Congratulations mamici1! I always thought of reducing the steroids as a bit of a 'holding the breath', exciting moment. Best wishes for continued better health and being able to kick the Pred habit.
YOURS is of course by far the most significant of all those '45s' Melissa !!
I was going to try another 0.5mg reduction myself after returning from my short trip to see the family - it WAS fun especially as Ruth had arranged a wee early 'surprise' birthday lunch for me with all of them so there was MUCH overindulgence by me ! Regardless of the long drives and all the additional excitement I felt good most of the time but have returned with a rather sore lower back - I think from a LOT of extra walking I enjoyed doing around the city and the galleries we visited. So now it is time to 'pay' the price and perhaps wait for the next step down for a few more days - but it WAS sure worth it !
Ohhhhh Rimmy I am so happy you had a good time and that you "overindulged!" Good on you!!!! I was most sure about dropping the 5mg today, as I too have been feeling the "effects" of traveling and a few minor overindulgences, but as I said above NO GUTS, NO GLORY! What's the worse that can happen? I'll feel like hell... it's not like I haven't been THERE before! 45 is the lowest I have ever been and I was only on 45 for like 3 days before I "crashed and burned." So we shall see where this leads us! I hope you don't have to pay to big a price... xxxxx
45 is the lowest I have ever achieved, but I was there for only like 3 days before I "crashed and burned." I went from 40 to 60, 55, 50, "45," 60, 80, 75, 70, 65, 60, 55, 50, and now the elusive, unicorn 45 again! Fingers crossed. xxx
Hi. FAB!! Now that you’re at a medium - ish dose, I would consider getting some 1mg tablets and go a bit slower than -5 each time. Dropping by 5mg at this dosage is a big %. Just my opinion.
I’m now at 16mg from original 40 and once I got to 25 I started reducing by -1mg each week now, with no flare and no side affects *touches wood*
Hope you get on ok 👍
Karey
• in reply to
Ohhhh good on you Karey! Touch wood indeed!!!
My Rheumy's plan is to drop by 5mg every 30 days until we hit 25 and then we do a DSNS. We'll see where 45 takes us...
At least you know it's entirely possible that 5 mg drops from this point may not be reasonable. No reduction more than 10% remember! But glad you've got this far without issues.
Yes... I am a little concerned that in 30 day she will have me dropping more than the recommended 10%. I will see how I go for the next moth and how I feel and make a decision at that time.
Oh, I had "issues, " I just had them early on. My first taper down was a fiasco!!!!! 40 to 60, down to 45 where I almost died.... Up to 80 because 60 did nothing! Was on 80 for a month!!!! ....and now finally back to 45. All since November. Yo Yo Maamici
Plain. So PMRpro, are you saying at the end of this 30 day cycle, reduce by only 2.5, not 5.0? And then another 2.5 mg the following week? and then stay there for the 2 remaining weeks?
Something like that. You can cut your plain pred no bother - pill cutter from the pharmacy. And if it doesn't work with the first 2.5mg you know to wait a bit. What the eye doesn't see the heart doesn't grieve over...
Owch! i think things are bound to go much better this time around. And you know what to look for. And PMRpro's suggestion to split the taper into two parts and do two weeks at 2.5 instead of 5 for four weeks sounds like a great idea for when the whole step becomes more than 10%.
Yea! Fantastic. I go down to 30 on Wednesday. Hoping ( well fingers crossed) for an improvement and a bit more energy. I do hope it is the same for you. I have my daughters kitties here so I reckon the combined weight of them and mine could be 45. They are eating me out of house and home, reckon they are bored as I daren't let them out. Just thougt I was 45 when my ex walked out.
Yippee! I went to my pilates class today. First time for 5 weeks. I managed at least half of each exercise so I am feeling pretty smug. I have noticed funny smells but I blame it on the kitties. things do not taste the same, I have even gone off my 1 daily diet coke. ( Don't like tea or coffee). EEk! just thought maybe it is me I can smell not other people or things. Ah Well nothing I can do about it.
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