I am 52..diagnosed 18 months ago with PMR. My Rhuematologist thinks I prob had Fibro for years. I had a near fatal car crash in 1987 with multiple very serious injuries and nearly a year in hospital. I was 21. I think it all stems from the damage to my body then. What do others think ?
I am on 5 mg pred after a few changes over 18 months or so. I DONT want to be on pred long term.Scares me. Recently we trued dropping to 4 mg. No good. Just 1 mg made a difference. The extreme heat in Australia is difficult this summer. 2 werks of high 30 deg cel. 45 cel expected today. Winter is hard but can extreme heat be a problem also ? Interested in peoples thoughts. I think I am young to have PMR. I take pred late at night to avoid the head sweats during the day. Or I look like I have had a shower lol. I dont notice them during the night. I have insomnia no matter when I take it.
Hope to hear some thoughts. 😁
I was diagnosed at the age of 52 am now 2 years on and on 7mg tried 6.5 but had to go back up, who knew half a mg could make a difference! Doctor has told me not to try and reduce for 3 months 😩 just want my chipmunk cheeks to go away!
They will, don’t worry! They go much quicker than the rest of the weight most put on.
It is amazing what 1/2 mg can make a difference, isn’t it?
Yes...We tried 4 mg but no good. This flare up may be from the heat or who knows what. Im not particularly stressed ....tht usually causes my flare ups. I had a foot operation end of October and have been up and down since then.