I Keep Forgetting...

[Nuff1]

... that OH on Pred is likely to be more irritable than usual.

(Usual = somewhat irritable)

[DorsetLady PMRGCAuk volunteer]

Yes, but he can’t help it! Goes with the territory - sorry! Nothing personal 😏🤨

[SnazzyD]

Time to dust off that halo.

[SheffieldJane]

You are lucky. I am vitriolic! 🤨

[Jean56]

Oh yes. I’ve never been the most patient person but now....... My poor long suffering husband tells people he has had his head bitten off so many times that it is now attached with industrial strength Velcro, easier than sewing it back on. The awful thing is I can hear myself losing my temper, the words flow out and I know I’m being awful, unreasonable, downright horrible but can’t stop. No excuse, perhaps, the steroids have a lot to answer for but we need them.

[Constance13 in reply to Jean56]

When you are feeling in a good mood - show him, speak about the PMR, perhaps get him to read about it - it may help both of you to cope with this pesky illness better.

[Jean56 in reply to Constance13]

We still have plenty of good times, he’s always been able to make me laugh, even when I’m bad tempered. He’s incredibly understanding. Which makes me feel very guilty for my fits of temper and lack of patience. We’ve just got back from an appointment with the doctor for him. He’s being referred to a memory clinic. Doctor reluctant to say very much, just said the scan showed brain shrinkage. The memory clinic would tell us more. Worrying!

[Constance13 in reply to Jean56]

That is worrying! I was going to press “like”, but no-one could “like” such a diagnosis.

All the best fr Constance

[Jean56 in reply to Constance13]

Thank you. I know we all lose brain cells as we get older and our brain shrinks. I doubt doctor would refer him for ‘normal’ wastage. He has had a stroke and a brain haemorrhage in the past 15 years. My lovely husband doesn’t do anything by halves!

[PMRpro Ambassador]

Only somewhat irritable????? I'll swap...

[Constance13 in reply to PMRpro]

I wonder! Would you really? How would your life in Italy change? The devil we know...........!

[Grants148]

Not just irritable but if faced with a problem extremely agitated,it is like an emotional rollercoaster,can feel quite happy one day and very depressed the next.

[JD4pmr in reply to Grants148]

So reassuring ! In the pre-PMR day I was stimulated by challenge/problems, now just go to pieces - happily for the world I live on my own so my rants and exasperation just hits the wall! BUT there ARE good days when you feel 'normal'ish' [and of course then overdo it ...] Oh I should know better after five years, but bless this brilliant forum for giving support and making us laugh

[Dream21]

I feel that way, too. My irritation rises fast at times, when before I would let it roll off my back. I seem to be saying “sorry” a lot. Sorry I forgot...Sorry I snapped at you...Sorry to complain and vent.. Also, I say “No or I need help a lot” I will not be able to guarantee I will be there, as my nights are exhausting. I would love to have you come over for Thanksgiving, but do you mind bringing side dishes, so my husband is not overwhelmed. If I forget, please do not take it personally, it is beyond my control. Etc.

I try to keep my side of the street clean and just accept this is part of my diseases. That I am doing the best

There are some realities to these diseases. GCA/PMR/Fibromyalgia. I remind myself to not feel bad for something out of my control. Apologize, explain, and move on. Some new friendships did not last, as they did not know me before, and had trouble understanding the repercussions of these diseases, when I look fine.

Be gentle with yourself. We can not punish ourselves for things we do not have control over.

[Suet3942]

My OH is irritated by everything. Got worse as he’s aged. If he had pmr he’d be UNBEARABLE!!

[PMRpro Ambassador in reply to Suet3942]

Sounds like mine - he's unwell at present and is pretty unbearable

[Nuff1 in reply to PMRpro]

Sympathies to the two of you - OH does not have ood tolerance levels particularly with niggly pain -e.g a hefty wallop from a bit of stray machinery doesn't bother him much but he's irritated by long-term small aches.

I'm surprised how well he's coping with current restrictions, they don't seem to bother him much but I have to be careful how I phrase queries and statements (particularly as I still have remnants of Yorkshire inflexions)