Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2018

Another major thing the medics don’t realise about pred.

One very important fact about prednisone that GPs fail to comprehend is that the initial huge dose they prescribe for suspected GCA (before “proper diagnosis,...

One very important fact about prednisone that GPs fail to comprehend is that the...

Suzita76

•6 years ago

19 Replies

Need a Bit Of Help

I'm new and feel blessed to find a chat room for PMR and GCA! When I had breast cancer 18 years ago, I was wonderful to partake in a chat room. It was...

I'm new and feel blessed to find a chat room for PMR and GCA! When I had breast...

Cutesparrow

•6 years ago

6 Replies

Could this be anxiety ??

Hi, I am now at 4mg Pred and am having spinal surgery in three week's time on 12th November. For about the last two weeks I have been having a pulsating...

Hi, I am now at 4mg Pred and am having spinal surgery in three week's time on...

Wenben

•6 years ago

14 Replies

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Heart problems

Had to have explorative surgery yesterday and recovery room doctor said my heart slowed down and skipped. Was aware of a skip - noticed this after taking...

Had to have explorative surgery yesterday and recovery room doctor said my heart...

peanuckle

•6 years ago

16 Replies

Coping With Family Stuff! Always A Challenge!

Great to see them. Managed to get a few words in! Still recovering!!!!!!!!!

Hidden

•6 years ago

14 Replies

Attendance allowance help

Who is the best person to ask for advice on how to fill in form?

panda22

•6 years ago

11 Replies

Major panic!!

Since the diagnosis of pmr I have taken to checking all four limbs with a gentle stretch before crawling out of bed after another night of no sleep and...

Since the diagnosis of pmr I have taken to checking all four limbs with a gentle...

Yellowbluebell

•6 years ago

24 Replies

Vascular ultrasound highly sensitive, specific for large-vessel GCA diagnosis

Wow! This looks promising!!!! Maybe Vascular ultrasound will surpass the Temporal Artery Biopsy (TAB) as the "gold standard," for diagnosing GCA? “We think...

Wow! This looks promising!!!! Maybe Vascular ultrasound will surpass the Tempor...

Hidden

•6 years ago

31 Replies

Is my adrenal gland working?

I’m down to 3mg after 4 years of Pred. for PMR. Should I ask for a test to see if my adrenal gland is working. Please would you tell me the symptoms I would...

I’m down to 3mg after 4 years of Pred. for PMR. Should I ask for a test to see i...

Tonysue

•6 years ago

13 Replies

How severe are the headaches with GCA?

Just wondering how severe the headaches are? Is the severity a symptom or can they be milder than that? I had trouble eating anything hard - couldn't eat...

Just wondering how severe the headaches are? Is the severity a symptom or can t...

Jane185

•6 years ago

19 Replies

Adcal query

Hi since my GP changed my Adcal from soluble to caplets Ive had the most appalling upset stomach and wind!!! Anyone else had this and will it settle down? I’ve...

Hi since my GP changed my Adcal from soluble to caplets Ive had the most appalli...

Wraysbury

•6 years ago

10 Replies

Bone marrow biopsy

Hi everyone I had a call from haematology department to request I have a bone marrow biopsy next Monday, the rheumatoligist I'm with(dr Rod Hughes) says that...

Hi everyone I had a call from haematology department to request I have a bone ma...

Jamie345

•6 years ago

28 Replies

Perils of prednisone

Perils of prednisone I have used prednisone extensively for PMR and GCA. Each health issue requires different decisions. I even had 3 days of IV prednisone for...

Perils of prednisone I have used prednisone extensively for PMR and GCA. Each he...

EmmaLaura

•6 years ago

20 Replies

Working with a functional medicine doctor

Greetings fellow PRM-GCA folks! I'm wondering if anyone on this site is currently working with a "functional medicine" or "integrative medicine" doctor to...

Greetings fellow PRM-GCA folks! I'm wondering if anyone on this site is current...

BeansHB

•6 years ago

9 Replies

Extreme fatigue when tapering

At the weekend I followed my rheumy's instructions and reduced my 15 mg prednisolone to 12.5 mg. I was scared that after several months of being pain-free, I...

At the weekend I followed my rheumy's instructions and reduced my 15 mg predniso...

Marijo1951

•6 years ago

33 Replies

When did your hair come back?

Hello everyone, I posted awhile ago about my hair loss. Two months ago I saw a dermatologist and then another dermatologist specializing in hair...

Hello everyone, I posted awhile ago about my hair loss. Two months ...

Mstiles

•6 years ago

49 Replies

FAO BonnyQuine!

Just wondered how far up the mountain you have progressed!

Primarose

•6 years ago

2 Replies

Pain without daily prednisone

Do many doctors let you stay on a daily dose of prednisone? My dr. will only prescribe it periodically when my herniated disc pain really flares, but daily I...

Do many doctors let you stay on a daily dose of prednisone? My dr. will only pr...

paininc

•6 years ago

4 Replies

Eyes

Can I write to jinasc, primarose, marijo and Sho-Sho who have all been kind enough to share their experiences with me? My own experience goes back six years....

Can I write to jinasc, primarose, marijo and Sho-Sho who have all been kind enou...

prunus

•6 years ago

12 Replies

Quick update - UTI and Synachten test enquiry!

Just quickupdate re my recent UTI post - I am not on a low dose "preventer" antibiotic for three months! Not ideal but hopefully it will work and let things...

Just quickupdate re my recent UTI post - I am not on a low dose "preventer" anti...

powerwalk

•6 years ago

18 Replies

80 to 20

Well... it took me 11 months, 10 days and a handful of hours to get here; and "yes," there were some ugly, setbacks along the way, but DAMN IT, here I am! And...

Well... it took me 11 months, 10 days and a handful of hours to get here; and "y...

Hidden

•6 years ago

72 Replies

Creams and gels???

Anyone come across a cream/gel that really works on OA? I’ve got my PMR under control and don’t like taking tablets for the OA. I’ve tried loads of them, but...

Anyone come across a cream/gel that really works on OA? I’ve got my PMR under c...

Constance13

•6 years ago

14 Replies

Question about sore gum

Hi all, just wondering if anyone else out there has had sore gums below teeth, since starting out with PMR and treatment? I have had one sore gum in same place...

Hi all, just wondering if anyone else out there has had sore gums below teeth, s...

Lonsdalelass

•6 years ago

7 Replies

Below 7 mg pred, how long should I persevere with a taper once bilateral pain arises?

When tapering below 7 mg pred, I understand that new bilateral pain may arise from either PMR or prednisolone withdrawal. How long should I put up with this...

When tapering below 7 mg pred, I understand that new bilateral pain may arise fr...

Joydeck

•6 years ago

12 Replies

A Matter of Interpretation

Husband is the one with PMR/GCA, diagnosed mid june and started on 40mg Pred daily. Currently following a taper similar to Dorset Lady's (I have it charted on...

Husband is the one with PMR/GCA, diagnosed mid june and started on 40mg Pred dai...

Nuff1

•6 years ago

7 Replies

Getting past doctors receptionists!!

I have discover the magic sentence you need to the doctors receptionist if you want a same day appt!! Earlier today discovered a weird rash half way around...

I have discover the magic sentence you need to the doctors receptionist if you ...

Yellowbluebell

•6 years ago

41 Replies

Cannabis Oil

Is it safe to use Cannabis oil when taking Prednisalone

rosie41

•6 years ago

8 Replies

OK! BORING!..FOLLOW ON!... POST!... UNIVERSITY STUDY!

Had a thank you e- mail for taking part! Of course it was a none reply one!! The next smart generation!!!!

Had a thank you e- mail for taking part! Of course it was a none reply one!! The...

Hidden

•6 years ago

4 Replies

Harlow Meet Up Group

We've just started a Meet Up Group in Harlow. We're small, only about six of us and we would like to expand our numbers so that we can spread the word and help...

We've just started a Meet Up Group in Harlow. We're small, only about six of us ...

Roy46

•6 years ago

5 Replies

Tea and chat, Woodbridge

Our next tea and chat meeting will be at Wyevale Garden Centre Grundisburgh Road Woodbridge IP13 6HX on Thursday 1st November at 2.00pm. Come and join us! Sue

Our next tea and chat meeting will be at Wyevale Garden Centre Grundisburgh Road...

Soosie56

•6 years ago

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2018

Another major thing the medics don’t realise about pred.

Need a Bit Of Help

Could this be anxiety ??

Heart problems

Coping With Family Stuff! Always A Challenge!

Attendance allowance help

Major panic!!

Vascular ultrasound highly sensitive, specific for large-vessel GCA diagnosis

Is my adrenal gland working?

How severe are the headaches with GCA?

Adcal query

Bone marrow biopsy

Perils of prednisone

Working with a functional medicine doctor

Extreme fatigue when tapering

When did your hair come back?

FAO BonnyQuine!

Pain without daily prednisone

Eyes

Quick update - UTI and Synachten test enquiry!

80 to 20

Creams and gels???

Question about sore gum

Below 7 mg pred, how long should I persevere with a taper once bilateral pain arises?

A Matter of Interpretation

Getting past doctors receptionists!!

Cannabis Oil

OK! BORING!..FOLLOW ON!... POST!... UNIVERSITY STUDY!

Harlow Meet Up Group

Tea and chat, Woodbridge

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