Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,026 posts

All posts for February 2018

CBD oil

Hi. Has anyone tried this . Was it Ok to take with steroids and did it help PMR. Would love it to be a booster if needed.

Hi. Has anyone tried this . Was it Ok to take with steroids and did it help PMR...

Chrissy1953

•6 years ago

16 Replies

No pmr?

Hello my almost 6000 Dear friends. I am confused once more. Under 4 Mg of Pred my arms and shoulders started to hurt again and the rheumy and the gp told me to...

Hello my almost 6000 Dear friends. I am confused once more. Under 4 Mg of Pred m...

Zofitmogelijk

•6 years ago

17 Replies

PMR or Fibromyalgia?

Hello all. I was diagnosed with GCA in August of 2014 and I feel that I'm now coming to the end of that particular journey. My prednisolone is down to 1mg...

Hello all. I was diagnosed with GCA in August of 2014 and I feel that I'm now c...

AndyTheMac

•6 years ago

18 Replies

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Severe muscle pain strains sprains and weakness

So I have been on 6.5 mg for a month now and Actemra every 10 days. The muscle problems are out of hand I bought a walker but can’t use it too much. Developed...

So I have been on 6.5 mg for a month now and Actemra every 10 days. The muscle p...

Nap1

•6 years ago

14 Replies

CT scan with contrast,advice please

I was diagnosed with GCA in Dec 2016,a very up and down journey and have 2 vertebral fractures and trapped nerve.Because of feeling so unwell for at least 6...

I was diagnosed with GCA in Dec 2016,a very up and down journey and have 2 verte...

lizzie47

•6 years ago

42 Replies

Demons and Self Doubt

Those who cant do... "rant." https://rantingsofamadwomanblog.com/2018/02/16/demons-and-self-doubt/ Warning: Contains some strong language and what could be...

Those who cant do... "rant." https://rantingsofamadwomanblog.com/2018/02/16/dem...

Hidden

•6 years ago

55 Replies

Not a good start to the day :(

Well I went to bed last night with a pain down mi right leg and an extra twinge in my back. Didn't feel good and I'm not sure what I did. Usual mid sleep wake...

Well I went to bed last night with a pain down mi right leg and an extra twinge ...

JulianJ

•6 years ago

9 Replies

Prednisone or GCA flare update

Hello everyone, Hope everyone had a Valentine’s Day that included something good! I bought a fabulous new pink handbag which cheered me up immensely. 💕...

Hello everyone, Hope everyone had a Valentine’s Day that included something...

Mstiles

•6 years ago

9 Replies

Burp! Whoops, sorry!

Has anyone got any ideas? I had to have an endoscopy because of blood appearing in my mouth. As they found multiple fundic gland polyps in my stomach, they...

Has anyone got any ideas? I had to have an endoscopy because of blood appearin...

43tripandskip

•6 years ago

25 Replies

Myelofibrosis Natural interventions

I was diagnosed with myelofibrosis in 2011. This is said to be incurable. However, I and a number of others on Cancer Compass have been improving our figures...

I was diagnosed with myelofibrosis in 2011. This is said to be incurable. Howeve...

HealthySense

•6 years ago

5 Replies

Suitable Exercises to do

Hi - I’ve had PMR now for 2.5 years and thought I’d like more exercise after having to give up Zumba Gold which I used to do twice a week and thoroughly...

Hi - I’ve had PMR now for 2.5 years and thought I’d like more exercise after ha...

LindaB-66

•6 years ago

37 Replies

Confused and need help please

Hello everyone, my story is a long one I'm afraid so I'll be as brief as possible. I was diagnosed with GCA in December 2012 after a 15 week headache on the...

Hello everyone, my story is a long one I'm afraid so I'll be as brief as possibl...

joyce69

•6 years ago

28 Replies

Atorvastatin & PMR is there a connection?

Hi, I was diagnosed with PMR in August 2017. Started on 10mg and now down to 5mg for the second time. I also have familial cholesterol which was diagnosed...

Hi, I was diagnosed with PMR in August 2017. Started on 10mg and now down to 5mg...

Dipsepat

•6 years ago

18 Replies

So sorry to hear about the mass shooting at a Florida school.

My heart goes out to all our members who live in and around the Florida. This kind of event wounds all of us. It is just so sad. Sending love to you all.

My heart goes out to all our members who live in and around the Florida. This ki...

SheffieldJane

•6 years ago

6 Replies

After some help and advice on GCA management

Hi there, As previously posted I was diagnosed with GCA in July 17 with a starting dose of 40 mg Prednisone. After a number of up and downs I...

Hi there, As previously posted I was diagnosed with GCA in July...

MichaelW

•6 years ago

10 Replies

Needing some hope

I was diagnosed with GCA in October 2017 and have been on high doses of pred since then including 8 weeks on 100mg daily. I am now down to 40mg daily with no...

I was diagnosed with GCA in October 2017 and have been on high doses of pred sin...

Hidden

•6 years ago

7 Replies

Saw NHS Rheumy Dr Khan at William Harvey Hosp, in Spenser Health wing on NHS last night 7pm now confused!!!

I took letter from private consult I had on 30 Jan, from Dr Campbell at Orpington. Who put me of 7 days of 15mg pred. He said unless I showed dramatic results...

I took letter from private consult I had on 30 Jan, from Dr Campbell at Orpingto...

Hidden

•6 years ago

13 Replies

Update on my Plan.

Hello Everyone Am just at the end of my second day on15mg of Pred and feeling so much better so thought I would give you a quick update.. Its wonderful to feel...

Hello Everyone Am just at the end of my second day on15mg of Pred and feeling so...

SheffieldSonia

•6 years ago

8 Replies

"How Can It Be A PMR FLARE?"

Perhaps it was inevitable; stress, change in routine, excitement, wine, wheat, trying to keep up with a one year old! ...but please, can someone help me...

Perhaps it was inevitable; stress, change in routine, excitement, wine, wheat, t...

Hidden

•6 years ago

45 Replies

Simvastatin and Valentine's Day

I had my every 3 month follow-up with my Rheumatologist today. (He's one of the good ones.) I was nervous and prepared myself for 'battle' as I was going to...

I had my every 3 month follow-up with my Rheumatologist today. (He's one of the...

Insight329

•6 years ago

9 Replies

Progress ?

Just when my health was going according to plan, I get 4 minor flare up`s. Crazy, unpredictable state of affairs. Loss of muscle, weight loss, some general...

Just when my health was going according to plan, I get 4 minor flare up`s. Craz...

Oldman-1

•6 years ago

9 Replies

Dexa Scan results

So Ostopenia - should I be concerned? I'm thinking not as long as I take my calcium? Don't want this to be the reason the GP stops the pred altogether (As...

So Ostopenia - should I be concerned? I'm thinking not as long as I take my ca...

powerwalk

•6 years ago

10 Replies

Just to make you all green....

I was quite anxious about my visit to the GP this morning as I was a bit in defiance of my very sensible Rheumy, and was seeking his collusion. He has been on...

I was quite anxious about my visit to the GP this morning as I was a bit in defi...

fren

•6 years ago

16 Replies

Today's bit to cheer you up.

London City airport was closed all day yesterday following the discovery of a WW2 bomb. I have been asked why a bomb in London would be defused by a Royal Navy...

London City airport was closed all day yesterday following the discovery of a WW...

CT-5012

•6 years ago

8 Replies

Reduction Complications.

Hi I have not posted for sometime now but could do with some advice. Since originally diagnosed in Aug 2015, I have been reducing quite happily on the DSNS...

Hi I have not posted for sometime now but could do with some advice. Since origi...

withington1961

•6 years ago

18 Replies

CBD oil for pain, anyone using it?

After a review with my rheumy on Thursday last week I have reduced my Mx by on 2.5mg tablet. I have also commence a slow taper from 10mg to 9mg. Am in lots of...

After a review with my rheumy on Thursday last week I have reduced my Mx by on 2...

IdasMum

•6 years ago

26 Replies

Success

Hi all, I posted a few weeks ago feeling very indignant that I had been refused a dexa scan. I appealed against the decision and have received a letter today...

Hi all, I posted a few weeks ago feeling very indignant that I had been refused ...

polymy

•6 years ago

5 Replies

Recent Hospital Admission

Hello friends, This is just an update on recent experiences in hospital. My PMR is atypical, bloods always normal, pain that doesn't follow the 'rules',...

Hello friends, This is just an update on recent experiences in hospital. My PM...

stellafmdm

•6 years ago

18 Replies

Slightly raised CPR level despite high level of pred at 30mg.

When first diagnosed with one in Jan 2017 my CPR levels were through the roof was put on 15mg pred and they dropped to a very manageable level of around 7 but...

When first diagnosed with one in Jan 2017 my CPR levels were through the roof wa...

Jura1959

•6 years ago

7 Replies

Pred yo-yo?

Hi there, My name is Claude I am 53 an artist and yoga teacher and have been diagnosed with PMR just before Xmas 2017. I have since contributed here and there...

Hi there, My name is Claude I am 53 an artist and yoga teacher and have been di...

ClaudeV

•6 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2018

CBD oil

No pmr?

PMR or Fibromyalgia?

Severe muscle pain strains sprains and weakness

CT scan with contrast,advice please

Demons and Self Doubt

Not a good start to the day :(

Prednisone or GCA flare update

Burp! Whoops, sorry!

Myelofibrosis Natural interventions

Suitable Exercises to do

Confused and need help please

Atorvastatin & PMR is there a connection?

So sorry to hear about the mass shooting at a Florida school.

After some help and advice on GCA management

Needing some hope

Saw NHS Rheumy Dr Khan at William Harvey Hosp, in Spenser Health wing on NHS last night 7pm now confused!!!

Update on my Plan.

"How Can It Be A PMR FLARE?"

Simvastatin and Valentine's Day

Progress ?

Dexa Scan results

Just to make you all green....

Today's bit to cheer you up.

Reduction Complications.

CBD oil for pain, anyone using it?

Success

Recent Hospital Admission

Slightly raised CPR level despite high level of pred at 30mg.

Pred yo-yo?

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