Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,564 members • 38,613 posts

All posts for May 2018

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

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What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

Be the first to reply

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

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What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

Be the first to reply

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

Be the first to reply

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

Be the first to reply

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

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Latest Newswire available for download

Find out all the other things our charity is doing as well as this forum! http://www.pmrgca.co.uk/downloads/1/ Happy reading!

Find out all the other things our charity is doing as well as this forum! http:/...

Polywotsit

PMRGCAuk team member•6 years ago

1 Reply

Balloon Face

I have noticed I now have the swollen pred Face, will this go away and, if so, when?

I have noticed I now have the swollen pred Face, will this go away and, if so, w...

Joyce1952

•6 years ago

12 Replies

Go with the flow.

I saw this yesterday ,it was written on a piece of clay in a shop."I no longer fight my demons,we are on the same side now." It made me think of Prednisone ....

I saw this yesterday ,it was written on a piece of clay in a shop."I no longer f...

Dewdrop456

•6 years ago

7 Replies

This doesn't seem right!

I last wrote about a reduction in my prednisone ordered by my doctor. She wanted me to tapper from tenmg to 5mg. I was new to the group and had been...

I last wrote about a reduction in my prednisone ordered by my doctor. She w...

AltonBay

•6 years ago

11 Replies

Help please.

I was diagnosed with PMR in December, and my Preds were yo yo'ed from 20 to 30 to 15mgs until January when I took the matter into my own hands, and stayed at...

I was diagnosed with PMR in December, and my Preds were yo yo'ed from 20 to 30 t...

AmberAliona

•6 years ago

20 Replies

Update to 2:00 AM inflammation and new rheumy

Warning, long complaining session ahead ...may want to save it until Monday ! Boy I was certainly naive when I posted earlier about my short rheumy...

Warning, long complaining session ahead ...may want to save it until Monday...

Mstiles

•6 years ago

16 Replies

Fatigue has well and truly hit!

Hi guys, currently tapering on tortoise not hare method from 7mg to 6mg. Have been so well past 6 weeks or so and even had energy to do stuff other than just...

Hi guys, currently tapering on tortoise not hare method from 7mg to 6mg. Have be...

Allsgrandso

•6 years ago

36 Replies

My story so far

It has been 12 weeks since I was diagnosed with PMR. Early in my journey I found this group and learned so much. It has given me somewhere to turn to when I...

It has been 12 weeks since I was diagnosed with PMR. Early in my journey I found...

Ljm12345

•6 years ago

18 Replies

actemra

Diagnosed with PMR late Febr 2018 & GCA in April--currently taking 50 mg of prednisone daily. Started on Acterma injections, have had 4 infections, my...

Diagnosed with PMR late Febr 2018 & GCA in April--currently taking 50 mg of pred...

pwalker801

•6 years ago

12 Replies

Niggles

Just to be sure I understand this word as it is used in this forum.... it means just very slightly, or a sensation of, and not lasting more than a few...

Just to be sure I understand this word as it is used in this forum.... it means ...

gtate1914

•6 years ago

15 Replies

Ankles so painful

Hello fellow sufferers, this post is partly to confirm that yes, STRESS will cause a bad flare. I was doing well, tapering from 14.5 to 14.original dose...

Hello fellow sufferers, this post is partly to confirm that yes, STRESS will cau...

Sunshinemaggie9

•6 years ago

30 Replies

Wonderful day.

It was so nice today to share happy days with the royal wedding. It is not often that there is good news on the TV. It most certainly upped my day and I do...

It was so nice today to share happy days with the royal wedding. It is not ofte...

morrison

•6 years ago

13 Replies

Ilkley meet up Friday 18th May

It was good to put names to faces at the meeting in Ilkley on Friday. I received a warm welcome from the group and quickly joined in the conversations. I...

It was good to put names to faces at the meeting in Ilkley on Friday. I received...

Estellemac

•6 years ago

2 Replies

Wish Me Luck! Update #3

Following on from my previous posts: Wish Me Luck! and WML! Update #1 and #2… For the last two weeks I’ve been on full elimination AIP (Auto Immune Protocol)...

Following on from my previous posts: Wish Me Luck! and WML! Update #1 and #2… Fo...

xdbx

•6 years ago

20 Replies

No news

Hello everyone So here is my story. I live in the USA. In New York State. It all started with a sinus infection back in first week in April. My pcp gave me a...

Hello everyone So here is my story. I live in the USA. In New York State. It a...

Hali12

•6 years ago

15 Replies

No news

Good morning No it is 4mg where I’m to take for 6days. And no they did not explain why such a low dose. I’m not sure anymore. Im still not myself. Woke up...

Good morning No it is 4mg where I’m to take for 6days. And no they did not expl...

Hali12

•6 years ago

4 Replies

Should’ve thought twice

Went out for a Chinese meal last night (carb and sugar overload) with some old workmates. Threw caution to the wind and had 2 large glasses of wine. What a...

Went out for a Chinese meal last night (carb and sugar overload) with some old w...

Suet3942

•6 years ago

32 Replies

Cautiously Optimistic ?

"More research needed to evaluate role of Abatacept, Tocilizumab for GCA" ~ Christian Pagnoux, MD, MSc, of Mount Sinai Hospital & University of Toronto...

"More research needed to evaluate role of Abatacept, Tocilizumab for GCA" ~ Chr...

Hidden

•6 years ago

5 Replies

I read about people going down then up on pred. Is there any record of a person going straight down to zero without having to increase by 5?

I read about people going down then up again on pred. Is there any record of a person going straight down to zero without having to increase by 5?

I read about people going down then up again on pred. Is there any record of a p...

janimaths

•6 years ago

36 Replies

Payback

Well last week the coil pack on my MX5 died. New one ordered and I got my son to help with the fitting. Well really I was getting him to do most of it, but as...

Well last week the coil pack on my MX5 died. New one ordered and I got my son to...

JulianJ

•6 years ago

20 Replies

PMR Sudden nose bleed

Sudden severe nose bleeds. Just for no reason, I feel a drop of blood trickle down my face. It drenched a hand full of Kleenex and kept on coming. Pinched my...

Sudden severe nose bleeds. Just for no reason, I feel a drop of blood trickle do...

ayoung

•6 years ago

15 Replies

Actemra update

After re-reading my Rheumatologist’s chart note I need to correct my tritration schedule that I posted earlier. So here goes. I am currently on 30 mgs of...

After re-reading my Rheumatologist’s chart note I need to correct my tritration ...

CRW-68

•6 years ago

3 Replies

My experience with PMR and Fibro

My story is the same as everyone else. However, I suffered a stress fracture the other day and was told it was because of the prednisone. My bone density tests...

My story is the same as everyone else. However, I suffered a stress fracture the...

Lin6075

•6 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

What's on this week!

What's on this week!

What's on this week!

What's on this week!

What's on this week!

What's on this week!

What's on this week!

Latest Newswire available for download

Balloon Face

Go with the flow.

This doesn't seem right!

Help please.

Update to 2:00 AM inflammation and new rheumy

Fatigue has well and truly hit!

My story so far

actemra

Niggles

Ankles so painful

Wonderful day.

Ilkley meet up Friday 18th May

Wish Me Luck! Update #3

No news

No news

Should’ve thought twice

Cautiously Optimistic ?

I read about people going down then up on pred. Is there any record of a person going straight down to zero without having to increase by 5?

Payback

PMR Sudden nose bleed

Actemra update

My experience with PMR and Fibro

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