Hi...Is there anyone who has these illnesses? Can you tell me how you cope or your experiences? Struggle with extreme fatigue.
I am at the 2 year mark. I started with 60mg Prednisone. Now I self administer a shot of Actemra every week and take 2 mg. Rayos (Prednisone) a night.
Thank you for your reply.
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The fatigue is really only to be managed with pacing - medication doesn't help:
Here is a post that explains:
healthunlocked.com/pmrgcauk... ...
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I love the article on pacing and planning. Thank you for the excellent resource.
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