A Good Way to Taper!?

[Charlie1boy]

This was an accidental taper for, but perhaps the easiest and best of all.

Last week I was on 3.5mg - 2.5 in the morning and 1 at bedtime. For a number of reasons I completely forgot the bedtime 1 mg. When I have previously forgotten a dose, which has happened on occasions, the PMR has let me know very definitely that I have not taken all the pred I should have done. This time I didn't realise till the following morning when I was due to take the next 2.5mg. BUT, I felt absolutely no pain or discomfort at all. I could hardly believe it.

Subsequently, I have reduced to 3mg daily, and it has been very straightforward. I'm now feeling better than for months, but not counting my chickens yet, as experience tells me this could be the waxing/waning of PMR. Fingers crossed

Paddy

[DorsetLady PMRGCAuk volunteer]

Let’s hope it’s definitely waning!

[Charlie1boy in reply to DorsetLady]

Couldn't agree more. Thank you for your encouragement, seems it's been a long haul!

Paddy

[PMRpro Ambassador]

Excellent - and it does sound promising! With a bit of luck and a following wind your adrenals may be happily coming out to play too!

[caroli123 in reply to PMRpro]

That's great. I'm pleased for you.

How long had you had PMR?

[PMRpro Ambassador in reply to caroli123]

I assume you meant to reply to Charlie1boy not me?

[caroli123 in reply to PMRpro]

You assume right.

[PMRpro Ambassador in reply to caroli123]

[Charlie1boy in reply to caroli123]

Coming up to 4.5 years. Started at 30mg; got down to 15 mg in three months, but the rest of the time has been a long slow taper, but fortunately without any major flare.

Paddy

[Charlie1boy in reply to PMRpro]

Thank you for your interest and reply. Yes, it does feel different this time, but I know there's many a slip twixt cup and lip.

I remain optimistic however.

Paddy

[Yellowbluebell]

Sound hopeful. Good luckxx

[Soraya_PMR]

That’s sounds promising Charlie. I’m impressed that you dropped to 3 and didn’t chance the 2.5, very wise. Fingers crossed for you 🤞

[Charlie1boy in reply to Soraya_PMR]

Yes. Think I'd have been tempting fate if I'd done that.

Thanks for your reply.

Paddy

[Jackoh]

Glad you’re feeling well. Missed you at meeting on Friday. Best wishes Jackie x

[Charlie1boy in reply to Jackoh]

Yes, it was a meeting I didn't want to miss, but we were away in Norfolk for a weekend break.

Best wishes

Paddy