Invite To Medical Studies! "University Stuff"! Or... - PMRGCAuk

PMRGCAuk

21,645 members41,051 posts

Invite To Medical Studies! "University Stuff"! Or Not!!

13 Replies

An invite to take part in a study from the docs! Can't knock it if means progress! Hope so! This one was for my colon cancer recovery!

13 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

They always need feedback - and a chance to feel useful.

in reply toDorsetLady

True! But not much on GCA/PMR it seems!!!

scats profile image
scats

Do they know what they are letting themselves in for?

in reply toscats

Research! All for it! But so often ask their own self serving agenda questions! Does it really get to the front line experience! (Been there with the chemo appointment cock ups!) No simple solution but communication should be a lot better! I'll say no more!

SheffieldJane profile image
SheffieldJane in reply to

I know it doesn’t give you the option you really need which probably can’t be collated.

scats profile image
scats in reply to

I would find it very stressful extra appointments and travel and as you say, communication cockups. Nice to be helpful but think of yourself too.

in reply toscats

I'ii hire you as my spokesperson scats! I & others expressed our frustration at the time but it made little difference. Grateful though we were for the treatment!

SheffieldJane profile image
SheffieldJane

It’s a chance to do our bit I guess. I thought your picture was snakes for a minute. I think I need to rest the old eyes.

in reply toSheffieldJane

It's Arum LIly Jane.(Lords & Ladies). Posted a pic of the red seed berries a while back.

Nope! Can't see any snakes myself.

Yes a chance to put something back.

ShirleyAb profile image
ShirleyAb in reply toSheffieldJane

I thought it was snakes at first glance too!

SheffieldJane profile image
SheffieldJane

Seeing things that aren’t there.......only me then.

in reply toSheffieldJane

I used to hear things that weren't there on 40 pred!!

Further update on this in later posts. How it is! Or works!

Not what you're looking for?

You may also like...

To taper or not...

Help please? My PMR seems better. I am @ 1mg and was considering starting a slow taper to 0.5mg....
Portobello profile image

To Taper or Not?

I have been on 25 mg Pred for 3 1/2 weeks splitting the dose 15mg at 5:00 am and 10 mg at 3:30 pm....
Sandy1947 profile image

To taper or not?

I have tapered from 15mg to 9mg but could not get down to 8mg, so back to 9mg for the last month....
kathleen18 profile image

To Omeprazole or not??

Hello everyone, Hope you are managing to keep cool. I've been concerned about side effects of the...

to reduce or not?

I was diagnosed with PMR and GCA in February last year and put on 60 mg prednisolone. I am now...
musicalJ profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.