Do any of you get a guilty feeling when you are on long term pain killers? Practically everywhere you read "do not take for more than 10 days". How does that fit in with aggressive arthritis over many years?
I have no guilt or sense of it being a problem for chronic pain. It helps you do the stretches etc that keeps one mobile and flexible. My 84yr old friend takes 4 paracetamol a day to keep going. If she stops she is stuck in the house due to a knee with OA.
I do take tramadol daily. The minimum dose I can live on is 200mg a day...not had one of those for a while. Yesterday 600mg. Day before 800mg. You have to keep it in your system to help pain. The Dr always makes me feel guilty but before I took it and if I detox for a week my pain goes from 5 to 6 up to 9 or 10. The Dr says well if you are still at 5 or 6 why keep taking it...doh. It's a big difference to 9 or 10.
Sorry I will stop my rant. It's more based on anger than guilt. 😂😂😂
If you friend can afford it, get her to try Flexiseq, unfortunately it is not available on prescription. Left knee OA for years and right knee is bone on bone, not able to have KR.
Cheapest I have found is my nightmare place Amazon - I wish they would play fair and pay their taxes.
Flexiseq is bio-mechanical and I am pain free 90% of the time since ARC introduced it. You can read all about it on the ARC Research site.
I only wish it was available on prescription - even if only for people with OA in their knees. Many who have tried it have found it works on the joints in their fingers as well. I am one of those whose fingers benefited.
As an aside my GP - said at your age, who cares if you are addicted.............would be a whole different ball game if you were under 70.
I have tried her to introduce her to it. I tried it for a while but can't afford it now. She doesn't like the idea of the bio side. She was a nurse working latterly on DLA panels until forced to retired at 74. I think she uses rhu tox when her daughter come with homeopathic kit.
I use Flexiseq and can confirm it is very good. Not cheap - but a little goes a very long way. I use it on my sore knees, really good.
Jinasc recommended this to me some years ago, but unfortunately it didn't do a lot for me. Perhaps seronegative arthritis is a bit different. Mine is also 'poly' so I'm not sure where I would start with the cream!😀
No I don't feel guilty at all.
I wonder if those who are writing the articles are those who have experienced chronic pain.
Maybe if they put some some cash into Pain Management Clinics and more referrals were done the problem with constant pain might be improved for those suffering it but who cannot get an appointment for love or money with their Pain Clinic.
Exactly. I think I was "lucky" that I got fibro and pain around 20 years ago in terms of pain clinic. I was referred for back pain once, and got more physio etc through them, the second time for fibro. I had meds prescribed by the right person, an anesthesiologist, physio, psychologist for about 3months and was taught about pacing, CBT etc. I think the dark holes I go down would be much deeper and longer without those referrals.
I feel that you and I had a long conversation this am. As both the grocery delivery and the gardeners have arrived together - tea is called for. 😉
I have been on tramadol for years after wrecking my shoulders on a dive and no i dont feel guilty at all. I have has 9 operations on my shoulders and had right one replaced and I still have pain so I am not the least but concerned about taking pain killers. If i need them then that's all there is about it. My only word of warning is not to take too many paracetamol.
I take 2 Cocodamol in the night and 2 during the day. I DO need them but feel I should try and do without them.
I never feel 'guilty' at taking Pred, daft , isn't it? But seronegative poly arthritis doesn't go away, what else could I do?
Is it the otc 500/10mg cocodamol? Not that it makes any difference if it was 500/30 prescribed - just nosey. I don't think that's unacceptable. As you say you need it to manage pain, just like pred does for PMR. Have you been getting any external pressure about it?
500/30! No pressure, just me trying to "do my best".
I am glad you put do my best in inverted commas. For me my best is to be as active and healthy as I can be and do thing like stretches, exercise etc. But it's also about managing pain, with all its soul destroying uncontrolled manner, by pain killer as required.
A few years ago (pre-pmr) when I was 50ish I was having a bad day with pain/fibro I did an online free longevity quiz as a distraction strategy. It told me I had 30years life expectancy. I burst into tears and shouted I can't live another 30yrs like this...don't make me! The dog looked at me weirdly but I am used to that. I don't want a life of intolerable pain for 30yrs. Tolerable pain is bad, but liveable if you can get out and about and have a good quality of life.
Been there , done that , cried buckets into my t-shirt !!
Reading someone else doing it , although it is so sad , did make me giggle.
" Gallows Humour" again , it's just good to see I'm not the only one who does daft stuff like that.
That's not a huge amount and if you need them you need them. Simple as that.
I have had sero negative inflammatory arthritis for more than 25 years now and have settled into a stable state that involves me taking Leflunomide, meloxicam (anti inflammatory) daily and a weekly etanercept injection. In addition I take 2 cocodamol (30/500) every night. I cannot cut down on thise pills and even reducing to 1 plus 1 paracetamol makes me unable to move next morning. I have just had to accept that this is what my body needs to function. One good thing though, since taking pred for PMR, (down to 7.5mg, yippee), I do not have flare ups of arthritis. 😊
Dump that guilt Constance! If you need it you need it.
If it makes your life more bearable why should you feel guilty. If you didn't need them, you wouldn't take them! No one takes legitimate medication just for the fun of it.
If you didn't relieve your pain, you would be depressed, probably immobile and a burden on others!
Take what you need, but make sure you are monitored for side effects.
Yes. Not so much now though. If im very stiff and sore in the mornings - which is most mornings - my legs are usually the problem - i take some but dont use the hard hitting ones that would probably have a better effect. I get real bad side effects. My legs have been a problem for years. Though my smart ass rheumy told me to "take solpadine" when she was prematurely taking me off the pred! If we need it we need it.
I have no guilty conscience about taking anything I need to have a decent quality of life. Because without that - you might as well be dead...
True! I just wondered whether people took pain killers willy nilly.
I have popped a few more in just recently and felt a bit guilty - daft I suppose.
This cold May weather has got to me!
There is so much talk in the media about opiates that people who need them get caught up in the societal finger pointing. As I said my dosage alters with the weather, stress, overdoing things etc. I am sure you are just experiencing different levels of pain. I think everyone has a level they can stand,then no more. Paracetamol based painkillers are the ones I am most careful of. Don't let "them"* get to you.
* drs, papers, people without pain etc.
I use narco,(vicodin) for spinal stenosis pain, and have for years. Recently my medical provider management company has initiated a drug -use -monitoring- protocol that makes me feel like a criminal for using a prescribed narcotic. I must now provide a monitored urine test every time I get a narco script from my g.p.
This is what happened In front of the other patients in the lab, and the other staff. The tech collecting the urine screen dumped a colored solution into the toilet, instructed me to pee in the cup, and return to the common area, peecup in hand, without washing my hands or flushing the toilet. He then dumps the urine into a temperature indicator cup which tells him that the u.a. Is body temp, or not.
In my pre retirement life, I supervised drug offender felons in this exact way.
What I want to know ,... is how...A 72 year old woman got moved to the drug abuser category, for purposes of slowing down the opiate abuse problem in this country.‼️‼️‼️‼️
And...I now get a phone call from a 12 -year -old -important- person, whose job it is to tell me I can no longer have a glass of wine, if I want to receive narco script in the future!!!
🤬🤬🤬🤬🤬🤬🤬😱😱 can u tell I'm ticked!
Oh dear! I'm sorry but your post made me smile! I know it's inappropriate, but all that just to get the pills we need. Are we now all to become criminals?
On a serious note - I phone my chemist, she gets a prescription from my doctor and delivers all
my pills to my door. The doctor has NEVER questioned this. He knows what I need. It's ME that wonders "do I really need all these"?
Omg. I can imagine the humiliation. It's a terrible state of affairs. There will be more pain sufferers walking the street to buy heroin, ketamine or fentanyl etc in future.
Since my last visit to my gp, I feel i have definitely been shifted from patient with chronic pain to a druggie with drug seeking behaviour. All because I asked for cocodamol to manage breakthrough pain. Up to last year they were on my repeat prescription but they took them off. I wasn't concerned really as I take tramadol daily and if I wanted it reduced strength cocodamol was available OTC. But I took them for a few days when I was having a fibro flare and didn't helped. Hence Dr appt. Until they went to OTC status there was never an issue at the drs.
It's disgusting. 😱
I am so sorry to hear that your provider is putting you through these horrors. At first I thought you might be writing from Russia, but I see you're in Washington state. I certainly hope this is not the new wave of healthcare in our country. Have you spoken to other people going through this ? It's time to rise up and raise cane! Surely there's a more dignified way to protect the public from themselves. This is no way to treat an older person who is obviously suffering and needs relief.
I am in the UK but have communicated with a few US citizens impacted by new laws regarding opioids. Here's Harvard's overview.
I suspect the point is to make it such a hassle for docs to prescribe opiates, that they simply refuse to do it. Dont know where that leaves us....i know when I had a dental extraction , I was unwilling to accept a pain script from the dentist because I had signed a drug agreement prohibiting me from receiving narcotics from anyone but my primary doc.
The prescriber must also check a database to be sure the patient isnt receiving script from anyone else.
Yikes, common drug abusers we have become!
I await the next development. They tried restricted prescriptions a couple of years ago. You had to see the dr everytime. That lasted 2 months. Not enough appts. That tells it own story I suppose.
😕😕😕That is absolutely horrible pureplecrow! I would be madder than a wet hen if that happened to me. Grrrrr!!
You have pretty much described how I feel. I am planning to write a letter of complaint alleging violation of privacy within the lab arrangement. Seems that the rules being dictated by higher ups have left the tech staff without proper facilities to conduct their business. Result, the Patient/perp/me having to carry a cup of pee with bare unwashed hands through the common area where other patients were being treated. Ain't proper sez I, so lets fire off a letter of complaint to the medical CEO and see if they can provide their minions with proper facilities in which to carry out their duties.
Nuff said... cheerio💃🏼
I haven't been guilty for my recommended pill popping for years.
In health there is always one rule for standard use for normal conditions for the generally fit human being and another rule for Chronic illnesses and the long term sick ( is that rule called " The eventually just nuke it !!!! everyday, with everything you've got , until we get it right Philosophy" ).
Although , some days I wish that it had not become normality to not feel functional unless I took enough drugs to make me into a human maraca .
Or the long past days when even getting down a tiny contraceptive size pill felt like a struggle to swallow.
Then I remember , it's better to sound like a Marching band when you get up and walk than not be able to walk at all.
Right off to take my night time quota , hugs , Bee xx
Bee! Thanks for the humor and the truth!! 💜🙏🏽
hips (I'm 58) I've been taking at least 4 paracetamol and 4 ibuprofen every day, which is enabling me to...
is it OK to keep taking Ibuprofen tablets for six months? What pain-killers did you guys use before diagnosis...
but the Sciatica like pains have accelerated and developed into something more severe, Dr has put me...
Partner with us
Start a Community