Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,927 members • 39,413 posts

All posts for April 2018

Doctor and dentist appointment yesterday

Went to see the doc yesterday. Their request to do with osteoporosis .whilst there asked for a blood test as i had a flare up last week, was down to 3.5mg...

Went to see the doc yesterday. Their request to do with osteoporosis .whilst the...

Flrchrs

•6 years ago

22 Replies

HELP

Help someone, please. I’m having difficulties in completing my updated profile, it keeps telling me I have only used 80% of my reintroduction profile, but it...

Help someone, please. I’m having difficulties in completing my updated profile,...

Constance13

•6 years ago

24 Replies

feels like a vice

diagnosed a week ago with GCA, been on 60 mg for a week....not resolving, wanting to start me on Actmera. My question is ---what is it that causes your head...

diagnosed a week ago with GCA, been on 60 mg for a week....not resolving, wantin...

pwalker801

•6 years ago

19 Replies

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Actemra

Has anyone used this drug? I had a temporal biopsy a week ago, started on 60 mg prednisone, still feel like my head is in a vice, a squeezing feeling, pain in...

Has anyone used this drug? I had a temporal biopsy a week ago, started on 60 mg...

pwalker801

•6 years ago

53 Replies

Shingrix shingles vaccine approved by FDA

I just read this article published in the New York Times, April 10, 2018....

Hindags

•6 years ago

29 Replies

Salisbury group meet

Salisbury pmrgcauk group will be meeting next Tuesday (17th April) between 11am & 1pm in the Edinburgh Wool Mill resturant at Wilton Shopping Village. All...

Salisbury pmrgcauk group will be meeting next Tuesday (17th April) between 11am ...

podo

•6 years ago

13 Replies

A day with "The Girls"

OMG, I'm exhausted. ...have been babysitting these two beauties today! I have had "The Girls," since 10:00 am. We walked (or shall I say I was dragged)...

OMG, I'm exhausted. ...have been babysitting these two beauties today! I have ...

Hidden

•6 years ago

55 Replies

Steroids/Actemra/Addison’s = GCA

So after 6 years on steroids Actemra finally enabled me to get down to 6.5. Started August 2017 once a week. No reaction. Inflammation immediately dropped....

So after 6 years on steroids Actemra finally enabled me to get down to 6.5. Star...

Nap1

•6 years ago

29 Replies

Why don't I ever learn?

Happily sitting here on the computer while my washing machine did its thing. When I realized I had not taken my medicine today. Good grief. Here I am,...

Happily sitting here on the computer while my washing machine did its thing. Wh...

HeronNS

•6 years ago

65 Replies

Holiday insurance.. declare PMR?

Just about to book travel insurance and wondering if I should/need to mention PMR as a pre existing medical illness? Thanks guys 🙏

Just about to book travel insurance and wondering if I should/need to mention PM...

Allsgrandso

•6 years ago

31 Replies

How slowly should I be reducing?

Greetings all from sunny Turkey 😎. Boy does the hassle of PMR seem easier when all you have to do is lay on a lounger, I really should have tried this ages...

Greetings all from sunny Turkey 😎. Boy does the hassle of PMR seem easier when ...

Mike1964

•6 years ago

43 Replies

What IS that smell?

OMG... It's me! I cant believe I am going to write about this, but my fingers are uncontrollably, moving across the keyboard, at a rate faster than sound, so...

OMG... It's me! I cant believe I am going to write about this, but my fingers ...

Hidden

•6 years ago

141 Replies

Thank you so much.

Thank you so much to all of you who have replied to my plea for advice. Sorry I havent responded sooner, sadly having a rough day. When at the beginning of...

Thank you so much to all of you who have replied to my plea for advice. Sorry I...

Hidden

•6 years ago

7 Replies

Fired by my rheumy, update

3:30 am over here in the western US and I can’t sleep panicked about my appointment tomorrow morning with my GP after last Thursday’s disastrous Dismissal...

3:30 am over here in the western US and I can’t sleep panicked about my appo...

Mstiles

•6 years ago

17 Replies

THUMBS of FIRE!

Among my weird symptoms, one that I am PARTICULARLY fond of (not!) is the effect I've titled "Thumbs of Fire" (cue Vangelis running music... ) Both thumbs will...

Among my weird symptoms, one that I am PARTICULARLY fond of (not!) is the effect...

billinSurbiton

•6 years ago

4 Replies

Trouble controlling pain

Just diagnosed with GCA last week, having trouble getting on top of the pain, on 50mg prednisolone, taking paracetamol and codeine, not sleeping and totally...

Just diagnosed with GCA last week, having trouble getting on top of the pain, on...

Gillian55

•6 years ago

27 Replies

Up-and-down symptoms...

Hi All... happy Tuesday. I'm new, have not posted much, but this morning I'm laying here unable to walk. My legs are too stiff, painful, and often just give...

Hi All... happy Tuesday. I'm new, have not posted much, but this morning I'm lay...

billinSurbiton

•6 years ago

6 Replies

Knee pain - Housemaids knee, Bakers Cyst??

I know I’ve mentioned this before but the discomfort is reappearing and I now have pains in both knees. Right knee feels tight in the soft fleshy area at the...

I know I’ve mentioned this before but the discomfort is reappearing and I now ha...

Lochy

•6 years ago

20 Replies

Can’t access replies

I cannot seem to get into the replies several kind people have sent in answer to my wuestion

I cannot seem to get into the replies several kind people have sent in answer to...

PenelopeVita-Finzi

•6 years ago

2 Replies

Coming off pred

After 3 years on pred GCA, my blood tests are ‘perfect’ according to my consultant. I reduced the dose of pred to 4mg a day and am now halfway through the...

After 3 years on pred GCA, my blood tests are ‘perfect’ according to my consulta...

PenelopeVita-Finzi

•6 years ago

12 Replies

Valentina1

I want to reduce prednisalone down from 20mg a day. Any suggestions welcome. I feel so disorientated and exhausted.

I want to reduce prednisalone down from 20mg a day. Any suggestions welcome. I ...

Valentina1

•6 years ago

17 Replies

Dark marks in corners of eyes

Can anyone tell me if dark marks in the corners of my eye are anything to do with PMR please? This has been gradually getting worse and is now very noticeable.

Can anyone tell me if dark marks in the corners of my eye are anything to do wit...

Footfairy-1

•6 years ago

30 Replies

Can't stop crying (need somewhere to write it down)

Very difficult post to write but I need to write this somewhere.......here, I know you will understand. For last couple of weeks I've been tearful,...

Very difficult post to write but I need to write this somewhere.......here, I kn...

IdasMum

•6 years ago

136 Replies

The bisphosphonate question - another study.

https://www.womenshealthnetwork.com/community/osteoblast/post/bisphosphonates-make-bones-weaker.aspx? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5338252/ The...

https://www.womenshealthnetwork.com/community/osteoblast/post/bisphosphonates-ma...

PMRpro

Ambassador•6 years ago

38 Replies

Advice please

Hi. I'm Sarah, I'm 56 & last Autumn I got PMR. First, thank you to all of you who participate in & overview this forum. It has been a lifeline. Early last...

Hi. I'm Sarah, I'm 56 & last Autumn I got PMR. First, thank you to all of you w...

Hidden

•6 years ago

8 Replies

What appointment update

Further to my earlier post, I got to talk to Salisbury Hospital Admin today. I appears the appointment is for my husband, he had one cancelled back in Jan. He...

Further to my earlier post, I got to talk to Salisbury Hospital Admin today. I a...

Marcy47

•6 years ago

7 Replies

Wish me luck!

After many years of wondering exactly how certain foods/food groups might be affecting my health and wellbeing I've finally decided to take the plunge and try...

After many years of wondering exactly how certain foods/food groups might be aff...

xdbx

•6 years ago

41 Replies

New Medicine

I am in Italy and a friend with Crohn's told me about a new medicine called Cortiment 9mg, Budesonide. It is a class of corticosteriods. He says it has very...

I am in Italy and a friend with Crohn's told me about a new medicine called Cort...

smoothilly

•6 years ago

14 Replies

ACTEMRA Update

I tried. Unfortunately it is not the answer for me. As I am writing this I am itching all over, no energy and coughing. My last blood test my ESR has gone...

I tried. Unfortunately it is not the answer for me. As I am writing this I am ...

shazstep

•6 years ago

22 Replies

Forty-five

Forty-five may refer to: The 45 refers to the Jacobite rising of 1745 in Great Britain, or the year that World War II ended, which was 1945. A card game:...

Forty-five may refer to: The 45 refers to the Jacobite rising of 1745 in Great B...

Hidden

•6 years ago

41 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2018

Doctor and dentist appointment yesterday

HELP

feels like a vice

Actemra

Shingrix shingles vaccine approved by FDA

Salisbury group meet

A day with "The Girls"

Steroids/Actemra/Addison’s = GCA

Why don't I ever learn?

Holiday insurance.. declare PMR?

How slowly should I be reducing?

What IS that smell?

Thank you so much.

Fired by my rheumy, update

THUMBS of FIRE!

Trouble controlling pain

Up-and-down symptoms...

Knee pain - Housemaids knee, Bakers Cyst??

Can’t access replies

Coming off pred

Valentina1

Dark marks in corners of eyes

Can't stop crying (need somewhere to write it down)

The bisphosphonate question - another study.

Advice please

What appointment update

Wish me luck!

New Medicine

ACTEMRA Update

Forty-five

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