Myeloma

[Jamie345]

Hi everyone I finally have been diagnosed with Myeloma everything was rushed through by doctor Rod Hughes through to haematologist dr Laurie at St. Peter's , I had the bone marrow biopsy and within two days later I had an appointment to see dr laurie he pulled no punches which I prefer, I start my first meeting with the mcmillian nurses on Tuesday and have me first chemo on Thursday. So here we go the fight is on

[DorsetLady PMRGCAuk volunteer]

All the very best 🌷. Please let us know how you get on when you feel up to it.

[SheffieldJane]

Oh sweetheart! You sort of knew didn’t you? Sending you love and hugs and prayers that you are in good hands and all will be well. Keep in touch, we will all want to hear how you are doing.🌸🌺

[scats]

Sorry to hear that Jamie. Remember where we are when you need a boost or a rant, we'll all be with you.

[Marilyn1959]

Hi Jamie. Thank goodness for Rod Hughes! I wish you well with your treatment. There are support groups on health unlocked for Myeloma, but I don't know how active they are. Therefore I echo scat's sentiments that you continue to use this community to support you, in conjunction with others. Best wishes. X

[PMRpro Ambassador]

Thank you for letting us know Jamie - and I'm so sorry it isn't good news. I am relieved you took our advice to go to Rod Hughes when your original doctors obviously didn't do their job properly. Myeloma should be a rule-out, especially when the patient doesn't repond to pred as expected.

[Jamie345 in reply to PMRpro]

It was you who said to me a few times that you dident not this it was polymagalia and to get a second opinion and that was why I took the decision to call Dr R Hughes obviously I cannot thank you enough and hopefully they can manage it for me xx

[PMRpro Ambassador in reply to Jamie345]

Thank you for listening - it just never sounded "right" for PMR. xxx

[GOOD_GRIEF]

Keep that fighting spirit, Jamie. We're here for you if you need us.

[SnazzyD]

All the very best. As with all big health troubles, take each day at a time, be in contact with just good people for you, be good to yourself and ignore those who tell you you have to be positive.

[Rosbud]

Huge hugs x

[Longtimer]

I wish you well, keep us posted......

[Joaclp]

It sounds like you are in good hands. I wish you all the very best with your treatments. Many gentle hugs.

[Patience47]

In my prayers, Jamie.

[MhairiP]

Sorry to hear your news. It's good that the treatment is starting so quickly. We're all rooting for you - let us know how you get on if you're feeing up to it. x

[karools16]

Brave girl. Praying for you, esp with 1st chemo Thursday.x

[Hidden]

Wishing you all the best with your Chemo, so glad Dr Hughes realised what was wrong. Chemo’s not easy but keep yourself well, keep away from anyone with Coughs & Colds. Hand Wipes are my Top Tip!

Take Care & Good Luck 🍀

MrsN x

[Angiejnz]

Damn that bad news. Sending strength and love - l had leukaemia so know about the reproduction of useless blood cells but not the awful pain you are experiencing. Maybe now you have a diagnosis you will get the proper pain relief xxxx

[Daisychain12 in reply to Angiejnz]

Oh Angie you brave girl. I never knew that about you. Sending you even more love if that’s possible xxxx

[Angiejnz in reply to Daisychain12]

Don't worry about me, I'm fine and it was 28 years ago. I'm a survivor 💃

[Daisychain12 in reply to Angiejnz]

You certainly are xxxx

[Jamie345 in reply to Angiejnz]

Thank you so much still in pain but they say hopefully tha pain will improve gradually, worse thing is my son and daughter with families are coming for Christmas and I just hope I'm able to join in the Christmas facilities praying a lot lately! I thought his would turn out to be leukaemia which my mum got after breast cancer so I expected sane glad you got over it and very happy for you God bless you lots of hugs to you,

[Daisychain12]

Jamie darling please stay in touch. You are surrounded by people who care very much about your progress. I wish you everything good in your journey darling xxxx

[Jamie345 in reply to Daisychain12]

Thank you for your kind words I will stay in touch with every one glad let you know how my progress goes X many hugs to you xx

[Daisychain12 in reply to Jamie345]

It’s wonderful to hear from you. Every day I think about you xxx

[Daisychain12]

Jamie you’re a gorgeous brave and FABULOUS woman. When I first read about your rib pain I thought of shingles. I’m so sorry you have this ahead of you. Please come here a lot and let us share your journey. I will pm you my email address too. And Facebook. Xxx Linda xxxx

[Jamie345 in reply to Daisychain12]

Thank you so much what a lovely encouraging and good feeling I got from your message and many of the others on this sight if it was not for someone saying she did not think they are treating me for the right illness I would not be getting this chance as its on 85 percent at present so it's got a long road to get it down, so I will always think of her advice and also a few others. Cannot thank this Forum enough for its comfort over this hard period and we must always listen and take heed, and I do believe to keep positive and keep laughing .😆Xxx

[pmrkitty]

Prayers being said for you and your family. Soft hugs being sent. ❤

[Jamie345 in reply to pmrkitty]

Many many thanks all these prayers must help much help to him upstairs to help me big hug God bless you .

[pmrkitty in reply to Jamie345]

God bless you Jamie and may He instill a peace in your heart to help you through this. ❤

[Cheshy72]

Wishing you the very best Jamie, Good luck.

[Jamie345 in reply to Cheshy72]

Thank you and the same to you hugs and thoughts to you as well xx

[MamaBeagle]

All the very best J, rooting for you....

[Jeannie29]

So sorry to hear your news Jamie345,I know about Myeloma as my Mum had it .stay positive (not easy) everyone on this site will be routing for you and praying for you

Sending love and wishing you well x

[Jamie345 in reply to Jeannie29]

Thank you so much hope your mum is ok if not I hope it was made her comfortable, lost my mum thru leukaemia I'm 73 and still miss her and dad like it was yesterday x

[Uride]

Love and prayers are with you great attitude fight with all you can my dear

You can beat this

xx

[Jackoh]

Sorry to hear this Jamie345 but so pleased it was detected early. All the very very best with your treatment. We are all rooting for you here. Keep in touch if you can and let us know how you get on xxx

[Suet3942]

Sending gentle hugs Jamie. Hope all goes well🌷🌷🌷

[stellafmdm]

So sorry Jamie, I hope all goes well for you.

I’ll be praying for you xxx

[Jamie345 in reply to stellafmdm]

Thank you so very much xx

[PMR2011]

Glad you know what you’re up against. Take good care of yourself as you start this journey. Right now it’s all focus on you. 💐

[Jamie345 in reply to PMR2011]

Yes at last I've been so well looked after by the rheumatologist Dr R Hughes excellent and haematologist Dr Laurie amazingly quickly and I've had amazing help from all and everyone on this forum thank you so much.

[bunnymom]

Wishing you health and well being. Keeping you in my prayers today.

[saffron52]

Hi Jamie My husband was diagnosed with myeloma / plasmacytoma in 2012 after a couple of years being very fatigued and we both thought it could be something to do with the prostate gland or age. He had radiotherapy for the plasmacytoma (which is very rare) which was in his right lung. With that out of the way he went onto oral chemotherapy for 8 months and then onto intravenous chemo for about 6 months on the Myeloma Eleven Trial. He then had a stem cell "transplant" at the Queen Elizabeth Hospital which was very successful. Of course, there were blips with infections etc. but overall the treatments went really well. Since 2013 he has been fine fit and well, he is out building sheds, riding his motorbike and enjoying his retirement. They have lots of new drugs available since he finished his treatment and are coming out all of the time with more, great strides have been made with treating Myeloma. We found that all the Haematologists we met were wonderful and went the extra mile for their patients. I wish you all the luck in the world, hugs and kisses to you. Angie xxxxxx

[Jamie345 in reply to saffron52]

Thank you for the insight into how your husband was and is now, need that at the moment . God bless he keeps his disease at bay and can enjoy his retirement with his loving wife by his side x

[saffron52 in reply to Jamie345]

Hi Jamie Thank you so much for your kind words, will think of you often and keep all my fingers and toes crossed. Along the journey we met some wonderful people, doctors, nurses and other patients, it enriched our lives to have met all of them, we are still really friendly with all the Trial Nurses that over the couple of years attended John. It can be a bit of a roller-coaster but hang on in there eventually all will be well and I cannot reiterate enough treatments for Myeloma are going at such a pace now treatment will be much better and quicker even since 2013. Lots of love take care of yourself Angie xx

[Jamie345]

Thank you so much for all your support xx

[piglette in reply to Jamie345]

All the very best in your new journey. Thinking of you.

[Asbeck]

Go with God. We are all on your side.

[Coachev]

Praying for you. Hang in

[Hidden]

ATB. Jamie. Be your usual strong self & you're half way there already.

[Telian]

Best wishes Jamie and keep us up to date as much as you can, thank goodness for the good doctors you have now - thinking of you. x

[Pipalina]

Very best wishes to you Jamie - I hope sure the support from everyone on the forum lifts your spirits a little. Much love to you - Kathy xxx

[Chrob]

Just sending thoughts x

[5lupins]

Glad you have nice haematologist treating you. My oh was diagnosed with non Hodgkin's lymphoma last year and everyone has been great. No chemo yet as he has had sepsis three times and pancreatitis but doing well. Starts a new drug for ITP this week.

It is like living in a parrelel universe where your life is organised by good people helping you.

All my very best wishes. Take care. Jen

[prunus]

We're all with you at this time - prayers and in our thoughts.