Hello, I have had 24/7 severe head pain - vice grip and really sore inside head (mostly 8 of a 10 pain scale) for 2.5 years. Not a headache since it never leaves. Prednisone gets it down to 5 or 6. Also have pain medication which doesn’t work as well, but helps get down another couple of levels through the day).
Also have jaw claudication and severe fatigue.
Never had biospsy because no one believed I had it and I was always on prednisone. Would an ultrasound show positive (if I was positive) regardless of prednisone? Or any other test?
Lastly, do any of you have deep fatigue? Everything seems harder? Weakness?
Currently at 17mgs.