Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,337 members • 38,102 posts

All posts for January 2019

THE TAPERING QUEST

Diagnosed with PMR in May, 15mg then up to 20mg pred which worked and made life comfortable. Fairly easy ride to 13.5mg BUT been trying to reduce by half mg...

Diagnosed with PMR in May, 15mg then up to 20mg pred which worked and made life ...

Pmrmolly2018

•5 years ago

3 Replies

Itchy skin in the night.

There could be many culprits but every now and then I get attacks of very itchy skin at night, all over. I wake up scratching. It is a Pred side effect, I am...

There could be many culprits but every now and then I get attacks of very itchy ...

SheffieldJane

•5 years ago

51 Replies

Could GPs request tests to rule out other conditions that are contributing to what could be PMR before starting on prednisone?

I was diagnosed 2 years ago by a GP. Said to have PMR. No testing for what it might be otherwise. Mainly a complaint in my lower back and legs, pelvic...

I was diagnosed 2 years ago by a GP. Said to have PMR. No testing for what it ...

Sunny465

•5 years ago

6 Replies

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What defines a flare?

When I tried recently to decrease to 12.5mg. When I moved to 2 consecutive days, I felt the saddle area of my pelvis "waking up". No pain and it only occurs at...

When I tried recently to decrease to 12.5mg. When I moved to 2 consecutive days,...

Ruidoso74

•5 years ago

16 Replies

I Keep Forgetting...

... that OH on Pred is likely to be more irritable than usual. (Usual = somewhat irritable)

... that OH on Pred is likely to be more irritable than usual. (Usual = somewha...

Nuff1

•5 years ago

16 Replies

Lochness03

Just been put on 15 mg of Prednisone for a week to see if any symptoms change GP not sure if I have pmr or fibro so taking a chance. Been a few days and not...

Just been put on 15 mg of Prednisone for a week to see if any symptoms change GP...

Lochness03

•5 years ago

19 Replies

Tapering

Is there a link between tapering and having a flushed face every morning? I'm now down to 4 mg pred from 60mg June 2017,when I was diagnosed with GCA. Over...

Is there a link between tapering and having a flushed face every morning? I'm n...

Robert09

•5 years ago

11 Replies

Thanks and a hopeful goodbye

I haven't posted much, but I have read and benefited from many of your comments and experiences. I got PMR in Oct. 2017, diagnosed and started Pred in Feb...

I haven't posted much, but I have read and benefited from many of your comments ...

reschen

•5 years ago

35 Replies

A TA/GCA pet peeve

Just wondering if anyone with GCA has experienced having their temp taken in the hospital or Doc office with one of those thermometers that they run across...

Just wondering if anyone with GCA has experienced having their temp taken in the...

Boozsa

•5 years ago

36 Replies

I've found a Functional Medicine practitioner!

I've done pretty well on my own with the diet and lifestyle changes but for a while now I've been looking for an expert Functional Medicine doctor/practitioner...

I've done pretty well on my own with the diet and lifestyle changes but for a wh...

xdbx

•5 years ago

23 Replies

Further Update on Severe Hip Pain!

First: Best wishes everyone for 2019. Regarding my post of a couple of months ago, I received the results of my MRI scan in the post on Friday. It said –...

First: Best wishes everyone for 2019. Regarding my post of a couple of months ag...

Omanain

•5 years ago

8 Replies

still going

Im in my third or fourth year of polymylgia without taking anything for it. Tried methotrexate with disastrous results.Oddly my pain and stiffness seem better...

Im in my third or fourth year of polymylgia without taking anything for it. Trie...

animalactivist

•5 years ago

13 Replies

Shingles through December

Happy New year to every one. Well my remission that l was so thrilled about has collapsed. Look what happened to me at beginning of December. Right soded...

Happy New year to every one. Well my remission that l was so thrilled about has...

cmj33g

•5 years ago

6 Replies

Gabapentin ..advice please

Another New year ,New beginnings and New Challenges, Feeling Very scared. Re PMR/Fibromyalgia ..and other issues.Good Morning and a Happy New Year to You All....

Another New year ,New beginnings and New Challenges, Feeling Very scared. Re PM...

trish29

•5 years ago

11 Replies

High lymphocytes

Has anyone experienced a high lymphocyte count whilst suffering pmr? I had bloods done to check inflammation levels ( which had reduced 👍) however white blood...

Has anyone experienced a high lymphocyte count whilst suffering pmr? I had blood...

JanieBaxter

•5 years ago

9 Replies

It worked!

I am 2.5 years in, starting at 20mg & decreasing slowly per rheumy advice over the years until I was at 5mg. I had tried a few times to go from 5mg to 4mg, but...

I am 2.5 years in, starting at 20mg & decreasing slowly per rheumy advice over t...

mo3go7

•5 years ago

17 Replies

To Sheffield Jane When you say your disease is on the way out can you give some descriptions?

Sheffield Jane wrote in another thread that she felt her disease was on the way out. I thought some descriptions might be helpful to the rest of us who are...

Sheffield Jane wrote in another thread that she felt her disease was on the way ...

bunnymom

•5 years ago

30 Replies

I've Been Shanghaied By Weight Loss NHS !!

Where did this come from? Suddenly I'm signed up to Weight Loss NHS on my posts! Hey! I have got some sensitivities you know! One complaint at a time thank...

Where did this come from? Suddenly I'm signed up to Weight Loss NHS on my posts...

Hidden

•5 years ago

16 Replies

Thank you

Hi, In a weird place emotionally, but genuinely "feeling" all the love and caring you have been pouring out... thank you, thank you, thank you! Feeling better...

Hi, In a weird place emotionally, but genuinely "feeling" all the love and carin...

Hidden

•5 years ago

29 Replies

Recurrent styes

I’ve posted early about having styes once starting prednisone. I acquired my first stye a week into prednisone for PMR. It’s now been 10 mos and I’m on my 5 th...

I’ve posted early about having styes once starting prednisone. I acquired my fir...

Leilagirl

•5 years ago

14 Replies

Tingles in the fingers, Pred??

I feel it in my fingers, I feel it in my toes, pred is all around me and so the feeling grows. Sounds like a Trogg’s song but I have pins and needles in my...

I feel it in my fingers, I feel it in my toes, pred is all around me and so the ...

JohnnyQ50

•5 years ago

44 Replies

Who knows?

Who knows and how can you tell, without goi g to an endocrinologist, if your adrenals are working again..I know it can take up to a year after your at a low...

Who knows and how can you tell, without goi g to an endocrinologist, if your adr...

daworm

•5 years ago

16 Replies

Help understanding what it all means

I have just found out, despite being on Prednisone, that both my markers have raised to a level higher than they have ever been even when I was first...

I have just found out, despite being on Prednisone, that both my markers have ra...

Hidden

•5 years ago

18 Replies

Interesting article about Vitamin K2

We've had some discussion recently about the importance of taking Vitamin K2 alongside calcium and Vitamin D. I found this article on Nutrition Advance very...

We've had some discussion recently about the importance of taking Vitamin K2 alo...

Marijo1951

•5 years ago

18 Replies

How long should I wait?

Hi all So, after reading your advice I’m now on 20 mg prednisolone (with calcium, D2 and K). Started on New Years night. It’s now morning of 4/1, and still...

Hi all So, after reading your advice I’m now on 20 mg prednisolone (with calcium...

Liskeard

•5 years ago

5 Replies

Fatigue

I have recently been diagnosed with pmr, been put on 20mg a day of prednisilone, l also have fibromyalgia, my question is can steroids help with my...

I have recently been diagnosed with pmr, been put on 20mg a day of prednisilon...

Fifelassieo

•5 years ago

6 Replies

To blearyeyed.. a bit of humour or support to calm your fevered brow

Perhaps you could say this to your Surgery before the attack. I am sending you best wishes to recover very soon.

Perhaps you could say this to your Surgery before the attack. I am sending you b...

coda123

•5 years ago

1 Reply

PMR at 52 years

I am 52..diagnosed 18 months ago with PMR. My Rhuematologist thinks I prob had Fibro for years. I had a near fatal car crash in 1987 with multiple very serious...

I am 52..diagnosed 18 months ago with PMR. My Rhuematologist thinks I prob had F...

Pearl66

•5 years ago

19 Replies

The Lighter Side: Domestic Incident at MB Mansions. Is it Me - or the Effects of PMR and the Preds? ;-)

Greetings again All My apologies for this Unusual Tale of Woe, but I would appreciate your help and advice. Early last night, my beloved Soul Mate and...

Greetings again All My apologies for this Unusual Tale of Woe, but I would appre...

markbenjamin57

•5 years ago

44 Replies

Just diagnosed and so worried and confused

My aunt has just been diagnosed with GCA due to completely loosing her sight suddenly a few days ago. We are so worried as no one seems to be able to confirm...

My aunt has just been diagnosed with GCA due to completely loosing her sight su...

BigJ

•5 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2019

THE TAPERING QUEST

Itchy skin in the night.

Could GPs request tests to rule out other conditions that are contributing to what could be PMR before starting on prednisone?

What defines a flare?

I Keep Forgetting...

Lochness03

Tapering

Thanks and a hopeful goodbye

A TA/GCA pet peeve

I've found a Functional Medicine practitioner!

Further Update on Severe Hip Pain!

still going

Shingles through December

Gabapentin ..advice please

High lymphocytes

It worked!

To Sheffield Jane When you say your disease is on the way out can you give some descriptions?

I've Been Shanghaied By Weight Loss NHS !!

Thank you

Recurrent styes

Tingles in the fingers, Pred??

Who knows?

Help understanding what it all means

Interesting article about Vitamin K2

How long should I wait?

Fatigue

To blearyeyed.. a bit of humour or support to calm your fevered brow

PMR at 52 years

The Lighter Side: Domestic Incident at MB Mansions. Is it Me - or the Effects of PMR and the Preds? ;-)

Just diagnosed and so worried and confused

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