Invite To Medical Studies! "University Stuff"! Or... - PMRGCAuk

PMRGCAuk

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Invite To Medical Studies! "University Stuff"! Or Not!!

13 Replies

An invite to take part in a study from the docs! Can't knock it if means progress! Hope so! This one was for my colon cancer recovery!

13 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

They always need feedback - and a chance to feel useful.

in reply to DorsetLady

True! But not much on GCA/PMR it seems!!!

scats profile image
scats

Do they know what they are letting themselves in for?

in reply to scats

Research! All for it! But so often ask their own self serving agenda questions! Does it really get to the front line experience! (Been there with the chemo appointment cock ups!) No simple solution but communication should be a lot better! I'll say no more!

SheffieldJane profile image
SheffieldJane in reply to

I know it doesn’t give you the option you really need which probably can’t be collated.

scats profile image
scats in reply to

I would find it very stressful extra appointments and travel and as you say, communication cockups. Nice to be helpful but think of yourself too.

in reply to scats

I'ii hire you as my spokesperson scats! I & others expressed our frustration at the time but it made little difference. Grateful though we were for the treatment!

SheffieldJane profile image
SheffieldJane

It’s a chance to do our bit I guess. I thought your picture was snakes for a minute. I think I need to rest the old eyes.

in reply to SheffieldJane

It's Arum LIly Jane.(Lords & Ladies). Posted a pic of the red seed berries a while back.

Nope! Can't see any snakes myself.

Yes a chance to put something back.

ShirleyAb profile image
ShirleyAb in reply to SheffieldJane

I thought it was snakes at first glance too!

SheffieldJane profile image
SheffieldJane

Seeing things that aren’t there.......only me then.

in reply to SheffieldJane

I used to hear things that weren't there on 40 pred!!

Further update on this in later posts. How it is! Or works!

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