Lochness03

[Lochness03]

Just been put on 15 mg of Prednisone for a week to see if any symptoms change GP not sure if I have pmr or fibro so taking a chance. Been a few days and not much change but at this point I'll try anything 😶

[Husband1938]

That's what happenned to me 6 years ago. My bloods showed no inflammatory markers so the doctor tried Prednisilone to see what happened. Within a week I felt so much better it was diagnosed as PMR. Over the years I have slowly decreased to 2mg but occasionally have to up them to 5 or 6. I can cope with this as it is better than having Fybromyagia as there doesn't seem to be any treatment for that. Wishing you all the best and hope you feel better soon.

[piglette]

Pred has no effect on fibro, pred usually has quite a magical effect on the pain if you have PMR. It really depends what dose you have been given and if it is high enough for you. You have been given the normal starting rise of 15mg but it seems some people need a bit more.

[Meggsy in reply to piglette]

Yes, I needed 25mg.

[piglette in reply to Meggsy]

Did it work OK at 25mg?

[Meggsy in reply to piglette]

Beautifully! Now heading towards 9mg from 9.5. Getting apprehensive re lower doses but happy to go DSNS as had trouble jumping from 10 to 9mg. So far so good. 💐

[piglette in reply to Meggsy]

I find going just .5mg reduction below 10mg works well and taking it slowly.

[Meggsy in reply to piglette]

Thank you Piglette

Marea

[Hidden]

Same...after stuggling with pain from September 2018. During a tour of Northern Spain, on a coach, right shoulder pain. After considering anything that I may have done to bring on muscle pain...I remembered my father had suffered with a similar problem some years back (dad died in March 2018. 95 years)...he was diagnosed PMR...with a few years on prednisone. Honestly, his personality changed overnight! From passive to aggressive!

So then, I'm not too happy to have this desease....

Long story, short.

After returning home, doctor run around...hard to get a specific diagnose.

Last week, confirmed diagnosis PMR. Four months later....

I'm now on prednisone 12.5mg...

Lowest entry because of the reaction to the drug.

I am visiting my GP today...

I've a rheumatologist lined up for Friday this week...

As much as I've read, l will be o a long term journey with PMR and prednisone! I've recently had my 71 birthday.

Prednisone has a neurological effect on me...speeds up my mind. Uncomfortable. However it has, for the most part, taken care of the flare up. I'm almost pain free.

Finding difficulty with early mornings. Sleeping less. Mood swings. And the daunting task of reorganizing myself fro. Healthy active senior to restricted sufferer of chronic disease.

It sucks.

[SnazzyD in reply to Hidden]

Hello, don’t worry the Side effects you describe are usual rather than being an acute reaction in you . Your body does go into a bit of overdrive at first but gets used to it after a few weeks. It’s still not right but not as frenzied.

[Hidden in reply to SnazzyD]

Thank you. I'm just so pleased I've a supportive husband. The only thing he's unable to do..is put my bra on. I'm still struggling with shoulder pain and unable to reach back!

We'll certainly be happier if the prednisone reaction settles. Today was a good day, yesterday was awful

[Hellyowl in reply to Hidden]

Hi, With the Bra thing I have been a front fastener all my life and if swiveling it round hurts, a dollop of moisturizer under the boobs helps. Husbands faff too much.

[Hidden in reply to Hellyowl]

I've tried that. In fact I've a few front fastening bra...however too hot .. in a temperature way! Australian summertime heatwaves...maybe soonish when the weather is cooler I will have another try

[Valnvaughan in reply to Hidden]

Buy pretty front fastening bras. I did. Makes life easier. Also invest in long handle shoehorn. Valerie

[Bronni]

Hang in there. It might take a little while, but if it’s pmr, you should see a significant change

[SheffieldJane]

Pred won’t touch Fibro I’m told and painkillers do nothing for PMR ( your bloods can be completely normal though).

[Polymialgia]

Try to think of it as a minor irritation rather than chronic disease, and work out alternative ways of doing things, you will then be more accepting of it and life does get better, I’m into year 3 now and I tell no one about it as I learnt early they just don’t get it.

[PMRpro Ambassador]

15mg may not be enough - the recommended starting dose is the lowest effective dose between 12.5 and 25mg. Since even a couple of mg can make a massive difference, it is worth bearing in mind.

[Meggsy in reply to PMRpro]

Yes, I had to increase from 15 to 25 mg before I became pain free.

[MartiFL]

I was started at 10 mg in April last year. I think it took four or five days to be pain free.

Give it a chance. Hope it goes well for you!