Lumber puncture : So today a neurologist came in at... - PMRGCAuk

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Lumber puncture

Hali12 profile image
19 Replies

So today a neurologist came in at 11:00. Did a lumber puncture right in the room. Now it’s a waiting game. Which I hate. Gave me gababapentin. For headache. I only had 2 doses and I can’t tell if it’s working. Or how long it takes to kick in. I’m hoping to go home tomorrow. But my right leg is bothering. I think when the doc went it. He might of hit my nerve that goes to my leg. So now every time I take a step pain shoots up my back. I don’t know anything anymore. All I know is I want the headache to go away and be my self.

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Hali12
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19 Replies
Hindags profile image
Hindags

Glad you got the procedure and that part is over.

SheffieldJane profile image
SheffieldJane

Of course you just want to be yourself. Well done, bless you.

Well done for tap. Hope you feeling a bit better soon.

SnazzyD profile image
SnazzyD

It’s one thing after the other isn’t it? It must stop soon.

Lumbar puncture can give you headache, back Pain and pain down legs, so although you’ve had enough, don’t despair just yet that the headaches hasn’t gone properly. I had a stonking headache after an epidural some hours after it was removed.

sassyscript profile image
sassyscript

I had 5 lumbar punctures in 2016, not pleasant but I survived. S

karools16 profile image
karools16 in reply to sassyscript

Wow! Ow!!

LP isn't as bad as many would say, I have to be honest. People go into a room for LP and go out. I was initially very apprehensive because of so many neg comments on LP. But repeating 5 times. YIKES.

karools16 profile image
karools16

Ooh HALI12, You make a LP sound like nothing, but it would be a big deal for me. I had a failed epidural, years ago, and that still haunts me. I do so wish they would say what's the matter with you, treat it, and you can have peace of mind, and go home.

Hindags profile image
Hindags

How are you feeling today? Any news? Hope things are less uncertain and unknown and painful.

Hali12 profile image
Hali12 in reply to Hindags

No news I’m out of the hospital now. They are all clueless. Just gave me neurontin. Meds and call headache specialists. Lymes disease is what they came up with. And severe headache 🤕

TooSore profile image
TooSore

Hopefully you'll have some answers soon and you can get some proper treatment. Prayers headed your way.

carolpatriarco01 profile image
carolpatriarco01

My dad had the leg pain shooting into his hip also after spinal tap when he was diagnosed with GCA. It did go away in a day or two🤗

Telian profile image
Telian

Pleased you've had a straight forward tap, and you will know something definitive soon. I can say it now you've had it done but I had a bad time with this - apparently my back has too many bones in the way and they couldn't get in - kept hitting the nerves sending electric shock down the legs like nowhere to go! I did scream. As a last resort I had to sit up and bend over the side of the bed to stretch my spine. Procedure took 50 minutes instead of 10/15. They did say it was not the norm. The only thing that didn't go wrong was I didn't have a dry tap, which was a blessing as I would not have gone back.

After it all I got up and walked out as it nothing had happened, felt like I'd been dragged through a hedge backwards but no headache! - had to catch the tube and a train home taking nearly 2 hours. My son took me and watched most of it until they sent him out when things got difficult - said he couldn't believe I just got up and walked out as if nothing had happened.

Best wishes Hali12, and I hope the headaches start to improve very soon.

Hali12 profile image
Hali12 in reply to Telian

Unfortunately for me my didn’t gush out. It was trickling. Doc said I was dehydrated. Which made no sense at all to me

Telian profile image
Telian in reply to Hali12

Mine only trickled, didn't say I was dehydrated told me it is slow coming out...

Are you sure this isn't anything weird? US, racism, sexism, that sort of stuff. If you felt mistreated, you ought to complain. It sounds out of the norm, almost as if they don't even know what they are doing.

Hali12 profile image
Hali12 in reply to

Most definitely discriminated is one and mistreated is another. Can wait till Tuesday to put in a long complaint to them. Like that’s going to go far. But at least I’ll get my word across.

in reply to Hali12

Discrimination could easily escalate into mistreatment in my view. Taking nearly an hour for a single LP is just...unprofessional, possibly negligent. You must have been in agony! Mine went fine, but when the needle was digging in, it wasn't pleasant.

Grants148 profile image
Grants148

I hope you will soon feel much better Hali,the lumbar puncture will make you feel some pain in your back for a while,it must be awful for you to have such a bad headache,l hope it goes away soon.God bless xx.

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