Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for April 2018

Seasonality, birth month, disease

Hello All, Following the discussion on astrological signs and found recent research on links between birth season and disease. Interesting to note the...

Hello All, Following the discussion on astrological signs and found recent rese...

coda123

•7 years ago

11 Replies

Lost the plot

I’m at a quandary to what or where I’m going in other words I’m lost. I have had PMR for about 18 months or a bit more as it’s hard to determine the exact time...

I’m at a quandary to what or where I’m going in other words I’m lost. I have had...

Suffolklady

•7 years ago

56 Replies

Spider in the bath!

I woke up this morning with strong withdrawal symptoms - stiff legs, knees, shoulders and arms. But Hooray, I've tapered down to two and a half mg pred....

I woke up this morning with strong withdrawal symptoms - stiff legs, knees, shou...

43tripandskip

•7 years ago

29 Replies

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12.5 MG not working YET....

Well it looks like I’ll have to call my Rheumatologist tomorrow & let him know I need to go bk. up to 15mg because the pain has returned to my shoulders, arms,...

Well it looks like I’ll have to call my Rheumatologist tomorrow & let him know I...

LarryLeek

•7 years ago

12 Replies

Does anyone know if pred 2.5 mg comes in gastro resist coating...my go says no...my IBS flares with normal ones...makes reduction hard

Gastro resist?

Katrinaroper

•7 years ago

8 Replies

Thank you all

Hi everyone I just wanted to say thanks! I felt a little down this morning! My tooth issues and weight issues mainly playing on my mind. I had a millions...

Hi everyone I just wanted to say thanks! I felt a little down this morning! My t...

JulieR2

•7 years ago

6 Replies

suggestions for sleep

Recently diagnosed with polymyalgia and giant cell, Having trouble sleeping, wake up the same time every night, used to wake up in pain but 60 mg prednisone...

Recently diagnosed with polymyalgia and giant cell, Having trouble sleeping, wa...

pwalker801

•7 years ago

17 Replies

Prednisone drawing - knots in my brain

Tangled brain

Mstiles

•7 years ago

15 Replies

Just realised...

......I started pred one year ago today. Start dose 20, now 9mg. A failed taper ordered by GP. Have seen GP 3 times since diagnosis. A failed taper...

......I started pred one year ago today. Start dose 20, now 9mg. A failed taper...

Soraya_PMR

•7 years ago

84 Replies

PMR Newbie

Hi all - I'm a 54 year old woman with PMR diagnosis confirmed several weeks ago by rheumatologist. I've really appreciated being able to get lots of info on...

Hi all - I'm a 54 year old woman with PMR diagnosis confirmed several weeks ago ...

catocat

•7 years ago

38 Replies

What appointment?

Just had a text reminding me about my appointment at Salisbury Hospital on 17th April. Only problem is I haven't rec'd an appointment and I will be in Malta...

Just had a text reminding me about my appointment at Salisbury Hospital on 17th ...

Marcy47

•7 years ago

23 Replies

How do our systems adjust to travel through time ones or even just daylight savings (here in USA)

I take my Pred. at ten PM and it takes 4-6 hours to dissolve and be ready for the morning's cytokine dumping. But ten PM during standard time is 9 PM in...

I take my Pred. at ten PM and it takes 4-6 hours to dissolve and be ready for t...

Hindags

•7 years ago

4 Replies

Cataract surgery

I just wanted to thank everyone for their advice and support particularly about cataract surgery while on 25mg steroids. I had a cataract successfully removed...

I just wanted to thank everyone for their advice and support particularly about ...

Sorop

•7 years ago

21 Replies

Half Groomed !

Well she’s half groomed! Will tackle other half tomorrow :).

aladymo

•7 years ago

23 Replies

Pain with normal (3.7) CRP??

I was diagnosed with PMR 5 years ago. At that time my CRP was 34. I have since been on and off of prednisone 3 times. I have been now off for almost a year and...

I was diagnosed with PMR 5 years ago. At that time my CRP was 34. I have since b...

SheilasPMR

•7 years ago

14 Replies

30 days at 9mg the good news and the bad.

Happy to be here, a month in to 9mg. Survived very, very late guests mid awful virus which relented finally relented 10 days ago. I can feel I am just at the...

Happy to be here, a month in to 9mg. Survived very, very late guests mid awful ...

IdasMum

•7 years ago

32 Replies

Bruising badly after mosquito bite

Hi not posted for ages! Down to 7 again after a flare in August when I was back up to 30. Just on holiday seeing family in Australia. My arms are bruising more...

Hi not posted for ages! Down to 7 again after a flare in August when I was back ...

Susanmod

•7 years ago

4 Replies

PMR still active after almost seven years

Hi everyone - I live in the Australia Capital Territory (ACT) in Australia. I was diagnosed with PMR seven years ago in July 2011. I was 68, very healthy and...

Hi everyone - I live in the Australia Capital Territory (ACT) in Australia. I w...

Judioz

•7 years ago

7 Replies

Question

This is for MB. This PMR is like the LION. WITCH and The WARDROBE. Up like a lion with the steroids, side affects like a witch and coming down hiding away....

This is for MB. This PMR is like the LION. WITCH and The WARDROBE. Up like a li...

morrison

•7 years ago

2 Replies

Flares 😱😲

Wurst yet for me. Last night a treble wammy for me usually just the once a night. But last night first very early 2.30. And didn’t get to bead until 12.30....

Wurst yet for me. Last night a treble wammy for me usually just the once a nigh...

Rocketronzy

•7 years ago

23 Replies

Is it harmful not to increase my Prednisone if in pain?

Hello, I would like to thank everyone for all the wise advice and friendly sense of community.I have started writing down the various tips and information, in...

Hello, I would like to thank everyone for all the wise advice and friendly sense...

Dewdrop456

•7 years ago

29 Replies

The Lighter Side: ‘Uncle’ MB’s Pred Paradox - Answers on a Postcard Please…?! ;-)

Greetings Polymylingerers and Pred Playmates everywhere. I hope you are well - or at least surviving on the Journey and trying to see the Lighter Side of our...

Greetings Polymylingerers and Pred Playmates everywhere. I hope you are well - ...

markbenjamin57

•7 years ago

62 Replies

Pmr and heart problems

Hi, I’ve had pmr for 18months now and have tapered down from 15 to 3 steroids daily. I started getting breathless a few months ago and my doctor put it down to...

Hi, I’ve had pmr for 18months now and have tapered down from 15 to 3 steroids da...

poly-susie

•7 years ago

23 Replies

Weather the storm!

Does cold or humidity affect PMR?

aladymo

•7 years ago

14 Replies

Update on flying to Jersey City

Wheelchair assistance was great. It made everything so much easier and less tiring. At Manchester my husband pushed the chair so we both got through security...

Wheelchair assistance was great. It made everything so much easier and less tiri...

Louisepenygraig

•7 years ago

15 Replies

PMR or withdrawal pains?

I have posted before about my reduction attempts, where I have hit a flare when trying 7mg, having had PMR since 2014. My recent reduction, now coming up...

I have posted before about my reduction attempts, where I have hit a flare ...

Lin-lou

•7 years ago

41 Replies

Was it Worth it?

On Saturday March 24 we (my husband and I) embarked on a road trip from Brighton to York; a trip that was estimated at about 5.5 hours by car. We had rented...

On Saturday March 24 we (my husband and I) embarked on a road trip from Brighton...

Hidden

•7 years ago

105 Replies

At last, an appointment which was beneficial!

After 3 months of gp and diabetic nurse faffing about prescribing Trulicity prescription requested by consultant I collected this last night. Excuse was '...

After 3 months of gp and diabetic nurse faffing about prescribing Trulicity pres...

Hidden

•7 years ago

17 Replies

Plaquenil and Pred for PMR and RA

Hi all Has anyone taken plaquenil and Pred to help reduce RA damage . I am new to all of this 2 mos now. As the tests are coming in it appears as though I have...

Hi all Has anyone taken plaquenil and Pred to help reduce RA damage . I am new t...

Leilagirl

•7 years ago

8 Replies

Side effects of Pred or tapering

I started on 30 mg in dec now down to 10, tapering 2,5 mg every other week as my reumy sais I am too young for PMR and wants me off Pred asap. I find that...

I started on 30 mg in dec now down to 10, tapering 2,5 mg every other week as my...

Pirnilla

•7 years ago

31 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2018

Seasonality, birth month, disease

Lost the plot

Spider in the bath!

12.5 MG not working YET....

Does anyone know if pred 2.5 mg comes in gastro resist coating...my go says no...my IBS flares with normal ones...makes reduction hard

Thank you all

suggestions for sleep

Prednisone drawing - knots in my brain

Just realised...

PMR Newbie

What appointment?

How do our systems adjust to travel through time ones or even just daylight savings (here in USA)

Cataract surgery

Half Groomed !

Pain with normal (3.7) CRP??

30 days at 9mg the good news and the bad.

Bruising badly after mosquito bite

PMR still active after almost seven years

Question

Flares 😱😲

Is it harmful not to increase my Prednisone if in pain?

The Lighter Side: ‘Uncle’ MB’s Pred Paradox - Answers on a Postcard Please…?! ;-)

Pmr and heart problems

Weather the storm!

Update on flying to Jersey City

PMR or withdrawal pains?

Was it Worth it?

At last, an appointment which was beneficial!

Plaquenil and Pred for PMR and RA

Side effects of Pred or tapering

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