Keep moving folks. : So in hospital for pulmonary... - PMRGCAuk

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Keep moving folks.

Nap1 profile image
Nap1
50 Replies

So in hospital for pulmonary embolism and vein embolism. Steroid myopathy horrible. Can sit or stand. I’m done.

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Nap1 profile image
Nap1
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50 Replies
PMRpro profile image
PMRproAmbassador

Not nice - get well soon. Any suggestions from the medics as to why you have PEs?

Nap1 profile image
Nap1 in reply toPMRpro

No. I guess all the sitting around with the steroid myopathy hasn’t helped with circulation. This is going to be rough and as I said I am so tired my heart rate is so high Blood pressure is Uncontrollable because of the embolism and I’m on medicine for all of this. That includes my steroids for adrenals. I am going home with oxygen. Always enjoy talking with you. I hoped one day to visit but I see that will not happen. Now I would be thrilled to just take care of myself my significant other and maybe feed my garden without my heart rate going up to 130. Let’s see what tomorrow brings.

in reply toNap1

Sending positive thoughts that tomorrow is better. 🤞🌻

Thelmarina profile image
Thelmarina in reply toNap1

So sorry - sometimes these mountains feel like the Grand Canyon! Hoping very much that you’re feeling a bit better - heart rate calmed, blood pressure under control, garden fed and OH ok. Sending good thoughts ..🤞

Soraya_PMR profile image
Soraya_PMR

Vein embolus or thrombosis?

Hang in there Nap1. This too shall pass.

Nap1 profile image
Nap1 in reply toSoraya_PMR

I don’t know. I didn’t have any pain with this.

Marilyn1959 profile image
Marilyn1959

Oh my goodness Nap1. Thank goodness you are in hospital, so that it can be sorted. Thinking of you and sending virtual hugs. Hope you feel more comfortable soon. Xx

Oh no. That sounds horrid. Feel better soon. 🌻🌻🌻

Pongo13 profile image
Pongo13

Don’t give up! We’re all routing for you. It will get better. Poor you. Lots of hugs x

Dovelady profile image
Dovelady

I can only repeat what the others have said, don’t give up, you’ve lots of virtual support here. I hope things feel better and look clearer soon.

Dontwannabesick profile image
Dontwannabesick

Please don't give in. Better times will come. We're with you all the way x

HeronNS profile image
HeronNS

💐🍀

MhairiP profile image
MhairiP

Oh dear - sorry to hear that. Wishing you a speedy recovery. ❤️

Nap1 profile image
Nap1

Thank you all. I’m home with oxygen and Eliquis. New blood thinner. Cannot begin to tell you how this lady appreciates your good wishes. This morning it was all over and now there is 💡. Life is getting another shot.

powerwalk profile image
powerwalk in reply toNap1

Best wishes. Really hope you feel much better soon.

Carrollee profile image
Carrollee in reply toNap1

❤️❤️🤗

HeronNS profile image
HeronNS in reply toNap1

🤗

yogabonnie profile image
yogabonnie in reply toNap1

So happy to hear you say..life is getting another shot!!! hurrah ! My husband is on eliquis and doing VERY WELL... so don't add that to your worries. Slowly but surely. And I will move today with your wise advice in mind!

Oumaof2 profile image
Oumaof2 in reply toNap1

That's good news Nap1... You sound much more positive, which is what you need.... Also being at home will lift you... Let us know how you are doing....

Rae452 profile image
Rae452 in reply toNap1

I,too,am on ELIQUIS because of DVTs and PEs and will be on it for Life. If it keeps me from clotting...yay! Hang in there, some days will be better than others, listen to your body. Wishing you a healthy recovery!

1964-karina profile image
1964-karina

Hoping you feel better soon 💐

Daffodilia profile image
Daffodilia

Don’t give up - keep fighting

Iloveholidays profile image
Iloveholidays

Hope today is a better day. Get well soon.

Jeannie29 profile image
Jeannie29

I so so wish you well,sending positive thoughts, you can beat this xx

SusanJF profile image
SusanJF

Warm get well wishes 😘💐🌞💐

Mozziebuzz profile image
Mozziebuzz

🤝💐💐💐💐🌈 tomorrow is another day and I hope a much better one for you. Warm Get Well Wishes from Australia. Mozz

Scobbie profile image
Scobbie

💜 x

Greetings Nap

I’m sorry to hear what’s been going on for you but pleased your home & Treatment can continue there.

Wishing You All The Best 🌷

Get Well Soon 🌷🌷🌷

MrsN 🌷

GerriMc profile image
GerriMc

So sorry, wishing for better days for you when you can get back to your garden! X

Pam47 profile image
Pam47

All good wishes. I do hope you feel better soon.

Evercurious profile image
Evercurious

Sending virtual hugs, hope things get better each day.🤞🌷🤞

Soraya_PMR profile image
Soraya_PMR

Discharged home, that’s got to feel better. Take it easy now, one step at a time!

katiemills profile image
katiemills

I hope you feel better soon. Thinking of you .

DianeA1 profile image
DianeA1

Wishing you a full and speedy recovery!!

bunnymom profile image
bunnymom

Hope you are in the garden soon 🌼💐

Lanakay profile image
Lanakay

Good thoughts and prayers for you. 🙏🏻💕

LCHRISTOP10 profile image
LCHRISTOP10

Sorry to hear of your recent complication. Did you restart your Actemra after you recovered from the ear infection? Hope tomorrow is better.

Nap1 profile image
Nap1

Yes absolutely. I love my Actemra. I will continue it through this insanity too. It keeps blood markers down.

Jackoh profile image
Jackoh

So sorry to hear about the problems. So pleased you are home. All routing for you here. Let us know how you’re getting on ❤️

Marilyn1959 profile image
Marilyn1959

Pleased you are home and feeling more positivr. Are you being monitored?

Nap1 profile image
Nap1

Sort of.

👍:-)

Nitrobunny profile image
Nitrobunny

Hang in there and take care 💕

Telian profile image
Telian

Not nice Nap, hope things start to settle down very soon. 💐

Lonsdalelass profile image
Lonsdalelass

Hi Nap1, pleased you're home. Wishing you all good wishes. Hang on in there!

Marilyn1959 profile image
Marilyn1959

Hi. How are you doing a few days on?

Nap1 profile image
Nap1 in reply toMarilyn1959

Better. Waiting for Pt. Also starting occupational therapy. More energy. Not a lot but more. Thank you.

Marilyn1959 profile image
Marilyn1959 in reply toNap1

Onwards and upwards. :)

Marilyn1959 profile image
Marilyn1959

What is PT?

PMRpro profile image
PMRproAmbassador in reply toMarilyn1959

US for physiotherapy - physical therapy

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