Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for August 2018

Today or not today

Well interesting day today, had Dentist appointment at 2pm so arranged cover at the cattery. Drove to Winchester, parked up at bottom of town, as it’s the...

Well interesting day today, had Dentist appointment at 2pm so arranged cover at...

9lives

•6 years ago

26 Replies

Very worried now; going backwards on pred taper. Mtx being considered...

PMR diagnosed July 2018 after 2 years of symptoms. Inflammatory markers normal. Immediate and dramatic response to 4 days @15mg pred. Pain free, able to move...

PMR diagnosed July 2018 after 2 years of symptoms. Inflammatory markers normal. ...

Hidden

•6 years ago

13 Replies

PMR or is this fibromyalgia?

Sorry for the long post! I was discharged from my rhumy on a reducing pred and controlled symptoms last year. Yay! Everyone applauds 😀 However I asked my GP...

Sorry for the long post! I was discharged from my rhumy on a reducing pred and ...

sealine30

•6 years ago

5 Replies

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A Photo of my Nurse - For Daisychain12

I promised to send a picture of Teddy to Daisychain12 - Linda. Apparently you have to use a new post for this. here he is Linda - What does Joey think? Teddy...

I promised to send a picture of Teddy to Daisychain12 - Linda. Apparently you h...

arthur463

•6 years ago

34 Replies

Never too late

Hi all, haven’t been posting here in a while. I have gotten into a rhythm with my PMR thanks to all the great advice here and have started tapering to 5mg this...

Hi all, haven’t been posting here in a while. I have gotten into a rhythm with m...

Allsgrandso

•6 years ago

19 Replies

ideas please. Warfarin

Well its 4 weeks now since I came of Preds. Such a struggle to maintain a daily life. The side affects of Pred now gone which is a bonus but pain aching...

Well its 4 weeks now since I came of Preds. Such a struggle to maintain a dail...

Valentina1

•6 years ago

1 Reply

Hair Loss - Feeling Desperate

UPDATE I was tested for vitamin and mineral deficiencies. I was low in vitamin D. The hair stopped falling a couple of days after I started taking vitamin D....

UPDATE I was tested for vitamin and mineral deficiencies. I was low in vitamin D...

Peep44

•6 years ago

37 Replies

Blood tests

Just wondering... I take my coated Pred at 7am. If I have blood tests at 8am (when it has not yet taken effect) will I get different ESR/ CRP results than if...

Just wondering... I take my coated Pred at 7am. If I have blood tests at 8am (w...

JanetRosslyn

•6 years ago

10 Replies

New GCA symptom - scalp tenderness

I'm pretty new to all of this and understand it's different for each person and even different every day. Symptoms of PMR 3/18 , diagnosed 4/18 (needed 25 mg...

I'm pretty new to all of this and understand it's different for each person and ...

Viola1

•6 years ago

7 Replies

Rogaine and hair loss

Has anyone tried Rogaine, (minoxidil), for hair loss? I was diagnosed withPMR/GCA in January and put on 40 mg of pred, now at 18.75, and hair loss...

Has anyone tried Rogaine, (minoxidil), for hair loss? I was diagnosed wi...

Mstiles

•6 years ago

35 Replies

Wrongly diagnosed!😡

Hi there! I haven't posted anything since last May when I was on holiday in Italy and had gone up to 20mg of prednisolone to help me enjoy my holiday. I had...

Hi there! I haven't posted anything since last May when I was on holiday in Ital...

Suin555

•6 years ago

13 Replies

Had to post....

Ive been a member of this group for maybe a year. The reason I joined is because I had a scare that my PMR was returning. I have never posted but I am...

Ive been a member of this group for maybe a year. The reason I joined is becaus...

peanutann

•6 years ago

34 Replies

Can anyone tell me what is causing my muscles to spasm

I have had a 2nd episode of this after reducing, first from 40mg to 35mg happened after 3 days. Had to have paramedics as it was so bad. Just reduced from...

I have had a 2nd episode of this after reducing, first from 40mg to 35mg happene...

Berylholley

•6 years ago

7 Replies

Vit B Complex

Is anyone else taking Vit. B Complex to help combat the effects of taking Omeprazole. I have just read an article that suggested taking it when you are taking...

Is anyone else taking Vit. B Complex to help combat the effects of taking Omepra...

Marcy47

•6 years ago

12 Replies

Long term pred usage?

Had PMR for four years now. Reduced preds to 2 mg's but a wee bit sore in the morning 4 mg's seems to be the best dosage. What is the harm in sticking at 4 for...

Had PMR for four years now. Reduced preds to 2 mg's but a wee bit sore in the mo...

Angelpippa

•6 years ago

4 Replies

Actamera

Hi everyone, Kentishgirl here, havn't been on for a while, things have been going good, until last Wednesday!! My Rhumatologist tells me that Prednisone is not...

Hi everyone, Kentishgirl here, havn't been on for a while, things have been goin...

Kentishgirl

•6 years ago

7 Replies

Just a lot scared

I don't know who posted a Just scared. But I am a lot scared at the moment. Where do I start. Sorry Melissa . I don't have an appropriate picture for you. Wish...

I don't know who posted a Just scared. But I am a lot scared at the moment. Wher...

morrison

•6 years ago

13 Replies

Just a lot scared

I don't know who posted a Just scared. But I am a lot scared at the moment. Where do I start. Sorry Melissa . I don't have an appropriate picture for you. Wish...

I don't know who posted a Just scared. But I am a lot scared at the moment. Wher...

morrison

•6 years ago

Be the first to reply

What now? Knee pain.

I have complained a few times of pains in my knees so did get X-rays done. Signs of sclerosis and effusion which I think is interpretation of radiographer and...

I have complained a few times of pains in my knees so did get X-rays done. Signs...

Lochy

•6 years ago

11 Replies

Family visit exhaustion

Hi - my son in law brought my 3 grandchildren aged 6, 11 and 12 and stayed with me for 10 days and he stayed too and also their 4 month old puppy who is not...

Hi - my son in law brought my 3 grandchildren aged 6, 11 and 12 and stayed with ...

cassie1208

•6 years ago

64 Replies

Gabapentin

Yes...I take 300mg at bedtime. Don't Really know its effects, but it may help with slow wave sleep.

Yes...I take 300mg at bedtime. Don't Really know its effects, but it may help wi...

Kenneth77

•6 years ago

6 Replies

East Midlands support group meeting

We have an East Midlands PMR/GCA support group meeting on Saturday 15th September at 11.00 at the Catholic church hall, Our Ladies of Victories, Southwell,...

We have an East Midlands PMR/GCA support group meeting on Saturday 15th Septembe...

Hidden

•6 years ago

Be the first to reply

Apple Cider

Just wondering if taking apple cider tables could/would, interfere with my medication ? Some one said to me due to been on high tec medication (Actemra) that...

Just wondering if taking apple cider tables could/would, interfere with my medi...

Lucylooloo

•6 years ago

11 Replies

Best healthy course of action for my bones

Hi! Hopefully my posts will show up now. I was given alendronic acid by my doc and after a short while, I stopped taking it because of some unsettling...

Hi! Hopefully my posts will show up now. I was given alendronic acid by my doc a...

Calicocat18

•6 years ago

15 Replies

At my wits end

Any advice appreciated. Diagnosed Feb with PMR. March with GCA. Started on 60mg. Was at 45mg 8 days, after up and down trying to taper, going well (I...

Any advice appreciated. Diagnosed Feb with PMR. March with GCA. Started on 6...

gtate1914

•6 years ago

42 Replies

Just scared

I guess my biggest fear is the loss of me as I was.... fun outgoing physically able ... will i ever get me back or am I gone forever.

I guess my biggest fear is the loss of me as I was.... fun outgoing physically a...

TJ03

•6 years ago

45 Replies

Starting prednisone tomorrow

Hi there. I don't think the previous message posted so I'm trying again. As I said, clutching at straws. The doctor has prescribed 3×5mg prednisone for two...

Hi there. I don't think the previous message posted so I'm trying again. As I s...

KinnearD

•6 years ago

42 Replies

Still on 50 mg coz no rheumy.

Well i saw my doc yesterday re GCA and beig on such high steroids stil 50mg. He doesn’t want me to lower them until i grt rheumy appt. i rxpainef the clinic...

Well i saw my doc yesterday re GCA and beig on such high steroids stil 50mg. He ...

Alness

•6 years ago

18 Replies

Switching from methprednisolone to prednisone and back within 3 weeks?

I feel like i'm dying. Had PMR for 15 mos. and since my rhuemy didn't know how to lower 4mg of prednisolone she switched me to prednisone. I can barely walk...

I feel like i'm dying. Had PMR for 15 mos. and since my rhuemy didn't know how t...

Kenneth77

•6 years ago

9 Replies

PMR and difficulty tapering prednisone.

Sorry, I haven't been on in a while. I was diagnosed dec 2017 PMR . Put on 15 mg prednisone. Now, 8 months later I'm still struggling to taper. I've been...

Sorry, I haven't been on in a while. I was diagnosed dec 2017 PMR . Put on 15 mg...

Sunshinemaggie9

•6 years ago

40 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2018

Today or not today

Very worried now; going backwards on pred taper. Mtx being considered...

PMR or is this fibromyalgia?

A Photo of my Nurse - For Daisychain12

Never too late

ideas please. Warfarin

Hair Loss - Feeling Desperate

Blood tests

New GCA symptom - scalp tenderness

Rogaine and hair loss

Wrongly diagnosed!😡

Had to post....

Can anyone tell me what is causing my muscles to spasm

Vit B Complex

Long term pred usage?

Actamera

Just a lot scared

Just a lot scared

What now? Knee pain.

Family visit exhaustion

Gabapentin

East Midlands support group meeting

Apple Cider

Best healthy course of action for my bones

At my wits end

Just scared

Starting prednisone tomorrow

Still on 50 mg coz no rheumy.

Switching from methprednisolone to prednisone and back within 3 weeks?

PMR and difficulty tapering prednisone.

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