Best healthy course of action for my bones - PMRGCAuk

PMRGCAuk

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Best healthy course of action for my bones

Calicocat18 profile image
15 Replies

Hi! Hopefully my posts will show up now. I was given alendronic acid by my doc and after a short while, I stopped taking it because of some unsettling symptoms. If like to take some supplements, but not a whole pharmaceutical, and works appreciate recommendations of the most crucial. Also, I seem to have sciatica and experience some pain from joints or bones during the night.

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Calicocat18 profile image
Calicocat18
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15 Replies
PMRpro profile image
PMRproAmbassador

Do you have PMR or GCA? I see you have no information on your profile. Have you discussed the symptoms you describe with your GP? And had you had a dexascan before your doctor put you on alendronic acid?

Calicocat18 profile image
Calicocat18 in reply toPMRpro

Now is the time to confess my ignorance. What is PMR and GCR? I came into this forum to find info on osteoporosis and find it is so much more here. Yes, I described symotoms, mostly haw pain to my doctor. In due for a bone scan, next year and that's all I've had (maybe last year). I haven't been prescribed anything but I did ask her PA about a blood test to find my level of D.

Rugger profile image
Rugger in reply toCalicocat18

PMR is Polymyalgia Rheumatica. GCA is Giant Cell Arteritis - also known as Temporal arteritis. Most of us on this forum have either one or both of these conditions and the prednisone / prednisolone that we take to control the inflammation can affect our bones.

Calicocat18 profile image
Calicocat18 in reply toRugger

Thanks.

PMRpro profile image
PMRproAmbassador in reply toCalicocat18

Now you know why I asked ;-)

Why does your doctor want you to take alendonic acid if you aren't taking corticosteroids and haven't had a dexascan that shows you have reduced bone density? Or did it? Pain isn't a sure sign of osteoporosis - I wouldn't take AA without proof. Via a dexascan.

Calicocat18 profile image
Calicocat18 in reply toPMRpro

My last bone density scan--was this what you meant by dexascan--showed a deteriation from osteopenia. Asks, my mother Abe sister have osteoporosis. Know mother is in her 90's but a few years ago developed stress fractures. That is a concern for me. However, the AA doesn't feel like the right path at all.

PMRpro profile image
PMRproAmbassador in reply toCalicocat18

Numbers would be helpful. But HeronNS has a very good post about density somewhere. She got her t-score from -2.0 (requiring treatment) to -1.6 (no treatment required) using just supplements, weight-bearing exercise using a weighted jacket and good diet.

healthunlocked.com/user/her...

healthunlocked.com/pmrgcauk...

Omanain profile image
Omanain in reply toPMRpro

I have just read HeronNs's marvellous post about bone density! She has worked so hard and brought together such a lot of useful information in an understandable way. Anyone worried about their bone health would be advised to read it. I had never heard of a weight bearing vest before. Because of another condition it is very difficult for me to get the sort of exercise necessary for strong bones, but a weight bearing vest sounds ideal. Just hope they are available in the UK.

PMRpro profile image
PMRproAmbassador in reply toOmanain

Put stones in your pockets ;-)

Omanain profile image
Omanain in reply toPMRpro

I didn't think of that!! I looked at the jackets but they are very expensive. Thanks

PMRpro profile image
PMRproAmbassador in reply toOmanain

Better not take some off the beach - apparently resorts are getting iffy about it! ;-)

It is one thing I have to be grateful about - I had always been a well-built young woman, builds good bones!!!!

dartmoorlass profile image
dartmoorlass in reply toPMRpro

Perhaps you're joking PMRpro, bit it's an excellent idea for me. I can't walk much now except around several garden paths but every little helps. A few bits of Dartmoor granite strategically placed in various pockets will be my future walking pals - never mind the radon!!! Thanks for the tip.

PMRpro profile image
PMRproAmbassador in reply todartmoorlass

No - wasn't joking at all. I'm told by my Scottish friends I could educate Aberdonians! Why pay a fortune for a weighted jacket if adding some weight in another way works. The weighted jackets probably look better and may well hold more weights that are smaller and better distributed but carefully placed stones will achieve the same initially. Me - I don't need any extra...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi,

Hopefully you were prescribed VitaminD &Calcium supplement. Many also take Magnesium and Vitamin K2.

Our resident supplements guru HeronNS will no doubt be along soon with further info.

piglette profile image
piglette

I believe weight bearing exercise are also a good idea. Some people buy weight jackets or equivalent. Diet is also helpful.

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