Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2018

Suffering severely. Cortisol too low.

I posted last around three months ago and asked about members who might be taking supplements to help restore cortisol levels. I never did see a functional...

I posted last around three months ago and asked about members who might be takin...

Leeleep

•6 years ago

10 Replies

Plant Cheer.

It's a lot different doing the garden stuff one year on. So clumsy with simple tie ins etc. Yer! I'm an ageing youth club/ wild child/hippy, fantasist! But!...

It's a lot different doing the garden stuff one year on. So clumsy with simple t...

Hidden

•6 years ago

24 Replies

A wound and PMR

Dear friends, Yesterday, a dog bit my calf. I was really lucky. Only five puncture wounds, nothing worse. (Dog had current rabies shots) My best friend who is...

Dear friends, Yesterday, a dog bit my calf. I was really lucky. Only five punctu...

DianeA1

•6 years ago

14 Replies

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Best way to taper prednisone

Uzziah7

•6 years ago

16 Replies

Elder granddaughter.

Thanks to everyone for your kindness over her. She definitely has HLH another immune disease. She had hoped to be out this weekend but she had a spike in...

Thanks to everyone for your kindness over her. She definitely has HLH another im...

sharonnorfolk

•6 years ago

6 Replies

You are invited to take part in an OMERACT study on steroid use and their effects - please do have a look

This link...

PMRpro

Ambassador•6 years ago

13 Replies

40

Soooo, I'm supposed to be reducing to 40 mg today; however I am not really feeling it. I've been lacklustre, tired, loss of appetite, had a stuffy nose,...

Soooo, I'm supposed to be reducing to 40 mg today; however I am not really feeli...

Hidden

•6 years ago

38 Replies

ulltimate omega oil

I read on a different site where ultimate omega oil really helps fatigue. Has anyone used this and does it work. I'm to the point I would drive hours for a...

I read on a different site where ultimate omega oil really helps fatigue. Has a...

pwalker801

•6 years ago

10 Replies

PMRGCAUK Charity Week June 2018

http://uk.virginmoneygiving.com/PMRGCAUKElizabethMitchell

LizMitchell

•6 years ago

2 Replies

PMRGCAuk Charity Week June 2018

Dear all I am, once again, participating in a new challenge as part of the PMRGCAUK Charity Week in June this year. On Friday 22nd June I will be endeavouring...

Dear all I am, once again, participating in a new challenge as part of the PMRGC...

LizMitchell

•6 years ago

11 Replies

Rats, keep forgetting, was that 2 steps forward and six back or 1 forward and 7 back?

Well, what a funny old week. Thank you again to everybody for your words of comfort, support and encouragement over the weekend regarding my issues with...

Well, what a funny old week. Thank you again to everybody for your words of comf...

Mike1964

•6 years ago

28 Replies

Feeling jittery and anxious could this be due to Pred reduction

Hello this is the first I've asked anything but I want you all to know I've learnt a lot from you all and I'm very thankful for all the advice I've received on...

Hello this is the first I've asked anything but I want you all to know I've lear...

Dee1jay2rac3

•6 years ago

27 Replies

Any advice / ideas please?

Hi, Wonder if anyone has any ideas please ? Diagnosed with PMR last Autumn & responded swiftly to 15mg prednisolone. I was almost 100% better by Xmas. Sadly...

Hi, Wonder if anyone has any ideas please ? Diagnosed with PMR last Autumn & res...

Hidden

•6 years ago

8 Replies

Flattened with FATIGUE!

Hi! I am new to all this sharing but I'll give it a go! I was diagnosed with PMR this time last year and began on 30mg of prednisone. I did ok for quite a few...

Hi! I am new to all this sharing but I'll give it a go! I was diagnosed with PMR...

Suin555

•6 years ago

13 Replies

How to handle a flare?

I was down to 7.5 mg of pred until a few weeks ago. Was so happy to be reducing and feeling quite good even though I was unusually tired. Then I caught a bad...

I was down to 7.5 mg of pred until a few weeks ago. Was so happy to be reducing ...

judyb100

•6 years ago

14 Replies

Physiotherapy

Morning PMRs. Have any of you had any real success with physiotherapy? I have tried several times over the last six years but I can’t say it has ever really...

Morning PMRs. Have any of you had any real success with physiotherapy? I have tr...

Constance13

•6 years ago

53 Replies

? wrong diagnosis

Hi All So I was diagnosed (by a very experienced, but not friendly consultant) in June 2015 with PMR/GCA, having been ill for several years. 48 hours on 40mgs...

Hi All So I was diagnosed (by a very experienced, but not friendly consultant) i...

lesley2015

•6 years ago

20 Replies

More Prednisone or Less Activity🤔

I am taking Actemra injections and prednisone. I recently flared, so I am back up to 5m daily, but now stable and feel good. I have been at this long enough to...

I am taking Actemra injections and prednisone. I recently flared, so I am back u...

Klah

•6 years ago

14 Replies

Dexa scan

As I've previously said I had concerns about taking AA.....I saw my GP who was happy for me to have a Dexa scan and I had it done within 3 days ( 5* to...

As I've previously said I had concerns about taking AA.....I saw my GP who was h...

GrannyDi

•6 years ago

21 Replies

Chronic fa

it sure has hit me today. Have to get through an eight hour shift, not quite sure how. All I want to do is lie down and sleep. Aching all over and to cap it...

it sure has hit me today. Have to get through an eight hour shift, not quite sur...

Horizon12

•6 years ago

16 Replies

Hubby update

Hubby was brought home for a while yesterday by the hospital, to see if he can manage on his own at home. He made himself a cup of coffee, got on and off the...

Hubby was brought home for a while yesterday by the hospital, to see if he can m...

Marcy47

•6 years ago

20 Replies

Not sure how long to continue as I am

I have been reducing and got down to 6mg but it was a disaster zone! I have now gone back to 8mg where I am fine. The question is how long should I continue...

I have been reducing and got down to 6mg but it was a disaster zone! I have now...

stellafmdm

•6 years ago

43 Replies

Calcium

Hi all...................Went for shoulder Xray results yesterday as hard lump had appeared on top part of bone where clavicle meets shoulder joint. Very...

Hi all...................Went for shoulder Xray results yesterday as hard lump h...

Wenben

•6 years ago

13 Replies

How do I get a referral?

Hi guys, I have not posted for a while. I have been diagnosed in December. Took 15mg of pred and have been tapering since. My fingers and toes are really bad...

Hi guys, I have not posted for a while. I have been diagnosed in December. Took ...

ClaudeV

•6 years ago

25 Replies

good endo appt................

Yesterday, I saw the Endo Consultant. Sadly, not the lovely locum, of last year, but THE man himself. Remember, the one who diagnosed me by LETTER!. Anyway, he...

Yesterday, I saw the Endo Consultant. Sadly, not the lovely locum, of last year,...

karools16

•6 years ago

16 Replies

~Hot raised blood vessels anyone?~

Interested if any of our PMR friends have experienced hot ropey looking blood vessels that have developed on their PMR/GCA journey. Caught my usual regular...

Interested if any of our PMR friends have experienced hot ropey looking blood ve...

Megams

•6 years ago

11 Replies

Rheumy revisited

After dexa scan last thursday, back in same dept today for injections in my shoulders to help with pain. Didn't realise that rheumy would be there. Results...

After dexa scan last thursday, back in same dept today for injections in my sh...

Hidden

•6 years ago

16 Replies

Help needed with a decision

I know there has been much discussion on bisphosphonates on this forum, and I have probably read most of it, including the references to research, but I have a...

I know there has been much discussion on bisphosphonates on this forum, and I ha...

scats

•6 years ago

49 Replies

Prednisone Reduction

My labs came back good. My Rhematologist wants to reduce my Prednisone from 20 mg to 15 mg . I have been on Prednisone (20 Mg) for 5 weeks. I worry about...

My labs came back good. My Rhematologist wants to reduce my Prednisone from 20 ...

Robin0449

•6 years ago

25 Replies

Blood blisters in mouth

Has anyone had a problem when eating anything a bit rough, such as fish in breadcrumbs, with blood blisters coming up on roof of mouth? It has happened to me...

Has anyone had a problem when eating anything a bit rough, such as fish in bread...

Marcy47

•6 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

Suffering severely. Cortisol too low.

Plant Cheer.

A wound and PMR

Best way to taper prednisone

Elder granddaughter.

You are invited to take part in an OMERACT study on steroid use and their effects - please do have a look

40

ulltimate omega oil

PMRGCAUK Charity Week June 2018

PMRGCAuk Charity Week June 2018

Rats, keep forgetting, was that 2 steps forward and six back or 1 forward and 7 back?

Feeling jittery and anxious could this be due to Pred reduction

Any advice / ideas please?

Flattened with FATIGUE!

How to handle a flare?

Physiotherapy

? wrong diagnosis

More Prednisone or Less Activity🤔

Dexa scan

Chronic fa

Hubby update

Not sure how long to continue as I am

Calcium

How do I get a referral?

good endo appt................

~Hot raised blood vessels anyone?~

Rheumy revisited

Help needed with a decision

Prednisone Reduction

Blood blisters in mouth

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