Haven't posted for a while. I'm struggling at 15mg of pred, no longer taking hydroxychloroquine. The last time I saw the rheumy I had got down to 12mg of pred, well I say got down I was not comfortable at this level. My hips now are a real pain and wake me up early mornings. I manage to do bits and a bits and pieces around but am struggling more lately. I've had had sinusitis for the last two weeks so sleeping has been a real issue.
I just don't know what to do next, 3 years on and still in almost constant pain. The muscles in my back are very tender and if I turn in a certain way I get a very sharp pain. My left hand has decided that it wants to join in and is painful all the time, it's like toothache in the knuckles if that makes sense.
I have been taking Zapain at night as the doctor suggested it might help and I think it is as I usually wake after about 4 hrs as its worn off.
Very frustrated with this illness and just can't seem to get on top of it! Feeling like crap and being told you look well is not helpful! I've also put on a bit of weight which has bugged me, after losing so much, but it's the I feel sorry for myself so I'll eat something nice syndrome.
So I'm guessing no one has any magic wands spare they can send? Otherwise I'm just not sure what the hell to do next.