Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,429 members • 38,316 posts

All posts for January 2019

Diabetes -warning

Hi I'm 71 year old man - diagnosed with PMR last spring and now tapered down to 11/12mgs pred from starting dose of 30mgs. One of the side effects of pred...

Hi I'm 71 year old man - diagnosed with PMR last spring and now tapered down to ...

paulus65

•5 years ago

12 Replies

Spider vein injections and PMR/pred

Just wondering if anyone has had this done while on pred? My concern is that skin is thinner and bruises more easily...and I’d hate to end up with more of a...

Just wondering if anyone has had this done while on pred? My concern is that sk...

PMRCanada

•5 years ago

8 Replies

Pred Head ?

Or is it the co codamol ? Struggling with withdrawal symptoms ,feel a bit woozy at times. Howabout a cup of tea? But where is it, the pot is empty ? OMG! I've...

Or is it the co codamol ? Struggling with withdrawal symptoms ,feel a bit woozy ...

Seagu11

•5 years ago

15 Replies

Want to take advantage of all our features? Just log in!

Hi all.

Sorry not to be in touch this year. Been in hospital with undiagnosed problems. Whoopee perhaps just PMR AND GCA! !!?.But at last been diagnosed with a hernia...

Sorry not to be in touch this year. Been in hospital with undiagnosed problems. ...

morrison

•5 years ago

11 Replies

Thank you for prayers for Garry.

I just want to thank everybody for their advice, good wishes and prayers regarding the post I did a couple of days ago about my son Garry’s 2nd cancer...

I just want to thank everybody for their advice, good wishes and prayers regardi...

Linda369

•5 years ago

39 Replies

Vasculitis Foundation Patient Conference-Seattle, Washington-Jany12

All- I am very excited to report that I will be attending the above mentioned conference this coming Saturday health permitting. Here is a link to the...

All- I am very excited to report that I will be attending the above mentioned co...

Mks9558

•5 years ago

15 Replies

Clear as Mud

On August 22nd, I was told I had "the beginnings" of cataracts, but not to worry... we'd check them again, in a year. On November 2nd (just 71 days later) I...

On August 22nd, I was told I had "the beginnings" of cataracts, but not to worry...

Hidden

•5 years ago

58 Replies

So much useful information...

Thank you to all the warm welcomes to this amazing site. Keeping me well busy! The story so far...part 2. My initial dose of 70mg Pred made me feel so well!...

Thank you to all the warm welcomes to this amazing site. Keeping me well busy! ...

Kael-gca

•5 years ago

7 Replies

Todays appointment with Rhuematologist

Appointment with rheumatologist today. Not the same one I had seen on last two occasions. I started ny saying that though I had been initially diagnosed with...

Appointment with rheumatologist today. Not the same one I had seen on last two o...

Theziggy

•5 years ago

23 Replies

GCA ?

Went hospital on 10th Dec, they treated me for GCA due to temple pain and inflammation of veins around that area, although CRP blood test at time was around 4....

Went hospital on 10th Dec, they treated me for GCA due to temple pain and inflam...

andersom

•5 years ago

9 Replies

Cross and irritable

Hi. I’ve been off here for ages, trying to get on with life, but for me it’s always totally dominated by PMR, and worries re the effect it’s having on the...

Hi. I’ve been off here for ages, trying to get on with life, but for me it’s alw...

Wraysbury

•5 years ago

40 Replies

Rheumatologist .... just stop taking them... you'll be fine...

I saw my rheumy yesterday, the one that told me there was nothing wrong with me but age (I am 56), then a month later my left hip collapsed from AVN... who...

I saw my rheumy yesterday, the one that told me there was nothing wrong with me ...

caterpillar

•5 years ago

16 Replies

Night time leg pain

Hi everyone, I've had PM R since March 2017 and now down to 6. However, I'm getting bad pains from under my buttock down to my knee and sometimes down to my...

Hi everyone, I've had PM R since March 2017 and now down to 6. However, I'm gett...

edmonton

•5 years ago

6 Replies

Levity and shoes !!

Hi Everyone Please forgive the 'levity' of this wee post - but I could not resist and it may make some of you even smile - I am thinking especially of (you)...

Hi Everyone Please forgive the 'levity' of this wee post - but I could not resis...

Rimmy

•5 years ago

26 Replies

Low levels of B12

Hi, I take my 15mg Mtx each Monday evening, then folic acid in the evening of every other day of the week. Had a routine 4 weekly blood test yesterday morning,...

Hi, I take my 15mg Mtx each Monday evening, then folic acid in the evening of ev...

Dontwannabesick

•5 years ago

10 Replies

Knee replacement and PMR

After seeing my latest knee x-rays, my ortho surgeon has added my name to the waiting list to have a total knee replacement (sigh). We discussed my ongoing...

After seeing my latest knee x-rays, my ortho surgeon has added my name to the wa...

PMRCanada

•5 years ago

27 Replies

Tapering off Prednisone

Hi, again. I haven't posted in quite a few months. I am now down to 1 mg Prednisone after having been diagnosed with PMR exactly 3 years ago (but suffered 2...

Hi, again. I haven't posted in quite a few months. I am now down to 1 mg Predni...

Robinre

•5 years ago

8 Replies

I'm new here.. I am a GCA sufferer!

The story so far... After suffering two weeks of flu like symptoms, I developed sharp shooting pains on the right side of my head. Went to the GP, naively in...

The story so far... After suffering two weeks of flu like symptoms, I developed ...

Kael-gca

•5 years ago

18 Replies

Recently diagnosed... what is normal?!

Having struggled through Nov and half of December with pain and fatigue, finally gave in and admitted that my symptoms were not simply due to being out of...

Having struggled through Nov and half of December with pain and fatigue, finally...

Mkhj

•5 years ago

25 Replies

Connections between inflammation, the immune system and depression, Dr Edward Bullmore's theory

I heard an interesting interview with Dr Edward Bullmore on Start the Week BBC Radio 4 this morning. As far as I understood, he thinks that the release of...

I heard an interesting interview with Dr Edward Bullmore on Start the Week BBC R...

Joan-E-D

•5 years ago

11 Replies

Lochness03

Thanks for your support, sound advice and warm welcome to the forum 🙂

Lochness03

•5 years ago

2 Replies

How much prednisone

Assuming my CRP and sed rate are normal, how much prednisone do I need? Enough to be able to tolerate mild discomfort, or enough for no pain at all? (Am...

Assuming my CRP and sed rate are normal, how much prednisone do I need? Enough t...

Dwigbon

•5 years ago

6 Replies

In a Dark Place

Still looking for a positive, upbeat, "it's a NEW year," happy rant? Don't look here.... still struggling mentally & emotionally, but physically? ...not bad,...

Still looking for a positive, upbeat, "it's a NEW year," happy rant? Don't look...

Hidden

•5 years ago

49 Replies

Newly diagnosed

Hello, this is my first time posting on here, I have been reading your posts over the last couple of weeks, so much to learn and to take in. I started with...

Hello, this is my first time posting on here, I have been reading your posts ove...

Iloveholidays

•5 years ago

11 Replies

Methotrxate

Hi I’m 52, had PMR for 21/2 years. I did get down to 7mg Pred about 18 months ago, but had a flare up and have not been able to get below 15mg since. I saw a...

Hi I’m 52, had PMR for 21/2 years. I did get down to 7mg Pred about 18 months a...

Beccasmum

•5 years ago

12 Replies

Should have listened to advice from group

When I dropped from 7 to 6.5 I had major pain (similar to when I was first diagnosed). When I decrease doses it usually stops after a few days - this lasted....

When I dropped from 7 to 6.5 I had major pain (similar to when I was first diagn...

barbthy

•5 years ago

8 Replies

A bit of sunnyside - as requested by Bee!

One thing that has become apparent to me since joining the forum is that all our routes (I hate the word journey!) through this mysterious illness are...

One thing that has become apparent to me since joining the forum is that all our...

MamaBeagle

•5 years ago

27 Replies

The Lighter (?) Side: 'The Inflamed Mind' - BBC Radio feature today. Food for Thought for Some of Us Lot..? ;-)

Greetings All On a slightly less silly note than usual (what, Me?): I thought you might be interested in something I heard on BBC Radio 4 'Start the Week' this...

Greetings All On a slightly less silly note than usual (what, Me?): I thought yo...

markbenjamin57

•5 years ago

99 Replies

Inflammation and depression

Did anyone hear Dr Edward Bullimore on Radio 4's Start the Week discussing his new book on the link between inflammatory illness and depression with Andrew...

Did anyone hear Dr Edward Bullimore on Radio 4's Start the Week discussing his n...

maria40

•5 years ago

8 Replies

My white squirrel

Just to add something to cheer folk up. Here is a rather poor photo of the albino squirrel we have had coming to our garden since March (photo taken a while...

Just to add something to cheer folk up. Here is a rather poor photo of the albin...

peace_lover

•5 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2019

Diabetes -warning

Spider vein injections and PMR/pred

Pred Head ?

Hi all.

Thank you for prayers for Garry.

Vasculitis Foundation Patient Conference-Seattle, Washington-Jany12

Clear as Mud

So much useful information...

Todays appointment with Rhuematologist

GCA ?

Cross and irritable

Rheumatologist .... just stop taking them... you'll be fine...

Night time leg pain

Levity and shoes !!

Low levels of B12

Knee replacement and PMR

Tapering off Prednisone

I'm new here.. I am a GCA sufferer!

Recently diagnosed... what is normal?!

Connections between inflammation, the immune system and depression, Dr Edward Bullmore's theory

Lochness03

How much prednisone

In a Dark Place

Newly diagnosed

Methotrxate

Should have listened to advice from group

A bit of sunnyside - as requested by Bee!

The Lighter (?) Side: 'The Inflamed Mind' - BBC Radio feature today. Food for Thought for Some of Us Lot..? ;-)

Inflammation and depression

My white squirrel

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