After 3 years on pred GCA, my blood tests are ‘perfect’ according to my consultant. I reduced the dose of pred to 4mg a day and am now halfway through the dead slow method taking it down to 3mg. My question is: should I continue despite some pain - not serious - or should I stop reducing? Should I stop at this halfway point and take 3 and 4 alternate days and, if/when the pain settles down, then continue to reduce? I wonder if any of you have successfully got off prednisolone completely and, if so, you have any tips?
As always, I am so grateful that tgis forum exists.
Hi Penelope Vita-Finza, I think your instincts are correct to pause your reduction here. It is a tiny dose and may well make all the difference to your continuing comfort and have no ill effects. Your bloods are “ perfect” because your disease is being treated. I think you will know when it has lifted completely. Symptoms rule here.
Thank you very much for your helpful reply.