I have had GCA since August 2014 and have been on Pred since then plus Methotrexate since 2015. I have now reduced to 2 mg Pred with the same dose of Metho (15 mg once a week). I have no pain in my head and my consultant feels that I am cured. Unfortunately, I am in a lot of pain and weakness in my lower back and legs. I had severe sciatica and went to a back specialist who took X rays and an MRI scan. That showed arthritis and scoliosis causing a kink in the lower spine so a nerve was trapped. He gave me a cortisone injection that gave me considerable relief on the side with acute sciatica and that has lasted for four months. But the pain other side and weakness has, if anything, increased. The consultant said that he could give me one more injection and then I was looking at an operation.
My very good GP was very against an operation and recommended physio and gentle excercise. I have been walking everyday and doing gentle Pilates but I am getting pretty despondent.
My question is: could all this pain be caused by reducing pred to a low level (very, very slowly) or is it due to my back problems? I think that is unanswerable! I was in such despair yesterday hobbling along with a stick that I began to think an operation might be the only answer. As always, many thanks for all your support over the years.