-Ray

Shelf life of Prednisone

Synthacen test

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