Glorious Bank Holiday weekend greetings to one and all. Boy doesn't some sunshine make you feel better even if you've no energy to do anything in it!
I'm 53 and/was fit'ish, always did lots of walking, some swimming/cycling etc. I seemed to have joined the exclusive but rather unwelcome PMR club 2 months ago.
I was on 15mg of Pred for about 6 weeks, almost instant relief and apart from a few days where my energy levels rather surprisingly were gone all was pretty good.
I'm now into my 3rd week of 12.5 and it'd hellish. I must confess I rather overdid things on holiday, far too much walking (And beer!) I started the 12.5 as soon as I came home.
I assumed the first week of feeling so rough was a combination of pushing myself too hard on holiday and the reduction. The main symptoms I have are; pain in thighs, shoulders/neck and top of arms. This isn't a bad unbearable pain it's just constant and you feel like your legs and arms aren't really going to work. By far the biggest issue is exhaustion. I am completely knackered all the time, I have no energy whatsoever.
Does all this sound normal? is there a normal for PMR? is this just how life is and I need to shut up, adjust and get on with it? I'm really despairing at the moment, I'm using up all my holiday from work as I just don't have the energy to carry on as normal but what do I do when thats gone?
Any advice on how others have coped gratefully received.