OH now down to 12.5 (was 40 end June last year when diagnosed PMR/GCA).
Increase in fatigue has been over past few weeks and today he says aches & pains are general and thinks they are "probably" his OA pre PMR aches.
Seemingly low mood with fatigue - is this common on the lower pred dosages, think I've read this somewhere?
I think it can be. In my case, often not as deeply entrenched as depression can be. It is possible to be cheered up by a little change in routine. I was pathetically,giddy with excitement visiting a large Sainsbury’s ( unfamiliar to me). That’s all it took to lift me out of the doldrums. 😃
He's going to the optician's today - first time!
Might possibly be uplifting???
I hope so Nuff1. I only like the choosing new glasses bit. Not the bill paying part.
Oh thats funny. Know exactly what you mean. A new shop!! Eyes darting around!!
Ikea does it for me!!
That would be almost too joyful!
Possibly a sign to slow the reduction rate down - smaller steps at least.
I certainly gets periods of fatigue which can be depressive if it lasts more than a few days, since I feel just totally wiped out. I have learnt to just go with the flow and accept I can't do anything about it but rest and sleep until it passes. There seems to be no rhyme nor reason for trigger of fatigue either. I started on 15mgs and am now at 7mgs and have had bouts of fatigue for the duration every couple of months.
I am worried about my family seeing the deterioration because of the fatigue, when I visit Australia. Pred just used to fix things. I feel like I am suddenly old.
Can totally empathise Jane. My mum was 92 when she died ywo years ago. Suffered with comorbidiities for many years, but lived independently in sheltered accomodation. I admired her when she was alive for her tenacity and determination, but admired her even more so now for how she coped and how positive she remained. I remember at her funeral when, pre diagnosis I was struggling to stand / walk, I said to my sister that I had become our mother overnight (reference to rapid degeneration of movement) pre diagnosis). So yes I too have aged considerably and have yet to have my 60th birthday this year.
In reference to your worries re your trip to see your family, I seem to remember that you may have given me advice previously to be honest with my boys and not hide from nor push them away when I am struggling? I took your advice, maybe you need to as well. The serenity prayer comes to mind...... God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference. Xx
That was kind Marilyn, thanks. My mother in law went to classical music concerts in London during the blitz. She just got on with things, a great generation.
“Morning stiffness” and Fatigue with a capital F
Fatigue while tapering
Pred Dose
Pred dose increase gradual or fast?
