Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,031 posts

All posts for June 2018

Massage - never again!!

Thought I’d try massages again. I gave them up a couple of years ago, but down to 3mg now and thought I’d give it another try. The first one was great, a...

Thought I’d try massages again. I gave them up a couple of years ago, but down ...

Constance13

•6 years ago

19 Replies

AGM London September 2018

Just seen this post and wanted to register then 'lost' anyone - has anyone seen it and where can I find it again..when I typed in the search box it came back...

Just seen this post and wanted to register then 'lost' anyone - has anyone seen ...

Telian

•6 years ago

25 Replies

Always Send That Sample Back.

I recently attended my 30 month follow up for my Cancer Bowel Operation. It reminded me of the importance of the NHS Bowel Cancer Screening Programme. I...

I recently attended my 30 month follow up for my Cancer Bowel Operation. It remi...

Hidden

•6 years ago

41 Replies

Want to take advantage of all our features? Just log in!

I was diagnosed with PMR/suspected GCA in May. Felt very well on 40mg

DR told me to reduce to 35mg and 6 days lager wsnt down with lower back problem

marigolds

•6 years ago

3 Replies

The Truth About Carbs..

I suspect this may have been mentioned elsewhere, but just in case. There was a fascinating programme about carbs on BBC. You can get it on catch up "The Truth...

I suspect this may have been mentioned elsewhere, but just in case. There was a ...

Ronnie101

•6 years ago

2 Replies

Splitting dose

I am wondering if anyone hsd tried splitting their dose of Predisalone?

marigolds

•6 years ago

16 Replies

Could this be wheat intolerance and not PMR at all?

Hi Folks, I am beginning to question my diagnosis altogether. I was diagnosed with PMR 5 years ago and have been on and off Prednisone 3 times. My sister...

Hi Folks, I am beginning to question my diagnosis altogether. I was diagnosed wi...

SheilasPMR

•6 years ago

31 Replies

Logging on

Unable to log on for the last 3days asks for my email but still not able to log on

Unable to log on for the last 3days asks for my email but still not able to log...

Rose1bud

•6 years ago

3 Replies

Problems logging on

Unable to log on keeps asking for. Y password for

Rose1bud

•6 years ago

2 Replies

Update to symptoms dropping from 30 to 25 and weird visual symptom

Hello everyone I’m so discouraged, will this ever get better? Since January when diagnosed I don’t seem to be getting any better, feeling and...

Hello everyone I’m so discouraged, will this ever get better? Since J...

Mstiles

•6 years ago

33 Replies

Research volunteers

Research frustration, I have tried several times to e mail Susan pugmire@ghnt.nhs.uk to join the research program for PMR/GCA, it just throws it back,saying...

Research frustration, I have tried several times to e mail Susan pugmire@ghnt.nh...

VAl4266

•6 years ago

6 Replies

Reducing prednisone

I have been taking pred since August 2017 I started with 15 and reduced monthly down to 8 when the pain returned. I went back up to 8 then 9 and in Dec 15. I...

I have been taking pred since August 2017 I started with 15 and reduced monthly ...

Maryfrombury

•6 years ago

6 Replies

What is it ????

Hi all: So I’ve been having pain in left temporal artery now since mid April and scalp tenderness. Went to ER a few times and drs suspect its GCA. I’m...

Hi all: So I’ve been having pain in left temporal artery now since mid April an...

Maggiemuffins

•6 years ago

4 Replies

Why do my legs ache so much I only walk a short distance and I have to stop the pain is all down the back of my legs

No other pain apart from that

Rose1bud

•6 years ago

11 Replies

Feels like life is falling apart

Saw the internist yesterday and he is referring me to a Rheumatologist. Feel like my life is falling apart. Can't handle stress at all. My prednisone is down...

Saw the internist yesterday and he is referring me to a Rheumatologist. Feel l...

AverilG

•6 years ago

10 Replies

Dovetailing

Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan...

Wow getting red hair to warn bad news to stay away is certainly working. Saw ost...

Angiejnz

•6 years ago

6 Replies

Still holding

My crp is stuck at 14 seems like forever. I got down to 11 msg and am now back at 12.5. The only positive thing about this is I didn’t have to go back up to...

My crp is stuck at 14 seems like forever. I got down to 11 msg and am now back ...

Hidden

•6 years ago

11 Replies

Voodoo

Had a little trouble getting to sleep last night, which is unusual these days. Might have something to do with the fact that we looked at a potential new...

Had a little trouble getting to sleep last night, which is unusual these days. ...

HeronNS

•6 years ago

17 Replies

Hair condition

I have been on prednisolone for 15 months now and went for a perm today. The hairdresser said I had some hair breakages which she thought could be due to the...

I have been on prednisolone for 15 months now and went for a perm today. The hai...

Koalajane

•6 years ago

37 Replies

Yay good bones

Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back...

Because I had a bone marrow transplant in the 90's I have a density scan every 5...

Angiejnz

•6 years ago

9 Replies

tapering

I've had my rheumy and gp tell me that all symptoms do not have be gone before tapering down. I still have niggles, light and brief head, eye discomfort/ache...

I've had my rheumy and gp tell me that all symptoms do not have be gone before t...

gtate1914

•6 years ago

8 Replies

Phone call with Doctor and Risedronate

So I had my follow up phone call with my doc this morning to discuss my recent rheumy appointment. She agreed to give me a copy of his letter as I haven’t...

So I had my follow up phone call with my doc this morning to discuss my recent r...

peace_lover

•6 years ago

9 Replies

Raised Blood Sugar

I have been on Prednisolone for about two and a half years for pmr. I started on 15 mg . Have had a few ups and downs but am now slowly reducing successfully...

I have been on Prednisolone for about two and a half years for pmr. I started o...

Susieblu

•6 years ago

25 Replies

Rib Pain. Photo

Sitting here with pain in my ribs on the left side. I have it fairly often. What on earth is it.

Sitting here with pain in my ribs on the left side. I have it fairly often. What...

Cheshy72

•6 years ago

13 Replies

More Photos

Looks like I can only do one at a time. The house looks very small from the front but opens out to a spacious back area.

Looks like I can only do one at a time. The house looks very small from the fron...

Cheshy72

•6 years ago

3 Replies

Visit to Pharmacy and photos

Spoke to the Pharmacist and he gave me Calcium tablets combined with Vitamin D. Hopefully that combined with calcium rich food that is also not fattening will...

Spoke to the Pharmacist and he gave me Calcium tablets combined with Vitamin D. ...

Cheshy72

•6 years ago

4 Replies

What’s a Girl to Do?

I am awaiting another (triaged) referral to rheumatology as recommended by the endocrinologist I have seen for many years. I was rejected by rheumatology on...

I am awaiting another (triaged) referral to rheumatology as recommended by the e...

Pipalina

•6 years ago

9 Replies

Call with my doctor today

Well today was the time for my regular doctors call. All going good, the race to 6 is going well, due to start my next reduction on the 21st. I think I'll...

Well today was the time for my regular doctors call. All going good, the race to...

JulianJ

•6 years ago

13 Replies

results dexa and abdominal scan....

DXA....t-score -2.7,left hip -2.5,left fem neck .1.7. Osteo of lumbar spine, knew that, And total left hip. Significant increase 12% in lumbar spine, and...

DXA....t-score -2.7,left hip -2.5,left fem neck .1.7. Osteo of lumbar spine, kne...

karools16

•6 years ago

8 Replies

BIRD FEEDER

As requested picture of the Feeders I have as the plastic that encloses the seed is strong and more robust than the one I spoke about in the earlier reply to...

As requested picture of the Feeders I have as the plastic that encloses the seed...

Hidden

•6 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2018

Massage - never again!!

AGM London September 2018

Always Send That Sample Back.

I was diagnosed with PMR/suspected GCA in May. Felt very well on 40mg

The Truth About Carbs..

Splitting dose

Could this be wheat intolerance and not PMR at all?

Logging on

Problems logging on

Update to symptoms dropping from 30 to 25 and weird visual symptom

Research volunteers

Reducing prednisone

What is it ????

Why do my legs ache so much I only walk a short distance and I have to stop the pain is all down the back of my legs

Feels like life is falling apart

Dovetailing

Still holding

Voodoo

Hair condition

Yay good bones

tapering

Phone call with Doctor and Risedronate

Raised Blood Sugar

Rib Pain. Photo

More Photos

Visit to Pharmacy and photos

What’s a Girl to Do?

Call with my doctor today

results dexa and abdominal scan....

BIRD FEEDER

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive