Yay good bones: Because I had a bone marrow... - PMRGCAuk

PMRGCAuk

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Yay good bones

Angiejnz profile image
9 Replies

Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going from 1.1 to 1.4. My only deterioration was in the femur head which has gone from t score -1.1 to -1.5 and z score going from -2.2 to -2.5. I was told this is good news but can someone point me in the right direction to understand t and z scores, consequences and relativity please.

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Angiejnz profile image
Angiejnz
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Soraya_PMR profile image
Soraya_PMR

nof.org/patients/diagnosis-...

This should cover it all.

Congrats on improving some of the scores. (Was this scan done on the same scanner as previously?)

Angiejnz profile image
Angiejnz in reply toSoraya_PMR

Thanks that was exactly what I was looking for, brilliant!

karools16 profile image
karools16 in reply toSoraya_PMR

Thanks for that link. Very informative.

PMRpro profile image
PMRproAmbassador

t-scores are the important figure - they compare your bone density to what it was likely to be at its best in your 20s. A figure of -1.0 and above is normal, between -1.0 and -2.5 is osteopenia, reduced bone density, and below -2.5 is osteoporosis.

So -1.1 was barely below normal and -1.5 is well in the good range. My scores are about the same and I'm perfectly happy with them. Your spinal scores are significantly better than mine!

The z-scores don't really mean much - they compare to a population of your age. They probably quote them because of the statistics programme they use!

Angiejnz profile image
Angiejnz in reply toPMRpro

I'm really lucky as the bone marrow transplant meant I was post menopausal at 25 so this is extra good news. I'm sure it's because I dyed my hair red as a warning to bad news not to come near me!!

PMRpro profile image
PMRproAmbassador in reply toAngiejnz

So did that mean you were put on HRT?

Angiejnz profile image
Angiejnz in reply toPMRpro

Nope nothing hence my surprise

PMRpro profile image
PMRproAmbassador in reply toAngiejnz

Blimey - but it does suggest that some of their theories about the causes of loss of bone density may not be entirely certain...

yogabonnie profile image
yogabonnie

Very nice!~

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