Yikes! What in the world have I done? - PMRGCAuk

PMRGCAuk
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Yikes! What in the world have I done?

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86 Replies

I went to my local surgery this morning as I heard they were having a Flu Jab Clinic... I went thinking I'd ask questions and "maybe" consider getting one... If I did get it, it would be my FIRST EVER flu jab!!!!

After speaking to the Doctor who said, "Yes, your conditions do not exclude you." (Isn't that a double negative or something?) Then he said, "Well wait, what's your name?" Then he said, "PMR, and what else do you have?" And he concluded with, "Yes you're okay, "

I was not feeling very confident! 😳

With no time to think, or even ask what jab he had in his hand, he said, "Can you pull your sleeve up, please?" ...and just like that, I did and he JABBED me!

Done. Over. Fini. Finito. Terminado.

Ohhhhh boy, what have I done????????

86 Replies
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Primarose

You didn't even get the chance to say no thank you. That's you sorted then mamic1.:-)

I think that there a method in their madness, my doctor did the same to me last year, he mentioned the flu jab, I just said I don't know, then, quick a you like in went the needle leaving doc with a big smile on his face!;-)

I do think you have done the right thing.

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Hidden
Hidden
in reply to Primarose

Thanks, yup that's me sorted indeed! 😱

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Pastit

Hi mamici, nothing to fear I expect. But for me when I had the flu jab 4 years ago, about two weeks later I developed PMR, coincidence or what. Since then I have not had a flu jab because I associate it with going down with PMR. Doctors say it is just a coincidence but in reality they have no proof.

Now that I am down to 2.5mg of pred/day, I really do not know what to do i.e. have it or not :-(

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Hidden
Hidden
in reply to Pastit

😱 OMG WHAT HAVE I DONE!

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Pastit
Pastit
in reply to Hidden

You will be ok, if it did promote my PMR, it was a fluke.

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Hidden
Hidden
in reply to Pastit

Hmmmmmmm?

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MamaBeagle
MamaBeagle
in reply to Pastit

Not sure about fluke Pastit - I've been wondering whether to have it myself this year so I've done a bit of silver surfing and found several articles - this one might interest you - it's not the only one which makes the connection either!

journalmc.org/index.php/JMC...

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Hidden
Hidden
in reply to MamaBeagle

😱 I want a do-over!

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MamaBeagle
MamaBeagle
in reply to Hidden

Oh dear!!! Too late..........as someone says the actress said to the bishop!!!

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Hidden
Hidden
in reply to MamaBeagle

" ..... that's what she said! " (It was Sheffield Jane!) : )

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MamaBeagle
MamaBeagle
in reply to Hidden

Yep I noticed!!!!

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Pastit
Pastit
in reply to MamaBeagle

Thank you MamaBeagle, a very very interesting article. It doesn't say that the vaccination caused the PMR but to my mind if my body was under stress from various things going on in my life, another substance which attacks my immune system could be the last straw on my metabolism. I know the report said there is treatment as we all know, but my 4 years of treatment has not been much fun 😔

Food for thought no doubt 🤔🤔

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MamaBeagle
MamaBeagle
in reply to Pastit

With you there Pastit...not much fun at all

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stellafmdm
stellafmdm
in reply to Pastit

But then neither do you Pastit! I’d rather be safe than sorry where flu is concerned. It is a nasty and dangerous infection, and sometimes people die from it!

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Jackoh

Well- decision over you're sorted!! Have mine ( and hubby ) on Monday.

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Hidden
Hidden
in reply to Jackoh

Good on you both... going so willingly!

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Jackoh
Jackoh
in reply to Hidden

Ha ha !!

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Cairn

I had same sort of experience too but it also included pneumonia was told last thing I needed was pneumonia. That was about a month ago still alive😊

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Hidden
Hidden
in reply to Cairn

It's just the fear of the unknown... Happy you had no yucky effects.

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DorsetLady
DorsetLadyPMRGCAuk volunteer

The right thing! The last thing you want is flu on top of everything else.

Your arm may feel a little sore for 48 hours or so but other than that you should be ok.

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Hidden
Hidden
in reply to DorsetLady

That is TRUE, I do not want the flu! So far so good... except I was in such a hurry to get out the door this morning, I forget my Pred!!! 😱

... and I didn't remember until 2:30!!!! I thought I was feeling crap because of the FLU JAB!

Hahahahahahahahahahaha

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DorsetLady
DorsetLadyPMRGCAuk volunteer
in reply to Hidden

That sounds about par for the course 😉

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Hidden
Hidden
in reply to DorsetLady

Hahahahahahaha. Yup, I was already cursing the damn flu shot!

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SheffieldJane

I hope you are fine today. We are a priority group for the flu jab - in fact we should get the more precise one that is reserved ( due to a shortage) for the over 75s. With our compromised immune system, we are more likely to get diseases like flu. I’m hoping that I can still get one as the programme at my surgery coincided with my chest infection.

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Hidden
Hidden
in reply to SheffieldJane

Oh Jane, I have no idea which one he gave me!!!!! He just JABBED ME. It's done now... 😱

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SheffieldJane
SheffieldJane
in reply to Hidden

I am tempted to say “ as the actress said to the Bishop” but that would be vulgar. We need to talk about a good date for our get together. Feeling a bit more like a person today. I will PM.you.

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Hidden
Hidden
in reply to SheffieldJane

"...that's what she said!"

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Rosbud

Our surgery did flu clinic this morning, one queue for over 65s and one for under 65s , very swift , everyone had pulse checked and bp check if you wanted it !

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Hidden
Hidden
in reply to Rosbud

Wow! Very cool! Our's was chaos! No numbers, no line, no name taking... just everybody crowded in the waiting; old, young, in the middle. At 8:30 some woman yelled "ok make a line," and the place went mad!!!!

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Rosbud
Rosbud
in reply to Hidden

We all had letters last week and just had to sign and hand to nurse/dr who was doing injection so they could sign and record batch number etc , really efficient and no waiting !

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Longtimer
Longtimer
in reply to Rosbud

Ours was exactly like that too.......

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Sandradsn

We don't need flu on top of pmr😩I talked myself into having the jab☺

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Hidden
Hidden
in reply to Sandradsn

Me too... I read the article someone posted about the 30 year old guy who was put into a coma because he almost died from the flu! 😱

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Grants148

I am sure that you will be OK mamici,most people are.

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Hidden
Hidden
in reply to Grants148

From your mouth to God's ear!!!!!! : )

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yogabonnie

The right thing!! Even if the flu jab is not so effective (like last year) instead of killing us it will just make us sick. I'll take that anyday!

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Hidden
Hidden
in reply to yogabonnie

Hope you're right YB, hope you're right!

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Telian
Telian
in reply to Hidden

Well if she’s not we won’t know anything!!! Have faith it’s not going to happen!

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Hidden
Hidden
in reply to Telian

True!

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yogabonnie

AND.. have you had the Pneumonia shot? You need that too. there is a fairly new one. Prev 13 or something. (don't trust MY memory!) but ask.

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Hidden
Hidden
in reply to yogabonnie

😱 . Noooooooooooo not another one!!!!!!

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Valnvaughan
Valnvaughan
in reply to Hidden

Pneumonia jab is a lifetime thing.....don't worry.....just ask for it......better to be protected. Valerie

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Hidden
Hidden
in reply to Valnvaughan

Hmmmmm?

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Green_girl

I had the pneumonia jab when I had PMR - I beat the PMR and then a few years later got pneumonia and ended up in hospital when on holiday in St Lucia! I brightly (well, as brightly as I could when feeling awful) said I couldn't have it, as I'd had the jab....the consultant said I could still get it, as the jab doesn't cover all types of the condition - just like the flu jab doesn't necessarily cover all types of flu...... sigh. So be warned and if you ever have a tight chest and have difficulty breathing go to see the GP!

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Hidden
Hidden
in reply to Green_girl

Oh gosh....

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Marymon

What you have had,hopefully, is a flu jab! Ching ching🛎

But, I hear Mad Cow Disease is back.🐮🐮

So we better listen carefully.

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Hidden
Hidden
in reply to Marymon

😡🐄 Ohhhhhhhh nooooooooo!

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Marymon
Marymon
in reply to Hidden

Only you know that????🤷‍♀️, but I’m sure whatever it was, you have done more than your fair share of payback by now.

Time you were left alone.

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Telian

You’ve done the right thing - it’s not unusual to get flu-like symptoms after the jab, that’s quite normal but doesn’t apply to everyone - I’ve been okay after mine and as has been said it’s better than getting the flu! I’m having Pneumonia & Shingles jab next week. The pneumonia is a once in a lifetime jab. It was meant to be as they say - he didn’t give you you an option- he perhaps could see you were indecisive yet knew you needed it! xxx

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Hidden
Hidden
in reply to Telian

The first thing I said to him was "I have never had the flu shot and it FREAKS ME OUT!" Yup he saw indecision and FEAR... lots of fear! 😱

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Asbeck
Asbeck
in reply to Telian

Ask someone on here who knows a lot. I'm not sure if the shingles shot is a live virus. If so were not supposed to take it.

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Telian
Telian
in reply to Asbeck

It’s already been checked out to go for it.

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Valnvaughan
Valnvaughan
in reply to Telian

The consensus on here is NOT to have Shingles live vaccine jab whilst recovering from PMR. Ask to wait till PMR in remission. It’s your body not the doctors!

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piglette

There was an article in the BMJ (British Medical Journal) this week saying that the non live vaccine is miles better than the old live vaccine. I am not sure how easily available it is though.

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Valnvaughan

Oh right. We’ll make sure you ask the question. Cheers Valerie

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GOOD_GRIEF

The right thing.

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Hollyseden

I'm also lined up to get my first ever flu jab on Tuesday. From what I've read on here before it's nothing to worry about. It will be interesting to see how my lead arms react though 😋 They already feel like they weigh a ton. Good job Mamici1, sorted!

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Hidden
Hidden
in reply to Hollyseden

Good luck..

Tip: Don't sit to close... they just JAB you!

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Sunset123

You did good 🌸

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Canygirl61

In recent years, I’ve been somewhat lackadaisical about getting the flu shot (US terminology). However, this year my rheumatologist suggested I get it— and I did. And, the shot is not a live virus, so no chance of getting the flu from it. Some people feel a little icky the day after, and most experience a sore arm at the injection sight. The science says, if you do contract the flu this season, you will have milder symptoms than if you hadn’t had the flu shot— you get a certain level of coverage if the shot is not exactly the strain of flu circulating.

Ps, several years ago I had the flu (confirmed via nasal swab). It was the sickest I’ve ever been in my entire life— it felt as if I were at death’s door. 😑

All the best!

Claire

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Hidden
Hidden
in reply to Canygirl61

Cheers Canygirl61... time will tell!

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Mstiles

I got mine yesterday at the rheumys office. So far my arm isn’t even sore. Last year I didn’t get the shot and was paranoid the whole time about going out of the house and getting the flu..I carried disinfectant wipes everywhere! So this year decided to get the shot. 😀

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Hidden
Hidden
in reply to Mstiles

Hmmmmmm, I hadn't actually decided.. but there ya go!

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Jamie345

I've had the flu jab every year and except for a sore arm nothing else hurt, I am pleased to say it worked for me! I have had shingles not very nice at all so anything they can give you I take. But for their first time in years my doctors have no flu vaccine so I'm going to have to try lloyds chemist I've been told they have stock in! Very strange that the surgeries don't have that's a puzzle, and no mention on the news or papers unless I've missed it? Good luck for everyone that we all don't get flu ,

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Hidden
Hidden
in reply to Jamie345

Fingers crossed I am as lucky as you have been Jamie345!

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Joaclp

No double negative. It's like, yes we have no bananas.

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Hidden
Hidden
in reply to Joaclp

Hahahahahahahahaha

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enan-illuc

Mamici,

Like you I have PMR and GCA and my Rheumy and GP told me to get the shot. She said that getting the Flu in my condition would not be good. I have gotten the shot for two years now and have not had a problem. I hope this helps.

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Hidden
Hidden
in reply to enan-illuc

It does, thank you! . Fingers crossed I have YOUR luck!

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Yellowbluebell

I suppose it’s like us taking the cat along to the vets for its yearly jabs!! I have had the flu jab for a few years because after my husband had major neuro surgery in 2010 his immunity was lowered due to the drugs he takes and we discovered him having flu jab only protected him to a certain level but if I got it as well he seemed immune to more germs!! Not sure how that worked but I ended up being booked for the jab every year along with him. Hopefully you will reap the benefits of this and be less susceptible to any grotty flu germs this winter as having pmr seems horrendous enough without flu.x

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Hidden
Hidden
in reply to Yellowbluebell

Hopefully yes.... that is the plan Yellowbluebell, thank you

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Theziggy

While you are being treated with prednisone, do not have any immunizations (vaccines) without your doctor's approval. Prednisone may lower your body's resistance and the vaccine may not work as well or you might get the infection the vaccine is meant to prevent. In addition, you should not be around other persons living in your household who receive live virus vaccines because there is a chance they could pass the virus on to you. Some examples of live vaccines include measles, mumps, influenza (nasal flu vaccine), poliovirus (oral form), rotavirus, and rubella. Do not get close to them and do not stay in the same room with them for very long. If you have questions about this, talk to your doctor.

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Hidden
Hidden
in reply to Theziggy

Thank TheZiggy, but everyone and their Mother were telling me to get the flu jab, including my GP! Too late now...I have had it! Hmmmm, I feel a bit like THE HULK...

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MamaBeagle
MamaBeagle
in reply to Hidden

It's turned you GREEN mamici???

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Hidden
Hidden
in reply to MamaBeagle

...like the HULK!

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PMRpro
PMRproModerator
in reply to Hidden

It isn't a live vaccine...

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Marijo1951

I've had the flu jab every year for more than 10 years. When I worked for Transport for London they provided it free to all employees who wanted it. This was because of self-interest rather than philanthropy - they didn't want Tube and bus services being suspended and stations closed because of flu bugs going wild among the staff and, of course, they couldn't just offer it to the operational staff, so those of us in the offices could have it too. Since I retired, I've made sure I have it every year. I've never had a bout of flu in all that time and I've never had a bad reaction to the jab.

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Hidden
Hidden
in reply to Marijo1951

Fingers crossed I will have the same good luck you've had!

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Angiejnz

Nah don't worry I have a jab every year including after being diagnosed this year. It's a dead virus they inject you with which for me, seems a bit of an oxymoron, why bother?? And before anyone gets on their podium to explain, I do know how it works....it just seems a weird concept

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Hidden
Hidden
in reply to Angiejnz

It's a done deal... no sense worrying. Although am I turning GREEN?

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MamaBeagle
MamaBeagle
in reply to Hidden

Oh my!!!! You are!!! I'm getting serious nerves about having it!!! In France we just got the prescription - I jabbed the OH and he jabbed me - job done - the cattle market system here seems barbaric!

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Hidden
Hidden
in reply to MamaBeagle

No, no! Kidding. Making a Hulk reference...

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Valnvaughan

Better than fighting flu.

"See a doctor" !!! Does not sound like our Saturday flu clinic.

Line up, like at school, with sleeve rolled up, over 65s to right, under 65 to right......then shuffle to nurses room quick ? Name, date of birth? Then jab and on to the next.......about 30 seconds each.

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Hidden
Hidden
in reply to Valnvaughan

Yeah, I am not sure they actually know I gas the jab.... they did not take my name, or put my DOB or anything into the computer! Weird.

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maria40

Oh dear! I was thinking of doing just the same thing tomorrow, asking questions about multiple allergies etc. not to mention PMR/GCA. I had a flu jab several years ago and had bad cold and persistent cough for weeks afterwards. Haven't had a jab since and didn't have cold or flu until last Christmas when wham! it hit me badly and had to delegate cooking Christmas lunch to my daughter. Now I'm afraid I'll be met with a monster GP brandishing equally monstrous needle. Hope you're feeling ok. Now I've read the article MamaBeagle referred to am even more uncertain. Oh dear again!

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AndrewT

You had a Flu jab, is what you have done. Good, you need one, we ALL do.

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