Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,669 members • 38,857 posts

All posts for August 2019

Vertigo

Source: Medical news today.Com Treatment. Most of the time, vertigo resolves without treatment, as the brain can compensate for changes to the inner ear to...

Source: Medical news today.Com Treatment. Most of the time, vertigo resolves ...

YuliK

•5 years ago

4 Replies

Vertigo: where’s this come from?

Bit of a finger in the wind query. I’m currently trying ( with reasonable success) to control a PMR flare, so back up to 15mg pred over last 4 days. PMR...

Bit of a finger in the wind query. I’m currently trying ( with reasonable succe...

Hidden

•5 years ago

48 Replies

Time for taking dose

Hi - just wanted to get some input about the best time to take Pred. When I was first diagnosed - I took it in the morning after breakfast. Then read...

Hi - just wanted to get some input about the best time to take Pred. When I was ...

Slosh

•5 years ago

45 Replies

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Should I go up for a week?

HI everyone I have not often written to this support but now I need your advice. I have GCA & PMR for the past 21/2 years. My left eye (where the biopsy was...

HI everyone I have not often written to this support but now I need your advice....

Dypdi

•5 years ago

9 Replies

Book

Good morning. I want to buy Kate Gilbert’s book as everyone mentions it and seems to love it. My friend is ordering on amazon, but not sure as there’s more...

Good morning. I want to buy Kate Gilbert’s book as everyone mentions it and seem...

Chopin002

•5 years ago

9 Replies

tyelnol

i am thinking of trying Tylenol arthritis for my stiffness.i have been off prednisone for a month.has anyone any experience with this method.

i am thinking of trying Tylenol arthritis for my stiffness.i have been off pre...

piping9

•5 years ago

9 Replies

Methotrexate. To have or not to have? That is the question.

Hello Wise Ones I was diagnosed in May 2013 with PMR aged 67. I’m a-typical and scans ruled out anything else and I responded really well to 20mg of steroids....

Hello Wise Ones I was diagnosed in May 2013 with PMR aged 67. I’m a-typical and ...

susanspurs

•5 years ago

31 Replies

Bfp update

Hi still here and going home Friday to be housebound. A real worry. Seeking advice. How do I know which allowances I might be eligible for? I am 60 and have a...

Hi still here and going home Friday to be housebound. A real worry. Seeking adv...

Bfp1

•5 years ago

14 Replies

Tapering prednisone: monster niggles piling on. HELP!

Niggles is my new word, thanks to my new-found sisters on this forum. I'm suspecting you will give me a new word for the horrendous emotional upheaval I'm...

Niggles is my new word, thanks to my new-found sisters on this forum. I'm suspe...

Blurry62

•5 years ago

27 Replies

Finding a rheumatologist

Does anyone know of one near Bristol? My present one has given bad advice in the past and now tells me to taper down from 18 preds when my symptoms,though...

Does anyone know of one near Bristol? My present one has given bad advice in the...

spearce

•5 years ago

10 Replies

side effects PMR., plus broken hip with pain hip Knee pain.

HI, I an finally free from steroids for PMR. 3 weeks now,No withdrawal symptoms occasional palpitations in bed before i go to sleep. could be coincidence. I...

HI, I an finally free from steroids for PMR. 3 weeks now,No withdrawal symptoms...

Polymiagle1943

•5 years ago

13 Replies

Chronic UTIs

I am now getting UTIs every few weeks.Nitrofurantoin works but after a one week course it comes straight back.Often the lab results come back as mixed growth...

I am now getting UTIs every few weeks.Nitrofurantoin works but after a one week ...

Jodiebell

•5 years ago

18 Replies

Weak and painful muscles

I am becoming weaker and weaker and wonder if anyone has found anything that helps? I tried to stay active but am afraid over the last 12 months I have been in...

I am becoming weaker and weaker and wonder if anyone has found anything that hel...

Content1

•5 years ago

19 Replies

Walking

My walking is worse than ever. I can hardly navigate. I bump into walls, etc. I am reducing to 7 mg. Was diagnosed in January with 20mg. Recently under a...

My walking is worse than ever. I can hardly navigate. I bump into walls, etc. ...

Gary1310

•5 years ago

21 Replies

PMR

I took your advice about upping my steroids to 5or 10 mgs .Having had positive GCA in September 2016 been reducing steroids quite well down to 1mg last month...

I took your advice about upping my steroids to 5or 10 mgs .Having had positive G...

Gran6

•5 years ago

14 Replies

Summer Flare

I have had PMR & GCA for 638 days. In that time I have tapered from 80mg down to 9mg. Recently, because of of two back to back flares, I find myself back up...

I have had PMR & GCA for 638 days. In that time I have tapered from 80mg down t...

Hidden

•5 years ago

16 Replies

feeling a bit of tenderness in back

i do have 4 stress fractures since starting prednisone in Oct. 2018, but other than the initial pain in one leg from the sacral fractures, it hasn't been...

i do have 4 stress fractures since starting prednisone in Oct. 2018, but other t...

composition

•5 years ago

6 Replies

Bone density and alendronic acid

My dexa scan results aren’t good although I do not yet have oesteoperosis. I will be having blood tests to see if I am deficient in vitamin D. I don’t think I...

My dexa scan results aren’t good although I do not yet have oesteoperosis. I wil...

Rosina1871

•5 years ago

16 Replies

How long after reverting to higher dose does it take for symptoms to ease

As per title really. I'm 2.5 years into pmr. Like many people I get stuck at 5mg, even when using the dead slow method. My most obvious symptom below 5mg is...

As per title really. I'm 2.5 years into pmr. Like many people I get stuck at 5mg...

Jontie

•5 years ago

9 Replies

More update from bop

Hi BFP update I am leaving rehab today and able To manage with a walker in my flat with carers. I hope. I still cannot stand from low chairs or attempt stairs...

Hi BFP update I am leaving rehab today and able To manage with a walker in my f...

Bfp1

•5 years ago

8 Replies

Long GCA tx

Treated since April for gca, also have osteoporosis & gastro disorders. Anyway, I think I am finally turning a corner on the gca & prednisone effects. I was...

Treated since April for gca, also have osteoporosis & gastro disorders. Anyway, ...

Spanky2019

•5 years ago

10 Replies

GCA symptoms

Does anyone with GCA have feelings like chest congestion and find it is very hard to lay on your left side at night. It also huts on the right side but not as...

Does anyone with GCA have feelings like chest congestion and find it is very har...

ayoung

•5 years ago

15 Replies

Mycophenolate info please

I have a rheumatologist appointment on 4th September and I’m thinking that Mycophenolate will be discussed as alternative Dmard. I did try Methotrexate in...

I have a rheumatologist appointment on 4th September and I’m thinking that Mycop...

Cyclegirl54

•5 years ago

33 Replies

Speechless

I've just had a telephone consult with my rheum as I'm getting scalp tenderness, jaw pain and fatigue follow I g dose reduction to 40mg. He says that must mean...

I've just had a telephone consult with my rheum as I'm getting scalp tenderness,...

Linda3009

•5 years ago

21 Replies

Probiotics

I am not sure if probiotic yoghurt drinks are to be recommended. Any thoughts please. Thanks

I am not sure if probiotic yoghurt drinks are to be recommended. Any thoughts pl...

Koalajane

•5 years ago

32 Replies

Can anyone wake me up??

Is it old age, pred or pred withdrawal? I'm tired all the time. I sleep 9 or 10 hours at night (except for loo visits), have a nap in the day, etc. I go out...

Is it old age, pred or pred withdrawal? I'm tired all the time. I sleep 9 or 1...

Constance13

•5 years ago

75 Replies

Itching rash with PMR?

Itching rash before PMR? One month before my PMR pain started I got these itching rashes down the back of my thies. They descended as soon as I started Pred...

Itching rash before PMR? One month before my PMR pain started I got these itchin...

Pirnilla

•5 years ago

10 Replies

Reducing tocilizumab injections

I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks...

I was told to try to take my tocilizumab injections every 4 weeks but struggled ...

christine2715

•5 years ago

10 Replies

Should I Be Off Steroids?

In August, 2017 I was diagnosed with PMR and began receiving 80mg Depo Medrol injections on a weekly basis. This dose, (which averaged 11.8mg daily), totally...

In August, 2017 I was diagnosed with PMR and began receiving 80mg Depo Medrol in...

Admiral06

•5 years ago

2 Replies

Any advice welcome

I seem to get down to 2 mg of prednisolone daily without any problems, but when I reduce I start to feel pain on the days I take 1 mg and I’m doing a very slow...

I seem to get down to 2 mg of prednisolone daily without any problems, but when ...

Bobbikins

•5 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2019

Vertigo

Vertigo: where’s this come from?

Time for taking dose

Should I go up for a week?

Book

tyelnol

Methotrexate. To have or not to have? That is the question.

Bfp update

Tapering prednisone: monster niggles piling on. HELP!

Finding a rheumatologist

side effects PMR., plus broken hip with pain hip Knee pain.

Chronic UTIs

Weak and painful muscles

Walking

PMR

Summer Flare

feeling a bit of tenderness in back

Bone density and alendronic acid

How long after reverting to higher dose does it take for symptoms to ease

More update from bop

Long GCA tx

GCA symptoms

Mycophenolate info please

Speechless

Probiotics

Can anyone wake me up??

Itching rash with PMR?

Reducing tocilizumab injections

Should I Be Off Steroids?

Any advice welcome

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