Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,644 members • 38,797 posts

All posts for March 2019

Posting pictures, problem?

Maybe it’s pred head again, can’t seem to find the icon for adding pictures. Posting in an iPhone, maybe the screen is too small to show it?

Maybe it’s pred head again, can’t seem to find the icon for adding pictures. Po...

Mstiles

•5 years ago

6 Replies

Allergic-type reactions to some foods/meds/smells/ heat - it's actually common with AI illnesses

Update April 2023, Immunology consultant finally now confirmed what I have is probably mast cell related. it has taken me 6 years of doing my research and...

Update April 2023, Immunology consultant finally now confirmed what I have is pr...

tangocharlie

•5 years ago

78 Replies

Tapering Pred - Blood Glucose Levels

OH takes his Pred early morning and is now 12.50 working to 10 however his blood sugar levels pre breakfast andthroughout morning/early afternoon are showing...

OH takes his Pred early morning and is now 12.50 working to 10 however his blood...

Nuff1

•5 years ago

8 Replies

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PMR

Just wondering if anyone could give me some advice on a problem I have. probably due to 3yrs on steroids for PMR. I am reducing slowly and currently on 6 1/2...

Just wondering if anyone could give me some advice on a problem I have. probably...

Katie-j

•5 years ago

11 Replies

Body hair

Just read the posts on hair loss and wonder if others have lost body hair. My underarm hair has been non existent for over a year. Saves me doing anything...

Just read the posts on hair loss and wonder if others have lost body hair. My u...

Marlenec

•5 years ago

21 Replies

with tears in my eyes

hi my friends, Kate Gilbert asked to just press a button to leave, I will, but only after having expressed my gratitude to all, forming a friendly forum and...

hi my friends, Kate Gilbert asked to just press a button to leave, I will, but o...

Zofitmogelijk

•5 years ago

20 Replies

Update - endocrinologist app re - my post "rheumatology apps."

Now under new Rheumatologist and have appointment on Saturday to see endo as my synacthen test showed poor response last March. Please can anyone tell me what...

Now under new Rheumatologist and have appointment on Saturday to see endo as my ...

Marlenec

•5 years ago

17 Replies

Worried...new symptoms of pins and needles, muscle deterioration, fatigue, continuing hip problems

2 years plus in to PMR. 56 years old. I'd appreciate some help and advice please. Feeling worried and depressed. I've posted recently about a flare, affecting...

2 years plus in to PMR. 56 years old. I'd appreciate some help and advice please...

Lyndab62

•5 years ago

32 Replies

I woke up with a black eye this morning

I have chronic sinus problems that I suspect are Pred related. I woke up with a bruised eyelid this morning, I think that it is something to do with my sinuses...

I have chronic sinus problems that I suspect are Pred related. I woke up with a ...

SheffieldJane

•5 years ago

31 Replies

THANK you PREDNISONE.

haha!

yogabonnie

•5 years ago

42 Replies

ESR up but feeling ok! Increase pred or not ?

Started 15mg pred in Oct 2017, down to 5-1/2 mg without too many problems, thank goodness. Had blood tests last week and ESR was 20mm I dont feel bad other...

Started 15mg pred in Oct 2017, down to 5-1/2 mg without too many problems, thank...

Jo1947

•5 years ago

10 Replies

TONGUE

Thank you for the replies. Bit less painful today and have been rinsing with salt water. Will try for GP or Dentist appt tomorrow. Fortunately, PMRPRO I had...

Thank you for the replies. Bit less painful today and have been rinsing with sal...

joat

•5 years ago

3 Replies

Pred and Clotrimazole topical cream

Hi everyone, I'm tapering down at moment doing 6mgs one day then 5mgs another and so on. Its seems to be working for me. Last few days thought I had vaginal...

Hi everyone, I'm tapering down at moment doing 6mgs one day then 5mgs another an...

Dappa

•5 years ago

8 Replies

Good blood work; still in pain

My first post here, although I was diagnosed in Oct, 2017. Apparently my blood work is 'good' (sed rates, etc.) and so my doctor (second doc) tells me to keep...

My first post here, although I was diagnosed in Oct, 2017. Apparently my blood w...

jackswife

•5 years ago

14 Replies

NAC supplement

I'm very worried about the side effects of preds so I came across the supplement called NAC which stands for N-acetyl cysteine. It's supposed to be a powerful...

I'm very worried about the side effects of preds so I came across the supplement...

pollymarierose

•5 years ago

18 Replies

CRP readings

Does anyone know what is considered a normal reading for the CRP blood test. My ESR has gone up to 25 and my CRP is 6.

Does anyone know what is considered a normal reading for the CRP blood test. My ...

sandrathecat

•5 years ago

10 Replies

Neck pain

Has anyone experienced rear neck pain and stiffness?

Pinkpepper

•5 years ago

29 Replies

Message to chat /Julian

Please enlighten me!! I've tried and failed!! 😡😡

York54

•5 years ago

32 Replies

Hand and Wrist involvement?

My initial PMR affected just hips and shoulders, but now that I’m off prednisone (after 11 month course: 15mg,10,9,8,7....1), aches and stiffness are...

My initial PMR affected just hips and shoulders, but now that I’m off prednisone...

OutdoorsyGal

•5 years ago

7 Replies

Prednisone and necrotic hip

My mom had PMR in her 80’s and couldn’t get off prednisone. Eventually she developed a necrotic hip and had to have a hip replacement at 85. I don’t know...

My mom had PMR in her 80’s and couldn’t get off prednisone. Eventually she deve...

OutdoorsyGal

•5 years ago

11 Replies

Physical therapy for PMR?

Has anyone had any success with using physical therapy to help with stiffness and limited range of motion? I’m not sure if my stiffness is the PMR returning,...

Has anyone had any success with using physical therapy to help with stiffness an...

OutdoorsyGal

•5 years ago

17 Replies

Relapsing PMR

I’m interested in others’ experiences with relapse following treatment for PMR. I finished my11-month course of prednisone Dec 31, and was fine for awhile...

I’m interested in others’ experiences with relapse following treatment for PMR. ...

OutdoorsyGal

•5 years ago

16 Replies

Thinking of you DorsetLady, Sue, Freyja

Just answering “what’s on your mind”? I discovered it was you. Willing you well, sending love and care, beautiful lady!! X 🌺🌼🌸🌻🦋🍀💕

Just answering “what’s on your mind”? I discovered it was you. Willing you well,...

SheffieldJane

•5 years ago

1 Reply

Pmr and Spanx dont mix!!

During my journey with pmr I have experienced some sad and odd moments but putting on weight and not fitting into the dress for youngest daughters wedding in 7...

During my journey with pmr I have experienced some sad and odd moments but putti...

Yellowbluebell

•5 years ago

103 Replies

The Silly Side: More Tasty Morsels from the Small Ads. Well, it helps to pass the time when under the influence of the DF... ;-)

Greetings All Just when you thought (er, hoped?) I'd gone quiet here, I have in fact been quite busy behind the scenes. Well, yep: the dreaded DF does has its...

Greetings All Just when you thought (er, hoped?) I'd gone quiet here, I have in ...

markbenjamin57

•5 years ago

9 Replies

Prednisolone and weight gain PR

Just wondered when the weight gain starts and ends while taking Pred? My sed rate was high in December and I was put on 40 gms of Prednisolone, tapered down to...

Just wondered when the weight gain starts and ends while taking Pred? My sed rat...

Birdboxinthegarden

•5 years ago

18 Replies

TV portrayal of Polymyalgia in Waiting for God sitcom

I recently bought a box set of the whole series of 'Waiting for God'. Apparently Diana Trent supposedly has Polymyalgia. In one of the first few episodes she...

I recently bought a box set of the whole series of 'Waiting for God'. Apparently...

Louisepenygraig

•5 years ago

13 Replies

Knee replacement

My orthopedic surgeon says my left knee is bone on bone and needs replacement. I had right knee replaced in 2008 - pre PMR - and it did well, of course I was...

My orthopedic surgeon says my left knee is bone on bone and needs replacement. ...

barbthy

•5 years ago

12 Replies

What medicines to be cautious of....

I am seeing my rheumatologist in 5 days, for the first time since my diagnosis for PMR and possibly GCA. I know prednisone will most likely become a part of my...

I am seeing my rheumatologist in 5 days, for the first time since my diagnosis f...

pollymarierose

•5 years ago

6 Replies

Palpitations.

Thanks to everyone who has replied to my post. I don't feel quite so isolated now! Can anyone tell me if they have experienced palpitations whilst on pred?

Thanks to everyone who has replied to my post. I don't feel quite so isolated no...

sandrathecat

•5 years ago

70 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

Posting pictures, problem?

Allergic-type reactions to some foods/meds/smells/ heat - it's actually common with AI illnesses

Tapering Pred - Blood Glucose Levels

PMR

Body hair

with tears in my eyes

Update - endocrinologist app re - my post "rheumatology apps."

Worried...new symptoms of pins and needles, muscle deterioration, fatigue, continuing hip problems

I woke up with a black eye this morning

THANK you PREDNISONE.

ESR up but feeling ok! Increase pred or not ?

TONGUE

Pred and Clotrimazole topical cream

Good blood work; still in pain

NAC supplement

CRP readings

Neck pain

Message to chat /Julian

Hand and Wrist involvement?

Prednisone and necrotic hip

Physical therapy for PMR?

Relapsing PMR

Thinking of you DorsetLady, Sue, Freyja

Pmr and Spanx dont mix!!

The Silly Side: More Tasty Morsels from the Small Ads. Well, it helps to pass the time when under the influence of the DF... ;-)

Prednisolone and weight gain PR

TV portrayal of Polymyalgia in Waiting for God sitcom

Knee replacement

What medicines to be cautious of....

Palpitations.

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