Legalize marijuana

[casse]

Anyone seeing progress with legalized marijuana for prednisone reduction?

[stayingstrong4me]

Would like a straw poll to confirm my progress but i have used cbd oil since diagnosis pmr september 16 in a steroid sparing capacity .and feel it has really helped me.3.5mg reducing to 3 mg

[casse in reply to stayingstrong4me]

Thanks for getting back, appreciate it I’ve been on megadoses started was 60 years ago, Hard time getting below 20 got to 10 once then terrible flare GCA seems to be under control, had biopsy for years ago December. PMR so hard to get out of bed and a.m. p.m..

[Yolanda1 in reply to stayingstrong4me]

how do you use the oil please?

[stayingstrong4me in reply to Yolanda1]

Hi i take my coated pred at 10pm and 2 drops of cbd at 10.30 pm i tend to wake about 3 am and take 2 more drops of cbd .when i get up at 7 am i can get up and downstairs wthout difficulty or stiffness. If i dont take cbd at 3 am i am stiff and in pain

[kulina in reply to stayingstrong4me]

I stared using CBD oil this week but it's, too early to tell if it makes a difference. I understand you have to build up the dosage. How many mg do you take? Not all drops have the same strength. My dose is 2 drops (10 mg) twice a day (20 mg a day) for now and I feel more relaxed and not as hungry all the time. I plan to increase the dose by 5 mg each week.

[pammy_hyland]

I thought about it instead of taking steroids I think it would be good for the pain but I don't think it would help with the fatigue which I find is the worst part of it all xx

[morrison in reply to pammy_hyland]

Fatigue is the worst thing. No drugs or anything will help. We need to listen to our bodies to tell us what to do

[pammy_hyland in reply to morrison]

Only the steroids keep it at bay there doesn't seem to be any alternative for a long term sufferer !

[stayingstrong4me in reply to pammy_hyland]

As a stand.alone i wouldnt just use cbd oil but my thoughts are by using cbd along side pred reduces the amount of pred needed to control symptoms thus minimising side effects from pred and also reap the added benefits from cbd oil . As i say no yard stick to compare but my dose of pred at this stage seems ok?

[pammy_hyland in reply to stayingstrong4me]

I'm down to 4mg but haven't ever managed 3mgs without a bad flare over 6 years but it's the fatigue every Time or I might be tempted to go cold turkey with steroids altogether but with the fatigue life isn't worth living ☹

[stayingstrong4me in reply to pammy_hyland]

There are different strains or types of cbd .so each one has a different profile .so it is complex .brain fog and fatigue are my biggest problem. But i find i can manage it better if i can take less pred by taking cbd

[casse in reply to stayingstrong4me]

Thanks, if next three weeks CRP high again really going to consider. It’s just so expensive cost $500 just to start then the drug is so expensive on top of that, heard $200 to $600 per oz😟

[powerwalk in reply to pammy_hyland]

oh god the fatigue. I just can't cope - it seems to be getting worse. Really really bad. I literally cannot cope with it. Looking forward to finishing work in a few months to see if that will help.