Hi everyone - I live in the Australia Capital Territory (ACT) in Australia. I was diagnosed with PMR seven years ago in July 2011. I was 68, very healthy and active. It started suddenly but fortunately my GP picked up that it was PMR and once the tests were done, started me on high dose (I think 50mg) Prednisolone. I then went to Rheumatolgist and started to slowly reduce the Pred. I had a lot of difficulty reducing after getting down to 20mg and so it went on. Was on Plaquinol for a while but I don't think helped. I stopped going to the Rheumatologist and managed the reduction myself. Went off Pred four moths ago as was almost pain free, however I had a flare and my GP suggested I take Pred again. I'm now on 2mg which keeps the pain in my shoulders/upper arms/neck at a level I can put up with - and it's only in the evening. Compared to how I was in the beginning I am feeling welll now, more energy, no fatigue, no stiffness in the morning. It's been a long road. I have a friend who has a friend (now 80) who like me, is taking 2mg and was diagnosed with PMR more than even years ago.
I got the curly hair, so maybe that's a bonus.