The accidental gamble and win: My new avatar is my... - PMRGCAuk

PMRGCAuk

21,227 members40,248 posts

The accidental gamble and win

violetsnowdrop profile image
12 Replies

My new avatar is my great grandson Jaxon.

My last post ( 6 months ago) was to state that rheumy considered the PMR activity in my body was relatively inactive but to remain on maintenance dose of 5mg until seen again.

Fast forward to to 5th Sept--I had blood tests, doctor's appointment and nurse re-dressing (I don't mean telling them off!) my lymphoedemic legs---in the midst of all this broohaha I totally forgot to take pred, not realising until much later in the day,(Stranger still-- I felt no stiffness/pain from shoulders/hips). Having previously been informed that my legs were unlikely to improve with the triumvirate of PMR, Diabetes2 and overweight, I decided to gamble and,not take pred for a few more days to gauge my body's reaction. I was extremely lucky and had no adverse reaction, even though all my previous attempts to reduce to 4mg had met with pain & stiffness.

This was monitored by my GP (who had placed me on my 5th different type of anti-biotic in 3 months for leg infections). Fortunately, this treatment has left with dry legs for the first time in 2.5 years.

In the subsequent month I have remained pred-free; still have dry legs; have been able to reduce insulin consumption by 50% AND have lost 3kg of weight!. GP suggested having a go at the National Lottery!!!

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violetsnowdrop
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12 Replies
Hollyseden profile image
Hollyseden

Brilliant news and great results.Yes maybe you should do the lottery.

CT-5012 profile image
CT-5012

Wonderful news, best wishes for your continued recovery. Definitely get a lottery ticket. 😊

SheffieldJane profile image
SheffieldJane

This sounds like the time was right. What a blessing! I hope that this is it. Have you ever had your Adrenals checked? I reckon you’d know if your Adrenaline levels were below par. Glad all the nasties are going/gone. 🌷

violetsnowdrop profile image
violetsnowdrop in reply toSheffieldJane

GP has been keeping a close eye on all things kidney/liver as I only have one kidney due to renal neoplasm and radical nephrectomy 24.5 years ago. So far fluid tests OK and BP is approx 140/75.

SheffieldJane profile image
SheffieldJane in reply tovioletsnowdrop

Jaxon is a real cutie. It is wonderful having a baby in the family!

Longtimer profile image
Longtimer

Love hearing good news....keep us posted....

PMRpro profile image
PMRproAmbassador

Wonder if the new antibiotic has anything to do with it?

Grants148 profile image
Grants148

So pleased to hear your great news,well done for your sensible approach,and losing 3kgs.,of weight too,l would certainly have a go on the lottery,Good Luck!

PMRCanada profile image
PMRCanada

Good news indeed, accidental or not. Time will tell if indeed the PMR has burned itself out. For your sake I hope so. Congratulations on the weight loss, lowered medication and dry legs. Hope it all continues for you!

enan-illuc profile image
enan-illuc

Violetsnowdrop,

Get the Lottery Ticket but hug Jason first for good luck.

Purplecrow profile image
Purplecrow

👏🏽 Excellent! Carry on!

bunnymom profile image
bunnymom

Good for you! It's it wonderful to feel healthier!

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