Just a quick survey for GCA sufferers please.
As a former medical / biological researcher for most of my career before I retired a few years ago, I am lucky to still have access to ( and be able to understand) medical and research publications. I have passed on a number of recent papers to my GP and to my Rheumatology consultant (- very humbly, because it’s not good to appear to be a “ know-it-all”) and I’ve been surprised that they were not aware of much current research- I guess they don’t have the time!
One line of research that particularly caught my interest was indicating the role of Shingles virus in triggering GCA, which looked at temporal artery biopsy samples and found evidence of Shingles virus in 74% of samples- significant! I can send people links to the research if anyone is interested?
Still not sure that my diagnosis was correct ( in June 2017), but if it proves I do have GCA, then in my case, I am sure Shingles was the culprit, and I would like to lobby for Shingles vaccine to be offered in the U.K. much earlier than the current 70 ( which is far too late).
How many other people had an attack of Shingles before getting GCA I wonder?