Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,235 posts

All posts for May 2019

Chiropractor and a flare?

Hello everyone I have just been very interested to read today’s posts about Bowen therapy and other ‘alternative’ practitioners. I have had shoulder and back...

Hello everyone I have just been very interested to read today’s posts about Bo...

Zhenya

•6 years ago

8 Replies

HighBp

Hi I have several issues. Type 2, PRM since feb 2017 and in recent months my BP is rising, this morning 175/103. My doctor has been changing my meds, I see him...

Hi I have several issues. Type 2, PRM since feb 2017 and in recent months my BP ...

SRIXON

•6 years ago

40 Replies

Splitting Pred dose

Am continuing on my Pred journey with a second month at 15mg which is working fine until the early hours. Some of you have suggested I split the dose 10/5....

Am continuing on my Pred journey with a second month at 15mg which is working fi...

jaycee444

•6 years ago

12 Replies

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New to Healthunlocked but been fighting Polymyalgia since September 2018

I was on holiday in France and awoke one morning with what I can only describe as "Rigour Mortis" but still breathing. Neck shoulders arms hips and knees were...

I was on holiday in France and awoke one morning with what I can only describe a...

Blomps

•6 years ago

8 Replies

Chest infection

Hello, I have been off steroids for about 3 years now after being diagnosed with gca, i now have a bad chest infection which seems to have started the gca off...

Hello, I have been off steroids for about 3 years now after being diagnosed with...

Howard523

•6 years ago

7 Replies

Lymphoedema and PMR?

Hi I've developed lymphoedema in my left arm and wondered if this is part of PMR or due to a car accident I was in?, my gp doesn't know .any one experience...

Hi I've developed lymphoedema in my left arm and wondered if this is part of PMR...

freyacake

•6 years ago

4 Replies

New PMR patient with general concerns

Just joined the group after been diagnosed with PMR. I've been very healthy and active. Six years ago, I had a knee injury. For some reason, at the time I...

Just joined the group after been diagnosed with PMR. I've been very healthy and ...

Hidden

•6 years ago

13 Replies

Any recommendations for good Rheumatologist in the Bristol area?

I paid to see a Rheumatologist recently.I was not impressed with him at all. He referred me for US scans of my shoulders ( I have already had 2 in the last 3...

I paid to see a Rheumatologist recently.I was not impressed with him at all. He ...

Breconblue

•6 years ago

2 Replies

Is My GP Being Overzealous?

Hi everyone I am currently on 3.5mg a day and doing fine with reducing, but had to go to Doctors on Friday abou t severely swollen ankles. It was a new GP who...

Hi everyone I am currently on 3.5mg a day and doing fine with reducing, but had ...

Attic

•6 years ago

15 Replies

Link to a recipe tip for a PMR Friendly Diet Snack for when the Pred Hunger bites , tried and tested and suprisingly tasty!

Hope you are all enjoying a good Bank Holiday weekend folks. We talk alot about the " Pred Hunger" , for most an almost inevitable side effect of being on...

Hope you are all enjoying a good Bank Holiday weekend folks. We talk alot about ...

Blearyeyed

•6 years ago

26 Replies

Steroid myopathy (muscle/ tendon weakness)

Has anyone experienced steroid myopathy? How do you know if any weakness/ aches is this caused by pred or the need for more pred due to extra stress/ hitting a...

Has anyone experienced steroid myopathy? How do you know if any weakness/ aches ...

mrsQuics

•6 years ago

21 Replies

Think I’m having a flare

I have been dealing with my doctor thinks pmr at least my second doctor thinks it might be that. I got diagnosed in 2017 so dealing with my second year of pain...

I have been dealing with my doctor thinks pmr at least my second doctor thinks i...

Julesster84

•6 years ago

20 Replies

Thin skin

Has anyone else got thinning skin due to steroids I have blood blisters on lower leg and dog has just jumped up and ripped one open blood everywhere bit...

Has anyone else got thinning skin due to steroids I have blood blisters on lowe...

castingcollectives

•6 years ago

19 Replies

Recently diagnosed PMR and unsure about preds

Hi, I'm recently diagnosed with PMR about a month ago. Fairly classic signs...woke up shoulders aching and upper thighs. Felt like I'd walked a hundred miles...

Hi, I'm recently diagnosed with PMR about a month ago. Fairly classic signs...wo...

Daisyfield

•6 years ago

77 Replies

Temporal Arteritis

Hi I’ve been put on 40mg of prednisolone and an urgent referral to hospital had blood test with raised inflammatory factors and a headache from hell and for...

Hi I’ve been put on 40mg of prednisolone and an urgent referral to hospital ha...

Misty12345

•6 years ago

13 Replies

Too much pred?

I'm wondering if any one out there can tell me what happens if you are taking a higher dose of pred than your body needs. I have had GCA for almost four years...

I'm wondering if any one out there can tell me what happens if you are taking a ...

Cobnut

•6 years ago

15 Replies

Breakthrough symptoms

Hi I'm new to here I was diagnosed PMR in march and prescribed 15mg prednisolone I occasionally have slight pain in some joints and a feeling that a headache...

Hi I'm new to here I was diagnosed PMR in march and prescribed 15mg prednisolone...

irisweeder

•6 years ago

23 Replies

Avascular necrosis

I have PMR AND G CA diagnosed three years ago I am presently on 9 mg and trying to reduce.. I now have a crack under the head of femur and avascular necrosis...

I have PMR AND G CA diagnosed three years ago I am presently on 9 mg and trying ...

lyndamcw

•6 years ago

12 Replies

Eye sight screening

Hi folks As I did not feel my eyes were quite right, I went back to the GP and asked for the dose to be put up. She arranged an emergency appointment with the...

Hi folks As I did not feel my eyes were quite right, I went back to the GP and a...

keepfitdoll

•6 years ago

22 Replies

Wrong prednisone dose in the dark

I am panicked. I was down to 4 mg of prednisone (4 pills @ 1 mg) and in a rush for work believe I took 4 @ 5 mg at least one day, maybe 3 days. I have been...

I am panicked. I was down to 4 mg of prednisone (4 pills @ 1 mg) and in a rush f...

LovetomovehatePMR

•6 years ago

12 Replies

Feeling a bit "down"

Hi All I was diagnosed pmr in late December 2018 and am feeling physically ok. I can now manage a gentle exercise/aerobic class at the leisure centre 3 times a...

Hi All I was diagnosed pmr in late December 2018 and am feeling physically ok. I...

Candydog

•6 years ago

30 Replies

Feeling very tired

Also feeling very weak n tired, on 60 mgs,steroids making me moon face n dont know what to eat to stop weight gain,feel like I'm very light headed all the...

Also feeling very weak n tired, on 60 mgs,steroids making me moon face n dont kn...

geordiegirl1947

•6 years ago

17 Replies

Other Autoimmune illnesses?

Hello, new here. Does anyone have other autoimmune markers in addition to being diagnosed with PMR? I suspect I have PMR due to stiffness and difficulty...

Hello, new here. Does anyone have other autoimmune markers in addition to being ...

VeeWat

•6 years ago

24 Replies

Omeprazole chest pain

I have been taking omeprazole for about 6 months. Recently I started having minor chest pain. Uncomfortable but not bad. Wakes me up at night and have it...

I have been taking omeprazole for about 6 months. Recently I started having mino...

GaryWW

•6 years ago

17 Replies

What came 1st, chicken or egg.

Was thinking to myself after the latest blood results. What if the Diabetes Type 2 being treated is helping my inflammatory situation. We started the...

Was thinking to myself after the latest blood results. What if the Diabetes Typ...

IdasMum

•6 years ago

12 Replies

Sunbeds

I lived in Norway for three years a few decades ago. Most of my work was based way up in the Arctic circle and there was no daylight for ages. So I took to...

I lived in Norway for three years a few decades ago. Most of my work was based w...

Hidden

•6 years ago

69 Replies

Down Another Path

After my initial meltdown and panic about pmr and steroids, I went to hospital yesterday to see the specialist. I had been panicking as to why I was seeing a...

After my initial meltdown and panic about pmr and steroids, I went to hospital y...

tazman3

•6 years ago

10 Replies

Osteoporosis and Exercise

As a relative newbie to this forum still awaiting definitive diagnosis of GCA I would firstly like to thank Kate Gilbert for her wonderful book. Apart from...

As a relative newbie to this forum still awaiting definitive diagnosis of GCA I ...

Pippah45

•6 years ago

39 Replies

Pleasing blood results.

I am over the moon with my latest CRP reading (CPR in UK?) 10.9 down from 15 something last month. Back in Feb when I had my last rheumy appt, she told me...

I am over the moon with my latest CRP reading (CPR in UK?) 10.9 down from 15 som...

IdasMum

•6 years ago

13 Replies

My next taper - advice please

Hello, I don’t post often but read posts everyday. Diagnosed PMR end Dec 2018, started on 15mg for a month, then 12.5mg for a month then 10mg for 5 weeks,...

Hello, I don’t post often but read posts everyday. Diagnosed PMR end Dec 2018, ...

Iloveholidays

•6 years ago

37 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Chiropractor and a flare?

HighBp

Splitting Pred dose

New to Healthunlocked but been fighting Polymyalgia since September 2018

Chest infection

Lymphoedema and PMR?

New PMR patient with general concerns

Any recommendations for good Rheumatologist in the Bristol area?

Is My GP Being Overzealous?

Link to a recipe tip for a PMR Friendly Diet Snack for when the Pred Hunger bites , tried and tested and suprisingly tasty!

Steroid myopathy (muscle/ tendon weakness)

Think I’m having a flare

Thin skin

Recently diagnosed PMR and unsure about preds

Temporal Arteritis

Too much pred?

Breakthrough symptoms

Avascular necrosis

Eye sight screening

Wrong prednisone dose in the dark

Feeling a bit "down"

Feeling very tired

Other Autoimmune illnesses?

Omeprazole chest pain

What came 1st, chicken or egg.

Sunbeds

Down Another Path

Osteoporosis and Exercise

Pleasing blood results.

My next taper - advice please

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