Down to 3 mg this week feeling not too bad at all in fact pleased with myself as I am able to help my daughter who has developed a disease which means she is dizzy and finds it difficult walking without holding on, no driving and must not work. Then out of the blue my daughter in law phones my son has perforated bowel, they have removed his colon and found cancer has touched his liver. I can’t. Believe it is all happening as six years ago my eldest son (he was 44). He died suddenly with heart failure . How many of my precious children does God want when he could have my life in exchange. They are starting chemo on him next week. I don’t know a lot about the illness but I suppose miracles do happen. Sorry just had to tell someone my devastating news.
How can it be : Down to 3 mg this week feeling not... - PMRGCAuk
How can it be
My heart goes out to you, keep us posted on here how your son is....and yourself.......🙏
I am so very sorry. There are no words to ease your pain, grief and confusion. There is nothing I can say to make you feel better or to give you the assurance you desire. All I can do is remind you... "So far you've survived 100% of your worst days. You're doing great!"
You will get though this.. all of this. Breath. Clear your mind. Try to relax.
If you need to vent or a shoulder... we are all here.
How truly awful.............I just read this and am fighting back the tears.........what can i say except sending lots of support through the ether.
My thoughts are with you at this very stressful timex
So sorry, my thoughts with you and your family.
Thank you everyone
Sending prayers for you and your family
I can't even imagine the pain you must be going through, and to have to remain strong through all of it, to be there for your children.
Cancer is no longer a death sentence, More and more people are living many years with stage 4 cancer. Watching a loved one go through chemo is also so difficult.
Maybe you should up your dose of Prednisone for a while just to void a flare.
Wishing you all the best..
Gaijin is right , cancer is no longer a death sentence, as I well know. I now have stage 4 medistatic breast cancer in lung , they found it incidentally became of a blood clot I developed in my neck. They have so many new drug therapies out there today, much different then it use to be. I’m on my third round and not truly sick like the old days of chemotherapy. Yes, it’s very scary but take a deep breath n be there for your children. It’s so hard along with the PMR. My thoughts n prayers are with you Perky and remember one step at a time. Keep us posted when you have the time energy 😍😢
Hello
I am just so sad to read this, why does everything happen at once? Firstly you must maintain your health & would suggest remaining on the dose you are on, if not increasing it depending on how you feel.
There are some very good treatments available & although Chemo can be hard there is much improvement in the treating of the side effects.
I pray you will find the strength to shoulder all this & that you keep well, remember this is not the time to reduce your Pred at all.
Thinking of You
Mrs N 💐
Devastating news, I'm so very sorry especially as you've already had such sadness to cope with. Sometimes you wonder just how much suffering you, and your loved ones, can bear but somehow our own inner strength and the love of family keeps us going. We are also here, this community of supportive virtual friends who know what it is like to deal with your own illness at a time like this - please keep us updated when you can. x
I am so sorry to hear of your family's struggles. Will be keeping you in thought and prayer. As hard as it is try to live just one day at a time ❤️
Sending love and prayers for you and your family
So sorry to hear about your family’s troubles. You must feel helpless, and devastated. Sometimes you just wonder if life can throw anything more at you, but although we can’t help physically we can send virtual hugs and best wishes to all. 💕
Everyone is so kind. Thank you...unfortunately my son and his wife live in Truro and I am I Newcastle he is not one that likes a fuss so me turning up would not be the answer. My daughter lives in Newcastle so if needs be we could fly down to Newquay but at the moment she couldn’t travel with her labrinthitus. No easy answer is there but am now trying to look on the bright side as you say things are moving forward in the world of medication and he was a fit man, was a fire officer until he retired last year he is now58. Gosh that makes me feel old !
Hello Perkey - I am so sorry to read about your devastating news. My problems now feel very small indeed.
I wish all your family the strength to endure and I do hope a miracle, or two, come your way xxx
Hi perky
So sorry for all this worried that has come your way.
Sending love and virtual hugs and hope they help 💐🌹🌺❤️
I'm so sorry. Things will get better - and liver cancer is very treatable these days.
Sometimes life throws so much at us that we are left like a bewildered wreck. This latest news about your son must be devastating. Your children are very fortunate to have you as a mother. I do believe in miracles and I pray that one happens for your family.
Well done with your taper! Don’t forget to take care of yourself in all this and to be mindful of the impact stress has on your own illness.
God bless you now and always. Let us know what happens with you and your children. 🌸🌸
Thank you PMRpro glad to know there is hope. Thank you too Sheffield Jane will let you all know when treatment starts they now are building him up as the operation to remove Colon left him weak . I think his previous very good health has helped him.
So sorry to hear of all your really bad news, every one has given you very good advice concerning your pred so I will just send my love and good wishes and virtual jugs to add to all the others, Jannie xx
I am really sorry to hear this devastating news. Yes miracles do happen my friends husband had lymphoma, it had invaded his spleen so had to have it removed and part of his stomach. 6 months later he is cancer free and has just walked his daughter down the aisle at her wedding. So please take comfort miracles do happen. You will be in my thoughts and prayers. Lots of love to you and your family x
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