What is it ???? : Hi all: So I’ve been having pain... - PMRGCAuk

PMRGCAuk

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What is it ????

Maggiemuffins
Maggiemuffins

Hi all:

So I’ve been having pain in left temporal artery now since mid April and scalp tenderness. Went to ER a few times and drs suspect its GCA. I’m awaiting MRI and possibly biopsy but uneasy about that procedure.

My ESR and C reactive tests are normal. I’m on a low dose of prednisone until I see my regular doctor tomorrow.

Anyhow my ? Is my pain is now in the right side close to or in the carotid artery . Can this still be GCA ?? It seems the pain is traveling now . I wish it would pack up and leave my body once and for all !!! Lol. Thoughts or advice would be appreciated. Thanks

4 Replies
PMRpro
PMRproAmbassador

GCA does not only affect the temporal artery - it can affect the carotids too as well as arteries throughout the chest and abdomen in some cases.

I do hope the MRI is to be one with a contrast substance as plain MRI does not show anything but using contrast makes it quite reliable - providing steroids have been used for less than 5 days beforehand.

There really isn't much else to say until they have made a decision - once you have a diagnosis and treatment plan you will get a load of help and advice here so don't disappear.

Daylily2000
Daylily2000 in reply to PMRpro

Provided steroids have been used for less than 5 days beforehand? Please explain. You must stop all prednisone 5 days before mri?

PMRpro
PMRproAmbassador in reply to Daylily2000

No - you should have taken pred for less than 5 days in total before the MRI is carried out. If you have been on pred for more than 5 days by the time the MRI is done it won't give a reliable result as the inflammation they are looking for will already have been suppressed by the pred so it must be done quickly to be meaningful.

Please urge them to do the MRI with contrast as per PMRpro in lieu of biopsy if they have the ability to do that. academic.oup.com/rheumatolo...

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