I've had G C A since Dec.2014 with three or four flares and uti infections on a regular basis,In 2015 i spent two weeks in hospital with sepsis and portal vein thrombosis.In July this year I started getting muscle pain in the top of my arms and pain in my neck at this time I was on 3mg prednisolone I thought It was withdrawal symptoms , last week I was due to drop to 0.1 mg and pain appeared in both shoulders, so went to see my gp last Monday. She confirmed PMR wanted to start me at !5MG for two weeks then dropping by two&half mg every two weeks.I was not happy with this, I feel I've had this coming on for a while and It has been masked by the high dose of steroids.My esr and crp levels doubled in September .I would like to try 10mg for one week then drop to The number I was comfortable at 5mg. Any help or suggestions gratefully received.
Thank you Jean
Personally I don’t think your GP’s plan will relieve this. You have been through such a lot. Please stand firm on a higher dose and a much gentler taper, unless there are extraordinary health reasons why you cannot tolerate that. I would also want all my symptoms to settle before I reduced at all. That might take a month or so. Then I might reduce at 1 mg per month or even 0.5 per month ( pill cutter). Look for the dead slow nearly stop method on here or similar. You are much less likely to flare. Good luck!