My crp is stuck at 14 seems like forever. I got down to 11 msg and am now back at 12.5. The only positive thing about this is I didn’t have to go back up to 20 which is what normally has happened.
My absolutely wonderful GP is leaving so now I have to break in a new doctor. My Rhumy is an older man set in his ways so it is not easy with him. But at least he is not rushing me like the last go round.
Weather here in California is wonderful and I am anxious to get into pool. Have to wait for my back to heal where two moles were removed.
jinasc on the forum also had a very stubborn CRP level and her doctors were very reluctant to let her reduce her dose of pred. Then one of them had a lightbulb moment: she is very tall for a woman and at the time very wellbuilt as a result of having gained a lot of pred weight. He wondered if the high CRP was due to that - and they continued reducing, relying on symptoms rather than blood levels. Then they did an ultrasound test and could find no sign of GCA. She got off pred without any problems at all despite the high CRP. And then the pred weight just melted away - until one day her skirt fell down in a shop because it was too big
Yes I am tall and overweight and we were doing as you said. but my symptoms came back after 3 days at 11 mgs.
I took 13 mgs then to 12.5 to get my shoulders and legs to work and stop hurting. It has been 2 1/2 yrs and I am weary.
Fair enough! But you haven't been at this that long (I know, it feels likes a long time) but most people take more like 4 or 5 years. And on average, PMR lasts 5.9 years
practicalpainmanagement.com...