Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2019

Very small light at the end of the tunnel?

Report in our local paper this morning that researchers at the University of York have found a tiny molecule in DNA that puts a “handbrake” on our immune...

Report in our local paper this morning that researchers at the University of Yor...

CT-5012

•5 years ago

2 Replies

Not PMR, sorry, but would appreciate your answers!

Can anyone here recommend a brand/source of compression tights which do the job and, as added bonuses...... 1) Don't require the agility of an olympic...

Can anyone here recommend a brand/source of compression tights which do the job...

sennetta

•5 years ago

6 Replies

Marshmallow Root and Pred

Some years ago, I had a very irritating cough. It was a tickle right in the corner of my throat and caused strong bouts of coughing, often for no apparent...

Some years ago, I had a very irritating cough. It was a tickle right in the cor...

Omanain

•5 years ago

13 Replies

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Red wine and Pred

Hi, I’m on 15mg of Pred. Diagnosed beginning of Jan 19. Any opinions on 🍷 having a couple of glasses of red wine in the evening? Do other people on the forum...

Hi, I’m on 15mg of Pred. Diagnosed beginning of Jan 19. Any opinions on 🍷 havin...

Rosina1871

•5 years ago

37 Replies

Raised CRP ESR

Raised CRP and ESR. Blood test last week showed raised ESR 35 CRP 69 I have no pain other than a niggling headache which comes and goes. Doctor sent me for a...

Raised CRP and ESR. Blood test last week showed raised ESR 35 CRP 69 I have no p...

Alison300356

•5 years ago

7 Replies

Sleep? Not sleep? Watchnight?????

https://www.theguardian.com/books/2019/mar/09/the-big-sleep-business-are-we-being-sold-an-impossible-dream Another interesting article which includes the fact...

https://www.theguardian.com/books/2019/mar/09/the-big-sleep-business-are-we-bein...

PMRpro

Ambassador•5 years ago

18 Replies

Lower your BP with blueberries?

“Eating the equivalent of 100 grams of blueberries for 4 weeks, twice a day is associated with systolic blood pressure lowering that is equivalent to the...

“Eating the equivalent of 100 grams of blueberries for 4 weeks, twice a day is a...

Soraya_PMR

•5 years ago

15 Replies

Pmr and a sweet tooth

I have had a problem since pmr diagnosis with my sweet tooth and love of carbs. After gaining a stone in 5 months I had to take myself in hand and start a...

I have had a problem since pmr diagnosis with my sweet tooth and love of carbs. ...

Yellowbluebell

•5 years ago

47 Replies

I DON'T BELIEVE IT?

GCA diagnosed January last year. Struggling on only 5mg Pred per day. Joint pain fatigue etc. Rheumatologist still advising me to reduce dosage further....

GCA diagnosed January last year. Struggling on only 5mg Pred per day. Joint pain...

Seagu11

•5 years ago

18 Replies

Can’t get my head round this...

When we reduce pred to say 7.5mg, we’re at a physiological dose, and hopefully our adrenals kick back in. We continue to reduce pred and assuming our adrenals...

When we reduce pred to say 7.5mg, we’re at a physiological dose, and hopefully o...

Soraya_PMR

•5 years ago

103 Replies

The Shakes - PMR or side effect of Pred?

Hi! So last night I couldn't sleep because I had a bad case of the shakes and I'm still shaking this morning. It's like I'm shivering from being cold except...

Hi! So last night I couldn't sleep because I had a bad case of the shakes and I'...

BoaterAnnie

•5 years ago

58 Replies

GCA

Hello, I have GCA and for two years have been on Prednisalone. Is there anyone who had had this condition and who has recovered from it?

Hello, I have GCA and for two years have been on Prednisalone. Is there anyone w...

sandrathecat

•5 years ago

79 Replies

Tapering anti-depressants too fast cause problems

News flash.....major study finds doctors are not listening to patients about drug withdrawal symptoms and too fast tapering, sound familiar?...

News flash.....major study finds doctors are not listening to patients about dru...

Mstiles

•5 years ago

8 Replies

Alendronic Acid 70mg tablets my experience.

I am new here, I just want to warn other people about taking Alendronic Acid 70mg tablets. I had my 2nd dexa scan about 2 weeks ago the one i had two and a...

I am new here, I just want to warn other people about taking Alendronic Acid 70...

buddygirl234

•5 years ago

39 Replies

Morning stiffness

Hi everyone. I am on 2.5 mil predsone going into 2 years. The pain now between the shoulders (only had lower half before) only when I sleep in the before...

Hi everyone. I am on 2.5 mil predsone going into 2 years. The pain now between...

Mjhollywood1

•5 years ago

14 Replies

Flare Up after 12 months (and I was doing so well)

Firstly, can I thank everyone for the great wisdom and advice gained through experience, shown by the writers on this site. I would just like to get a...

Firstly, can I thank everyone for the great wisdom and advice gained through exp...

Inertia

•5 years ago

6 Replies

BBC Radio 4 - Fluoroquinalones

The musculoskeletal side effects from this class of antibiotics has just been discussed on You And Yours on Radio 4. If you want to listen again online, it...

The musculoskeletal side effects from this class of antibiotics has just been di...

SnazzyD

•5 years ago

14 Replies

Lower Pred dose - Increase Fatigue?

OH now down to 12.5 (was 40 end June last year when diagnosed PMR/GCA). Increase in fatigue has been over past few weeks and today he says aches & pains are...

OH now down to 12.5 (was 40 end June last year when diagnosed PMR/GCA). Increase...

Nuff1

•5 years ago

12 Replies

Is anyone on the SCD diet or the GAPS diet?

Diets?

Aleish

•5 years ago

9 Replies

Flare or done too much

Hi Been on Pred since January this year. Started on 20mg for three weeks then down to 15mg for the last five. I’m doing ok. Very little pain and trying to...

Hi Been on Pred since January this year. Started on 20mg for three weeks then do...

Rosina1871

•5 years ago

8 Replies

New High Blood Pressure-very high

It seems that there is no end to the trouble that keeps popping up for me since I got PMR 2 1/2 to 3 years ago. Now after 2 years of fairly low dose prednisone...

It seems that there is no end to the trouble that keeps popping up for me since ...

Ciar

•5 years ago

38 Replies

The Answer to why we get GCA/PMR ? Is it all in the Stars! A Thought to Ponder if you think "Why Me !" Over this weekend.

This is a thought provoking post for all forum sufferers who wonder , "Why Me!!" , and desparately try to find an answer for their PMR/GCA nightmare after all...

This is a thought provoking post for all forum sufferers who wonder , "Why Me!!"...

Blearyeyed

•5 years ago

106 Replies

PMR and night time headaches

Hello again. Diagnosed with PMR in August 2018, still waiting to see the rheumatologist!! However, cutting steroids still proving difficult with flare ups when...

Hello again. Diagnosed with PMR in August 2018, still waiting to see the rheumat...

Ezio100

•5 years ago

11 Replies

Methotrexate update

Further to stopping MTX last week due to chest pains. I’m just waiting on the chest x Ray results but went to see doc yesterday who thought I may have...

Further to stopping MTX last week due to chest pains. I’m just waiting on the ch...

Cyclegirl54

•5 years ago

5 Replies

Costochondritis

Can this be linked to pmr.?? I’ve had mild pain intermittently for a couple of years but the last couple of days my breastbone is really sore and radiates...

Can this be linked to pmr.?? I’ve had mild pain intermittently for a couple of y...

Suet3942

•5 years ago

46 Replies

Headache pills have caffeine.

I use excedrin for tension headache daily and at least 4 of them. They are loaded with caffeine but the ones without caffeine really don’t work. Is the...

I use excedrin for tension headache daily and at least 4 of them. They are load...

Aleish

•5 years ago

20 Replies

Where to now?

Just had my morning coffee with all of you, such a good community to spend time with. I started 15 mg pred. in September 2018 for PMR. Upped to 20 mg the next...

Just had my morning coffee with all of you, such a good community to spend time ...

Evercurious

•5 years ago

25 Replies

Gca

I have just started getting pain in my right jaw, l am not having any headaches, have problems with blurred eyes sometimes, l was diagnosed with Polymyalgia in...

I have just started getting pain in my right jaw, l am not having any headaches,...

Fifelassieo

•5 years ago

18 Replies

Ups and downs

Sorry if this post appears twice don't think first one went. I was asking if it is too much to expect to feel 100% all of the time whilst taking pred....

Sorry if this post appears twice don't think first one went. I was asking if it ...

Healthworrier

•5 years ago

12 Replies

Keffir Gains / coconut milk

I’m in the states. I would like to find a supplier for Keffir grains. Want to Know if anyone has done the fermentation with coconut milk!

I’m in the states. I would like to find a supplier for Keffir grains. Want to ...

Aleish

•5 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

Very small light at the end of the tunnel?

Not PMR, sorry, but would appreciate your answers!

Marshmallow Root and Pred

Red wine and Pred

Raised CRP ESR

Sleep? Not sleep? Watchnight?????

Lower your BP with blueberries?

Pmr and a sweet tooth

I DON'T BELIEVE IT?

Can’t get my head round this...

The Shakes - PMR or side effect of Pred?

GCA

Tapering anti-depressants too fast cause problems

Alendronic Acid 70mg tablets my experience.

Morning stiffness

Flare Up after 12 months (and I was doing so well)

BBC Radio 4 - Fluoroquinalones

Lower Pred dose - Increase Fatigue?

Is anyone on the SCD diet or the GAPS diet?

Flare or done too much

New High Blood Pressure-very high

The Answer to why we get GCA/PMR ? Is it all in the Stars! A Thought to Ponder if you think "Why Me !" Over this weekend.

PMR and night time headaches

Methotrexate update

Costochondritis

Headache pills have caffeine.

Where to now?

Gca

Ups and downs

Keffir Gains / coconut milk

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