An invite to take part in a study from the docs! Can't knock it if means progress! Hope so! This one was for my colon cancer recovery!
Invite To Medical Studies! "University Stuff"! Or... - PMRGCAuk
Invite To Medical Studies! "University Stuff"! Or Not!!
They always need feedback - and a chance to feel useful.
True! But not much on GCA/PMR it seems!!!
Do they know what they are letting themselves in for?
Research! All for it! But so often ask their own self serving agenda questions! Does it really get to the front line experience! (Been there with the chemo appointment cock ups!) No simple solution but communication should be a lot better! I'll say no more!
I know it doesn’t give you the option you really need which probably can’t be collated.
I would find it very stressful extra appointments and travel and as you say, communication cockups. Nice to be helpful but think of yourself too.
I'ii hire you as my spokesperson scats! I & others expressed our frustration at the time but it made little difference. Grateful though we were for the treatment!
It’s a chance to do our bit I guess. I thought your picture was snakes for a minute. I think I need to rest the old eyes.
It's Arum LIly Jane.(Lords & Ladies). Posted a pic of the red seed berries a while back.
Nope! Can't see any snakes myself.
Yes a chance to put something back.
Seeing things that aren’t there.......only me then.
I used to hear things that weren't there on 40 pred!!
Further update on this in later posts. How it is! Or works!