Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,642 members • 38,792 posts

All posts for September 2018

Overwhelming Fatigue

I am now on 7.5mg of pred having been diagnosed with GCA -August 2016 - I am more fatigued now than in the early months of the illness, if I try to be more...

I am now on 7.5mg of pred having been diagnosed with GCA -August 2016 - I am m...

Sho-Sho

•6 years ago

31 Replies

Bondi Beach by Bus

Parker hasn’t really been anywhere with me since I had my new hip. Although I can walk well now I can’t go too far because of the fatigue of PMR. Parker also...

Parker hasn’t really been anywhere with me since I had my new hip. Although I ca...

Estellemac

•6 years ago

22 Replies

Alendronic acid & DEXA scan

At last I've found a gp who listens & is helpful, knew more about pmr than the other one who told me to massage myself with almond oil!!! Anyway had to see new...

At last I've found a gp who listens & is helpful, knew more about pmr than the o...

Bubbsyboo

•6 years ago

36 Replies

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Finally diagnosed

Today was my appointment with the rheumatoid doctor. I was diagnosed with PMR. Starting at 25mg of prednisone and also taking methotrexate because of the...

Today was my appointment with the rheumatoid doctor. I was diagnosed with PMR. S...

1958hurts

•6 years ago

12 Replies

cataract op

Thank you all very much i will sleep to night ,will let you know how i get on

ballyboy

•6 years ago

2 Replies

cataract op

Hi has any one had a cataract op and if so what was it like i am going in to morrow week i am worrying all ready , i do know my mum had a lot of trouble after...

Hi has any one had a cataract op and if so what was it like i am going in to mor...

ballyboy

•6 years ago

14 Replies

Does anyone get reoccurring vaginal thrush on steroids x any advice for solution tried pessaries keeps recurring

Been on steroids prednisone for PMR January 2016 to January 2018 all was well until July Had relapse back on steroids 15mg Having recurring vaginal thrush...

Been on steroids prednisone for PMR January 2016 to January 2018 all was well un...

Littlefish30

•6 years ago

15 Replies

Tech question

How do I add a photo please Thanks 😀

Cyclegirl54

•6 years ago

4 Replies

OMG ROUND 2...to me

Ye !!!!! Well today I became possessed by inspector clueso 😁an took a trip to retrieve my blood results as I remembered I’d had some 4 days before I went to...

Ye !!!!! Well today I became possessed by inspector clueso 😁an took a trip to r...

Monkeymate

•6 years ago

4 Replies

NHS. Win Court Ruling Against Drug Companies!

This has to be good news for most of us in the UK & beyond! We all want research & development to cure or aid our ailments! Have to respect their costs in...

This has to be good news for most of us in the UK & beyond! We all want research...

Hidden

•6 years ago

10 Replies

Response to "cramps post"

Thank you to all who responded so quickly. Apologies taken so long to say my thank yous .Life has been challenging. Brain not able to function well 😕

Thank you to all who responded so quickly. Apologies taken so long to say my tha...

dragonrider

•6 years ago

5 Replies

Methotrexate and ophthalmology follow up

Hi I had all the routine follow up tests done today in ophthalmology dept as I have low pressure glaucoma. The consultant looks at all our results and decides...

Hi I had all the routine follow up tests done today in ophthalmology dept as I h...

Wraysbury

•6 years ago

16 Replies

Red eyes

What is a home remedy for red eyes in the morning

Hidden

•6 years ago

12 Replies

PMR, prednisone and cataract surgery/slow healing?

Hello! My husband was diagnosed with PMR and RS3PE in July. His already bad cataracts degenerated quickly and he had his left eye operated on 2 weeks ago....

Hello! My husband was diagnosed with PMR and RS3PE in July. His already bad cat...

PMRwife

•6 years ago

7 Replies

Osteoporosis Update

Hi Following my recent diagnosis I saw my GP to discuss my risk factors. After scoring the overall opinion was still that I should take medication due to it...

Hi Following my recent diagnosis I saw my GP to discuss my risk factors. After s...

Mitziecat

•6 years ago

17 Replies

The Windy Side: Wild Weather at Benjamin Mansions - and More Change on the Journey? ;-)

Greetings All, from WSM on the south west coast of the UK on a VERY wet and blustery Autumn evening. Well what to say? Only that it's blowing a Bl**dy Hooley...

Greetings All, from WSM on the south west coast of the UK on a VERY wet and blus...

markbenjamin57

•6 years ago

53 Replies

PMR and Celebrex

Why doesn't some of the anti-inflammatory drugs like celebrex work for pmr? Seems like they would be less harmful to the body.

Why doesn't some of the anti-inflammatory drugs like celebrex work for pmr? Seem...

Linny3

•6 years ago

11 Replies

Has anyone seen a pattern?

I know, that's exactly what is so frustrating about this condition... there prob isn't one. My two year anniversary is coming up (still on 2 mg) which is how...

I know, that's exactly what is so frustrating about this condition... there prob...

ponai

•6 years ago

19 Replies

Knee problems

I have had PMR for about five years and it is reasonably well controlled with 5mg of Medrol. Recently I have been having problems with swollen and sore knees....

I have had PMR for about five years and it is reasonably well controlled with 5m...

Loco99

•6 years ago

14 Replies

Contrast scan

I remember seeing something here about dye being injected for a scan. Was this ok with PMR?

I remember seeing something here about dye being injected for a scan. Was this o...

aladymo

•6 years ago

14 Replies

New symptom Itching

High all, haven’t been on for a while been trying so hard to get off the pred I have been stuck in 4mg for so long , I was diagnosed with PMR in June 2015...

High all, haven’t been on for a while been trying so hard to get off the pred I ...

Gaz227

•6 years ago

58 Replies

Dental Work

I have arranged with dentist to have 6 old veneers replaced. Has anyone had this type of work done while on Prednisolone? I am currently on 7.5mg. I'd be...

I have arranged with dentist to have 6 old veneers replaced. Has anyone had thi...

Maur1

•6 years ago

10 Replies

Zolendronate (or also called Reclast in U.S.A.)

This site has been so helpful and I now have a question. I had my first infusion of Zolendronate a year ago for my Osteoporosis. I am currently down to 5mg...

This site has been so helpful and I now have a question. I had my first infusio...

Stella3

•6 years ago

5 Replies

Membership and tapering!

Just filled in my membership form and about to post tomorrow! Finally got time to do some paperwork catchup. About time I paid back for the excellent support...

Just filled in my membership form and about to post tomorrow! Finally got time t...

Pongo13

•6 years ago

7 Replies

Question for DorsetLady and others who were on 80 mg prednisone

Did anyone feel severe fatigue on 80 mg prednisone? DorsetLady? Anybody else?

People1

•6 years ago

53 Replies

Parotid gland swelling

Anyone have issues with parotid gland swelling and pain when you eat with GCA/ PMR?

Anyone have issues with parotid gland swelling and pain when you eat with GCA/ P...

People1

•6 years ago

18 Replies

Zinc

Since being diagnosed with macular degeneration recently I have been taking a supplement containing lutein. It also contains zinc. I seem to remember...

Since being diagnosed with macular degeneration recently I have been taking a su...

DDKRM

•6 years ago

5 Replies

Arm and leg fatigue

Anyone’s arms and legs feel very heavy when trying to do simple tasks like fold clothes? Not sure if this is the 80 mg of prednisone or Symptoms of GCA/PMA.

Anyone’s arms and legs feel very heavy when trying to do simple tasks like fold ...

People1

•6 years ago

26 Replies

Questions about jaw fatigue and tapering down

Did anyone notice after GCA that your jaws get very tired if you have to talk at length. I attempted a conference call today for work (I work from home, thank...

Did anyone notice after GCA that your jaws get very tired if you have to talk at...

People1

•6 years ago

5 Replies

Nature Blowing & The Trees Dancing!

Maybe not a hurricane but a different Bournville park today! Bins & paper flying around on the way! Water fowl very hungry,no disputes today! Roaring...

Maybe not a hurricane but a different Bournville park today! Bins & paper flying...

Hidden

•6 years ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

Overwhelming Fatigue

Bondi Beach by Bus

Alendronic acid & DEXA scan

Finally diagnosed

cataract op

cataract op

Does anyone get reoccurring vaginal thrush on steroids x any advice for solution tried pessaries keeps recurring

Tech question

OMG ROUND 2...to me

NHS. Win Court Ruling Against Drug Companies!

Response to "cramps post"

Methotrexate and ophthalmology follow up

Red eyes

PMR, prednisone and cataract surgery/slow healing?

Osteoporosis Update

The Windy Side: Wild Weather at Benjamin Mansions - and More Change on the Journey? ;-)

PMR and Celebrex

Has anyone seen a pattern?

Knee problems

Contrast scan

New symptom Itching

Dental Work

Zolendronate (or also called Reclast in U.S.A.)

Membership and tapering!

Question for DorsetLady and others who were on 80 mg prednisone

Parotid gland swelling

Zinc

Arm and leg fatigue

Questions about jaw fatigue and tapering down

Nature Blowing & The Trees Dancing!

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