After being on Actemra since May 1st, I am now experiencing a full blown flare. At first it was like a miracle, my markers went down to normal and I was symptom free for weeks tapering from 6 to 5. Then I had that episode where my blood pressure went down to very low, which I attributed to adrenal insufficiency. Now that I have what is unmistakably a flare, I realize that that episode was due to a virus I had, which required my body to hace more prednisone, but I couldn't have adrenal insufficiency as I had been feeling great on less than the physiological dose of pred before that.
Im quite disappointed in the Actemra, I do hope that my rheumi at least, learns something from me taking it.
I have a ticket to visit Teo, my grandson who is now back at home in Shoreditch, London. The whole neighborhood is covered in graffiti! I love it but when I told my Londoner friend that my son had bought a house there, she said growing up, she was not allowed to go anywhere near the area. How times change!